1. < Autoimmune Diseases

Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?

Posted by sunnyred2247 @sunnyred2247, Oct 26, 2022

I have CIRS, and looking for others who r, as well. So few Drs who even know what it is!!

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

marshasanger | @marshasanger | Sep 9, 2023
In reply to @becsbuddy "@marshasanger Welcome to Mayo Clinic Connect! I’m so sorry that texting or typing is difficult for..." + (show)
@becsbuddy

@marshasanger Welcome to Mayo Clinic Connect! I’m so sorry that texting or typing is difficult for you. Unfortunately, that is the only way we have of communicating. Connect tries very hard to protect everyone’s name and phone number. Do you have a family member or friend who might help you with typing?
Did you have something you wish to discuss or ask the group?

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No one to help me as by myself. Been exposed to black mold and suffering so much with side effects. What do others eat as I’m following the CIRS diet and losing weight. Down to 80 pounds if that. Don’t have a scale now. Wondering if someone could recommend a bonafide person I can trust for information. I do go to a naturopath on zoom but so far only prescribed antihistamines and they have the opposite effect on me and agitate me so unable to sleep. I’m aware of the Shoemaker and Nathan’s books but need one on one. I’m living in Stockton, CA and want help. People find and call me but when I call back they’re not responding. Afraid of scams and scammers. Appreciate any reliable sources and advice and information. Thank you 🙏.

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marshasanger | @marshasanger | Sep 9, 2023

Please let me know what type of food you’re eating and medication you’re taking. Just so curious. Thanks.

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marshasanger | @marshasanger | Sep 9, 2023

Need someone to “talk” to who’s walking in my CIRS footsteps to give me some advice and positive feedback as right now I’m not in a good place. Thank you.

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marshasanger | @marshasanger | Sep 10, 2023

Tell what you eat for breakfast and lunch on a CIRS diet.

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marshasanger | @marshasanger | Sep 10, 2023

How and where do I read comments from the CIRS group???!!!!

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1 reply
marshasanger | @marshasanger | Sep 10, 2023
In reply to @becsbuddy "@marshasanger Welcome to Mayo Clinic Connect! I’m so sorry that texting or typing is difficult for..." + (show)
@becsbuddy

@marshasanger Welcome to Mayo Clinic Connect! I’m so sorry that texting or typing is difficult for you. Unfortunately, that is the only way we have of communicating. Connect tries very hard to protect everyone’s name and phone number. Do you have a family member or friend who might help you with typing?
Did you have something you wish to discuss or ask the group?

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What do you eat and what medication do you take for CIRS?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 10, 2023
In reply to @marshasanger "How and where do I read comments from the CIRS group???!!!!" + (show)
@marshasanger

How and where do I read comments from the CIRS group???!!!!

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Hi @marshasanger, you can click this link to read the comments from CIRS discussion from the beginning:
- Does anyone suffer from CIRS (Chronic Inflammatory Response Syndrome)?
https://connect.mayoclinic.org/discussion/does-anyone-suffer-from-cirs/

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Lauri - teach3foru@yahoo.com | @teach3foruyahoocom | Sep 11, 2023
In reply to @sunnyred2247 "Wow… my heart goes out to U!! Mine is a longggg story, and I’m still desperately..." + (show)
@sunnyred2247

Wow… my heart goes out to U!! Mine is a longggg story, and I’m still desperately trying to find help. Was just in the hospital and NOT ONE NURSE OR DR. Knew one thing about it!!!
Before being diagnosed I had 6 years of a myriad of odd infections, severe explosive diarrhea that didn’t respond to any of tge many drugs prescribed ( couldn’t leave the house)., much mucus and constantly blowing my nose. I’m now experiencing issues with pain/numbness of legs… While. I in the hospital I had numerous MRIs… showed inordinate amount of white lesions on my brain… they ruled out MS … many CIRS pts have been erroneously diagnosed with MS. I hope I’ve answered some of ur questions I’d b More than Happy to speak with you anytime if u felt it could be beneficial. I’m Doctored out!!! U REALLY DO ALMOST HAVE TO BE UR OWN DIAGNOSTITION!!!!! Sad

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Have they tested for MOGAD? Newer diagnosis, often first thought to be MS or even Non-MS demyelinating auto-immune disorder. It started for me in March '23, and I wasn't officially diagnosed until end of August.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 14, 2023
In reply to @marshasanger "What do you eat and what medication do you take for CIRS?" + (show)
@marshasanger

What do you eat and what medication do you take for CIRS?

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@marshasanger I hope the following site will be of some help to you.
https://moldfreemenu.com/35-safe-foods-when-recovering-from-mold-exposure-and-five-to-avoid-completely/
It has a list of foods that are safe for you to eat and ones to avoid.
Do you live in a town that’s near to a hospital?

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