Anyone here dealing with peripheral neuropathy?

Amen! I agree and we as well are getting ready to start juicing in the Joe Cross Reboot ( watch the documentary "Fat, Sick and Nearly Dead') he has swept the world with juicing as medicine! It's even physician approved and I am excited to give it a go! If I can stop the pain and progression of the Peripheral Neuropathy, Fibromyalgia, Thyroid function, osteoarthritis, Gastroparesis with juicing and then a mostly plant based diet following... then whoo hoo!! I will update my progress after a couple of weeks after we start. Hope it helps! Drugs have side effects, cost a lot or DON'T WORK. I am not taking any drugs for Peripheral Neuropathy or Fibro or Gastroparesis or arthritis. I'm using organic dehydrated Super Foods of 50 ingredients mixed in almond milk or juice.(Walmart, anywhere from $10-15) Then Tumeric capsules and Vit D.
Just Keep Swimming...
Darlia

Hi, I'm 86 and have had peripheral neuropathy for a long number of years. I see a Neurologist and he has run different tests, but never found a cause. I take 3 Gabapentin each day and I am able to live with it. As far as I know, there is no cure. I also have a bulging disc, spinal stenosis and Scoliosis. I have an appointment for a spinal injection next week. 🙂

Hello @pdsi43one -- I have no medical training or background. I do have osteopenia and your question is a good one. How to find a good chiroprator or osteopathic doctor. I really didn't know what a doctor of osteopathic medicine (D.O.) was until I did some research. Mayo Clinic has some good information here:

What kind of doctor is a D.O.? Does a D.O. have the same training as an M.D.?
-- https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/osteopathic-medicine/faq-20058168

I found a website associated with The American Osteopathic Association that provides more information and a search function to find a DO in specific locations:
-- https://doctorsthatdo.org/difference

Hope this helps.

John

Hello @liz223, I have idiopathic small fiber peripheral neuropathy and the neurologist thinks it might be hereditary. I once heard an 80 year old research neurologist at a neuropathy support meeting say if you live long enough you will get neuropathy. Didn't make me feel any better but at 74 soon to be 75 I'm OK with it. I don't have pain with my neuropathy so I don't have to take any medications for it.. I just have the tingling and numbness.

You mentioned you have spinal stenosis and Scoliosis. There is a discussion you might want to read through here:

Scoliosis - Introduce yourself and meet others
-- https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

John

Thank you, John. Will search out a DO using the link you sent .

It’s really bad in my buttocks

Hello @prudence - I see this is your first post so I would like to welcome you to Mayo Connect. We are happy you found us.
Are you able to share a little more information about what it is that is really bad? Have you seen a doctor about it?

John

I have had neuropathy for years. It is an awful disease and I feel for fellow sufferers. I have a nerve stimulator that helps me some especially on the soles of my feet. Otherwise I have tried lidocaine ointment on my feet. I also take Lyrica and Cymbalta which help with the neuropathy in my legs and hands.

That is so interesting. I had never heard of anyone having it there before but me. My Dr didn't even seem to respond much to it. I got my PN from chemo( had colon cancer 3b). At first mine was so bad in my buttocks and vaginal area, also hands and knees down to toes. It gradually went away except in hands, legs and feet. I thought I was nuts before though. Glad to hear I wasn't the only one!

@allisonsnow Hi! I also hot my PN from chemo. I had 12 rounds of 2 kinds of chemo that cause it a d ended up in pretty bad shspe. Poor balance, falling, unable to write decent or play piano, open jars or cans, put pins in my hair etc. That was almost 2 years ago and Im grateful to not have cancer now and its much better but still numb and tingly from knees down and hands. Worse with use, other wise feel kind of dead. Thankful I have not had much pain but have had some stinging in my hands. I also have had cramps in my feet, especially during water aerobics. I love the water aerobics because I dont notice my neuropathy in the water. I take Cymbalta, Alpha Lipoic Acid and B6.