Diagnosed with Uterine Cancer (Leiomyosarcoma)

Hi @marchelle, I was wondering how you are doing after your treatment. My husband lost his leg to LMS in March then found that is had spread to his lungs. He is set to start chemo next week where they plan to do 2 rounds then another CT to see if it is working. I'm praying that the treatment you received has worked for you and that you are feeling better. I'm very interested in the Covid vaccine aspect as we are suspicious of that as well. Any updates on your heath and the vaccine link?

Mot with Covid and cancer, but I just had my second surgery (previous one was the hysterectomy to get rid of a big leiomyosarcoma that had a myxoid component). This second tumor grew to the size of an egg in a month and a half. I’ve read that it’s a very rare, very aggressive cancer, the tumor is capable of doubling in size in 4 weeks.

What was done for post surgery treatment. My drs are recommended radiation. I’m having a consultation on the 14th.

Wish I’d reread my previous post. I meant to sat - Not about Covid and cancer- and my drs are recommending..

@joan450 This is so difficult. Your post that follows this indicates that you will meet with the radiation oncologist on November 14.

This is so much to take in. Are you getting your care close to home? How are you feeling about all of this?

I am so sorry the late response. The doctor said that treatment is working, tumors are shrinking. I got covid the first week in October and they stopped my treatments until November 2nd. The doctor said that hopefully there was no growths because of me not having treatments for 3wks. I fully trust God.

I started chemo a month after my diagnosis.

Please forgive my late response. I have been doing chemo since July 2023. The doctors said they were shrinking...then I got covid the 1st week in October, so I didn't do treatment again until November 2nd. I'm praying that it didn't cause any harm. Because it spread from my uterus to my lungs, its considered stage 4. Trusting God through it all. I have been experiencing severe leg pain and swelling.

Ov can. 3b , high grade carsinoma, mid 60s, Had historectomy, then carbo taxol treatments, all ca125 back to normal. first 35, then 11 and 9, it’s beating my feet and bones up. Thinking of quitting while I’m ahead. Reduced Paxil 25% 2nd treatment and numbers are still dropping. But she did say they could fluctuate. I’m concerned that this is all protocol, the atrophy, and neuropathy is irreversible and wonder if I should quit while ahead. Can’t believe how its aged me, and brain loss lol 11 days recovery after 3rd treatment, and my emotions not alway great, negative. Feel it’s best to hide than be mean. Wish I had a c friend to compare, I do have one in much tougher shape than me. what to expect, diet… I just had a terrible sweet tooth, not me and stopped.
Also plan to get Covid and rsv shot this week before treatment, any input? Drs. Didn’t say much other do them 4 days before treatment. Any input? Thanx a little fragile, thanx

I was diagnosed 4/10/23 with LMS. Chemo started 7/21. I’ve had 6 treatments and a ct scan. The cancer is stage 1 and in the vaginal cuff that has shrunk 1/3 the size. However the colon has moved over near the cuff and is endangered by the cancer. Radiation along with chemo is the plan for the next 25 days.