Pacemaker recipients: Looking for support from others

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

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So great to be able to post here. I have had a dual chamber pacemaker fitted on Friday 1st Sept. Feeling a little sore & sorry for myself. Yesterday while having a shower I felt my heart racing. It only lasted for about 5 minutes but of course I got very anxious. I rang my Dr and reassured me it was nothing to worry about once I am taking my blood thinner. . Did anybody else experience this shortly after pacemaker is fitted. It it a healing process and adjusting Period I wonder.... The reason I had the pacemaker is because I have afib and 3 ablations. There is talk of an av node ablation but that I think is only a last resort. I would love to hear from anyone with pacemakers who may reassure me. Thanking you.

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I had my dual chamber ICD installed 4 months ago. It’s still a little sensitive to touch around the edges, but otherwise, I don’t even notice it anymore. The hardest part for me was remembering not to stretch in the morning the first month.

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Barking up my tree… just had a pacemaker and av ablation in may . Very hard decision. My heart rate was at 170 so they had to lower it 10 beats every month and now I’m at 60. First month was somewhat uncomfortable. But now I don’t even know it’s there . Felt a lot better going to the gym after 5 years but I have moments of palpitations and sob . Tired but it’s improved at least 80 percent not perfect but better. My upper heart is still in atrial fib and my lower hearts is paced at 60 . WERID huh?? It will get better . There is an adjustment period hang in there . And I have felt palpitations part of the process.

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Thank you for replying. Just had my av node ablation. All went well.all that weird sensation in my chest is gone. Hopefully now onwards ,& upwards.

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@ev1

Thank you for replying. Just had my av node ablation. All went well.all that weird sensation in my chest is gone. Hopefully now onwards ,& upwards.

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It will go ok . I know just having that sensation in the chest felt good . Hang in there !!!

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@almer

It will go ok . I know just having that sensation in the chest felt good . Hang in there !!!

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Oops I meant not having that sensation in my chest felt really good

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@almer

Barking up my tree… just had a pacemaker and av ablation in may . Very hard decision. My heart rate was at 170 so they had to lower it 10 beats every month and now I’m at 60. First month was somewhat uncomfortable. But now I don’t even know it’s there . Felt a lot better going to the gym after 5 years but I have moments of palpitations and sob . Tired but it’s improved at least 80 percent not perfect but better. My upper heart is still in atrial fib and my lower hearts is paced at 60 . WERID huh?? It will get better . There is an adjustment period hang in there . And I have felt palpitations part of the process.

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I have had my pacemaker inserted a week ago and av node ablation on Wednesday. I feel fine physically really it's just adjusting to the fact that I am solely dependent on pacemaker. It really is scary. I have been reassured that the pacemaker is totally dependable and with regular checks all will be well. I just still have little anxious moments. Will all this pass? I really hope so as I am only 61 and don't want to remain anxious for the rest of my life.

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@ev1

I have had my pacemaker inserted a week ago and av node ablation on Wednesday. I feel fine physically really it's just adjusting to the fact that I am solely dependent on pacemaker. It really is scary. I have been reassured that the pacemaker is totally dependable and with regular checks all will be well. I just still have little anxious moments. Will all this pass? I really hope so as I am only 61 and don't want to remain anxious for the rest of my life.

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I hear your concerns and can feel them . I was 65 when I got the pacemaker and just the thought of being dependent on a pacemaker scared me . I am a nurse and my concern was my atriums are in a fib and my ventricles are working only on a pacemaker .but when I consider the last 5 years and the hell I went thro with not feeling good . Now I feel good and it’s not perfect . But it does get BETTER . All the same thoughts . What if the pacer fails me . But in 40 years of nursing I have never seen a failed pacer . So you hang in there and get thro the adjustment time and text me for support . No you won’t be anxious all your life .. this too wi ll pass . I named my pacemaker Wilson . Lol

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@almer

I hear your concerns and can feel them . I was 65 when I got the pacemaker and just the thought of being dependent on a pacemaker scared me . I am a nurse and my concern was my atriums are in a fib and my ventricles are working only on a pacemaker .but when I consider the last 5 years and the hell I went thro with not feeling good . Now I feel good and it’s not perfect . But it does get BETTER . All the same thoughts . What if the pacer fails me . But in 40 years of nursing I have never seen a failed pacer . So you hang in there and get thro the adjustment time and text me for support . No you won’t be anxious all your life .. this too wi ll pass . I named my pacemaker Wilson . Lol

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Aw thank you so so much for your lovely reply. I feel better already.i will have to come up with a name for mine. Thank you again so much. I will of course keep in touch. You are so kind

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@ev1

Aw thank you so so much for your lovely reply. I feel better already.i will have to come up with a name for mine. Thank you again so much. I will of course keep in touch. You are so kind

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I just had and know those feelings . And unless one has been there it’s hard to relate . ..

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