1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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lab54 | @lab54 | Sep 10, 2023
In reply to @susanfalcon52 "Kristie2, I’m still on Evenity. I went to dentist before starting Evenity. She said I was..." + (show)
@susanfalcon52

Kristie2,
I’m still on Evenity. I went to dentist before starting Evenity. She said I was okay to start the drug.
I also saw my neurologist who ordered a brain mri and a carotid artery ultrasound. Also, saw cardiologist who said he was okay with Evenity.
So far, so good.
I’m starting to think about what I’m going to take after.
The oral meds may be a problem as I have GERD.

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I’m a newcomer too Evenity & having side effects. I’m trying too hang in there but wonder what drug too try next? I have bad gum recession & teeth issues. I started Prolia & all the dental specialists told me too get off Prolia. So I did & now on Evenity. My Rheumatologist wanted me too go on Forteo but I couldn’t afford the high cost. Medicare & Lily the manufacturer both denied coverage or assistance. How I wish there was a safer drug for all of us who need too strengthen our bones. Evenity is the newest member but a lot is still unknown. There has too be better options for all of us! Wishing you the best of luck!

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windyshores | @windyshores | Sep 10, 2023
In reply to @laverne23 "I had Reclast infusions for three years. Bone density kept decreasing, so I’m getting my first..." + (show)
@laverne23

I had Reclast infusions for three years. Bone density kept decreasing, so I’m getting my first Evenity injection on Tuesday. Yes, I’m a worried - but it’s my only option at this point. After a year, I was hoping to go back in Reclast infusions, but my rheumatologist said I would go on Prolia. Has anyone gone on Reclast after Evenity instead of Prolia?

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@laverne23 Reclast is recommended by my doc, who never uses Prolia if he can help it. If Reclast is not possible, then alendronate (Fosamax).

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1 reply
laverne23 | @laverne23 | Sep 10, 2023
In reply to @windyshores "@laverne23 Reclast is recommended by my doc, who never uses Prolia if he can help it...." + (show)
@windyshores

@laverne23 Reclast is recommended by my doc, who never uses Prolia if he can help it. If Reclast is not possible, then alendronate (Fosamax).

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Actonel and Fosomax don’t work for me. They cause extreme gastro issues.

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1 reply
serious | @serious | Sep 11, 2023

Are there age issues with taking evenity. My doctor is worried about giving evenity to a person over about 75.

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3 replies
gravity3 | @gravity3 | Sep 11, 2023
In reply to @dianestanley "I did the 12 shots of Evenity ending in July 2023. This drug has added new..." + (show)
@dianestanley

I did the 12 shots of Evenity ending in July 2023. This drug has added new bone. I am supposed to take the Prolia shot now twice per year. It is harding the bones with what the Evenity shots created. I get the first shot of Prolia next week. My back surgeon feels that my bones are strong enough now to finally do my infusion surgery to fix my back due to my injury two years ago. I still can't stand or walk over 4 or 5 minutes.

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Just started evenity and my endocrinologist is suggesting prolia post evenity. Would be very Interested to know what your prolia journey is like when you begin.

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5 replies
windyshores | @windyshores | Sep 11, 2023
In reply to @gravity3 "Just started evenity and my endocrinologist is suggesting prolia post evenity. Would be very Interested to..." + (show)
@gravity3

Just started evenity and my endocrinologist is suggesting prolia post evenity. Would be very Interested to know what your prolia journey is like when you begin.

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@gravity3 you can take Reclast, alendronate or Prolia after Evenity, I have been told. My docs don't use Prolia but others do.

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windyshores | @windyshores | Sep 11, 2023
In reply to @laverne23 "Actonel and Fosomax don’t work for me. They cause extreme gastro issues." + (show)
@laverne23

Actonel and Fosomax don’t work for me. They cause extreme gastro issues.

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@laverne23 I have GERD and can't take actonel or Fosamax either. I have to do Reclast after Tymlos and doc is giving me a 20% dose to test my tolerance. My nephrologist wants me to drink a lot of salty fluids the day before, day of and day after and I will request a slow infusion. I just got word that I am approved for IV hydration before and during the infusion. Fingers crossed. I don't want to lose my gains on Tymlos and feel I am between a rock and a hard place with kidney issues.

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gravity3 | @gravity3 | Sep 11, 2023
In reply to @serious "Are there age issues with taking evenity. My doctor is worried about giving evenity to a..." + (show)
@serious

Are there age issues with taking evenity. My doctor is worried about giving evenity to a person over about 75.

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I'm 75 and just started Friday. What is your doctor's worry about age?

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1 reply
dianestanley | @dianestanley | Sep 11, 2023
In reply to @gravity3 "Just started evenity and my endocrinologist is suggesting prolia post evenity. Would be very Interested to..." + (show)
@gravity3

Just started evenity and my endocrinologist is suggesting prolia post evenity. Would be very Interested to know what your prolia journey is like when you begin.

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I have my first Prolia shot tomorrow. I have had to take risks due to I needed to get my bones better so that I could get surgery on my back. I really have wanted my life back after my injury two years ago. It's not just a back ache. It has been a whole change of my life. My surgery has been scheduled for late October and I am so happy and feel so blessed.

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1 reply
serious | @serious | Sep 11, 2023
In reply to @gravity3 "I'm 75 and just started Friday. What is your doctor's worry about age?" + (show)
@gravity3

I'm 75 and just started Friday. What is your doctor's worry about age?

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She says strokes and other heart issues more common if you are older

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