Dealing with it? Indeed. My doctor told me that my Neuropathy is beyond the point of improvement. But who knows. I can either let it take it's course (death) or fight it and die at a later inevitable date. But right now...the pain is 24/7. I am 71 winters and if I make it to the Springtime ....who knows...I may get married and write a book!
Hello @hinhan, welcome to Connect. I have small fiber peripheral neuropathy and starting my 76th winter. I'm nixing writing the book but do just take it one day at a time the best I can.
Are you taking any medication for your pain or any alternative treatments?
Dealing with it? Indeed. My doctor told me that my Neuropathy is beyond the point of improvement. But who knows. I can either let it take it's course (death) or fight it and die at a later inevitable date. But right now...the pain is 24/7. I am 71 winters and if I make it to the Springtime ....who knows...I may get married and write a book!
I've been taking it for about two years. 300 mg 3 times a day. I've told my doctor I don't think it's at all helpful but they keep telling me to keep taking it.
I do plan to phase it out sometime this winter.
I have been taking Gabapentin of a year, each time it has been increased the type of pain has changed as well as the location. I had two strokes in 2014, and worked hard to reconnect my brain and body, then came the pain because the body/pain connection was faulty. I have increased my Gabapentin to 2 (300mg) at night and 2 (300mg) in the morning, getting use to the side effects is something else, but the pain is tolerable. I cannot say that about the side effect, which will go away or I will go back to one less pill.
Hi, I was taking 2400 mg of Gabapentin and still had pain. I am now taking Duloxetin and have been able to reduce the Gabapentin some. The first two weeks of the Duloxetin were horrible, but once I adjusted its been a good choice. I get frustrated that I can't do some of the things I used to, but I refuse to give up! I wish you the best.
@rabbit10 I have had neuropathy over most of my body for about 20 years, I am now 78. I have several types of autoimmune, including rheumatoid arthritis, muscular dystrophy, Cardiomyopathy, cerebral amyloid encephalopathy, headaches, cornea lattice failure, purpura, Gelsolin, Cardiac arrythmia, Spinal stenosis with nodules, several organ cancers, Kidney failures, breaking teeth, pancreomegaly, cardiomegaly, multiple strokes and heart attacks and other stuff. I took gabapentin, Lyrica, etc. The only thing that has helped is Walmart Equate generic super-tylenol PM 8 pills a day, and Sipping Raw Apple Cider Vinegar with honey and turmeric. At least I can sleep now.
Hi, I was taking 2400 mg of Gabapentin and still had pain. I am now taking Duloxetin and have been able to reduce the Gabapentin some. The first two weeks of the Duloxetin were horrible, but once I adjusted its been a good choice. I get frustrated that I can't do some of the things I used to, but I refuse to give up! I wish you the best.
Hi, @chowmama2 - I'm glad that taking duloxetine has been a good choice for you. I'm guessing your pain has reduced?
I like your "refuse to give up" mentality - it's great.
You also mentioned your first two weeks of taking duloxetine were horrible. Will you share more about what you experienced in those weeks when you started the medication?
yes i have pn Im taking gapapetin 1.5 at dinner and 1.5 at bed time 900 each time, Im okay during the day put after a few hours in bed I have pain around my shins, at time it feels like its cold it keeps me awake I play on the computer untill I can't stay awake, does laser therapy work has anyone used it?
I used cold laser as shown below for my neuropathy. It has worked very well. Got immediate results. Save money and buy your own.
healthcaremarts.com/products/low-level-laser-therapy-device-hand-held?aff=8
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Hello @hinhan, welcome to Connect. I have small fiber peripheral neuropathy and starting my 76th winter. I'm nixing writing the book but do just take it one day at a time the best I can.
Are you taking any medication for your pain or any alternative treatments?
John
Try spinal nerve stimulation?
I took Gabapentin for over a year and it did nothing for my pain. But I did sleep like a baby!
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1 ReactionWho else has found that Gabapentin doesn't do a damn thing for pain?????
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1 ReactionI've been taking it for about two years. 300 mg 3 times a day. I've told my doctor I don't think it's at all helpful but they keep telling me to keep taking it.
I do plan to phase it out sometime this winter.
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Like -
Helpful -
Hug
3 ReactionsI have been taking Gabapentin of a year, each time it has been increased the type of pain has changed as well as the location. I had two strokes in 2014, and worked hard to reconnect my brain and body, then came the pain because the body/pain connection was faulty. I have increased my Gabapentin to 2 (300mg) at night and 2 (300mg) in the morning, getting use to the side effects is something else, but the pain is tolerable. I cannot say that about the side effect, which will go away or I will go back to one less pill.
mlmcg
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3 ReactionsHi, I was taking 2400 mg of Gabapentin and still had pain. I am now taking Duloxetin and have been able to reduce the Gabapentin some. The first two weeks of the Duloxetin were horrible, but once I adjusted its been a good choice. I get frustrated that I can't do some of the things I used to, but I refuse to give up! I wish you the best.
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Like -
Helpful -
Hug
2 Reactions@rabbit10 I have had neuropathy over most of my body for about 20 years, I am now 78. I have several types of autoimmune, including rheumatoid arthritis, muscular dystrophy, Cardiomyopathy, cerebral amyloid encephalopathy, headaches, cornea lattice failure, purpura, Gelsolin, Cardiac arrythmia, Spinal stenosis with nodules, several organ cancers, Kidney failures, breaking teeth, pancreomegaly, cardiomegaly, multiple strokes and heart attacks and other stuff. I took gabapentin, Lyrica, etc. The only thing that has helped is Walmart Equate generic super-tylenol PM 8 pills a day, and Sipping Raw Apple Cider Vinegar with honey and turmeric. At least I can sleep now.
Hi, @chowmama2 - I'm glad that taking duloxetine has been a good choice for you. I'm guessing your pain has reduced?
I like your "refuse to give up" mentality - it's great.
You also mentioned your first two weeks of taking duloxetine were horrible. Will you share more about what you experienced in those weeks when you started the medication?
-
Like -
Helpful -
Hug
2 ReactionsI used cold laser as shown below for my neuropathy. It has worked very well. Got immediate results. Save money and buy your own.
healthcaremarts.com/products/low-level-laser-therapy-device-hand-held?aff=8
-
Like -
Helpful -
Hug
3 Reactions