1. < Gynecologic Cancers

Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

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karynk | @karynk | Jul 14, 2023
In reply to @thompson371 "Yes I had leiomyosarcoma ...there was a very small bump above my knee. looked it up..." + (show)
@thompson371

Yes I had leiomyosarcoma ...there was a very small bump above my knee. looked it up on internet and because I met all the criteria (female over 50) I knew immediately what it was.
Went to Dr. and he suggested that I have radiation before I have it surgically removed. He said it is best to do it that way as you want to kill off the small fingerlings surrounding the tumor before you remove it.
I had it removed in 2018. Since then I have had follow up scans and no return of the cancer.

He was the best doctor and so grateful God led me to him.
He has now retired.

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You are so lucky. Mine returns every year. But it is a stage 4. God is good!

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karynk | @karynk | Jul 19, 2023
In reply to @karynk "Yours sounds just like what I’m going through. It returned to the liver and lungs. Chemo..." + (show)
@karynk

Yours sounds just like what I’m going through. It returned to the liver and lungs. Chemo took care of it and a year later it is back in the lungs. I’m doing radiation and then a chemo pill this time.. Prayers for you.

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I have LMS was found three years ago in my IVS vein and also lost my right kidney. Going though the exact Sam thing as you. I did the radiation and now the chemo pill. It’s been three years…stage 4

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superconcernedwife | @superconcernedwife | Jul 19, 2023
In reply to @azhotpets "Anyone here diagnosed with LMS? I don’t think there’s even a specialist in arizona that is..." + (show)
@azhotpets

Anyone here diagnosed with LMS? I don’t think there’s even a specialist in arizona that is working on it. I am stage one. Having to do radiation treatments soon. Already had 3 surgeries in 5 months.

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My husband was diagnosed with stomach leiomyosarcoma (stage 1) in March 2023.....we do not live in the USA...but we were able to have a virtual meeting with a Sarcoma specialist in the states...there is some confusion about the dose of doxorubicin (adriamycin) he should receive...

Anyone here had this drug as one of their chemo drugs? Do you know what dose of it you were given?

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marchelle | @marchelle | Aug 2, 2023

Hi, I just joined this group,and ran across your post. I do believe that, this same thing happened to me and 5 other women that I know of. I had a total hysterectomy in January 2023, and diagnosed with stage 1 at the time, but it metastasized to my lungs. On My 2nd round of treatments. Still trusting God. I pray that you are doing better.

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marchelle | @marchelle | Aug 2, 2023
In reply to @kbrake "My leiomyosarcoma was Dx in June of last year. I had a gyn appointment and everything..." + (show)
@kbrake

My leiomyosarcoma was Dx in June of last year. I had a gyn appointment and everything was ok. Then 5 months after that, I had the two Covid vaccine shots. Three months later I had Stage 4 Uterine Leiomyosarcoma. I believer there is a connection. I am researching and I will pass the research on to my grandchildren. I believe it will be much like the Camp Lajeune class action… year later and too late to save the people it effects. There are studies from other countries that have shown there are nano particles in the blood stream of people who have had the vaccine. I continue to research!

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This same thing happened to me. I pray that you are feeling better. I just got informed today that, there is a possible link to the vaccine, in my case. I am going to talk with my doctors and do more research. God help us all, in Jesus name. Bless you.

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marchelle | @marchelle | Aug 2, 2023
In reply to @rdm62 "I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove..." + (show)
@rdm62

I was diagnosed with leiomyosarcoma in 2011. Three years before that, I had surgery to remove fibroids. Turns out the fibroids were suspicious for cancer at that time, but my doctor didn't catch it. Then 3 years later, symptoms returned and fibroids returned. After a biopsy, I was at Stage 2A. My only treatment was surgery. I had a complete hysterectomy. It was determined that radiation or chemo wouldn't be helpful. So far, it has been 11 years and the cancer has not returned. There is hope out there. Leiomyosarcomas can be aggressive and can be fed by estrogen or progesterone. I have had both Covid vaccines and every booster available, but since I have no ovaries, I'm not producing hormones, so it's not a factor for me. Just remember, synthetic mRNA has been around since 1984. Researchers took what they learned from those early vaccine studies using mRNA to develop the Covid-19 vaccine, so it's not like this was a completely new thing. However, acute stress from having Covid can cause the adrenal glands to produce more hormones which can change your menstrual flow. And as you know, there are so many other factors that affect our hormones. Hard to narrow it down to one thing. Try not to focus on that element, and instead focus on staying positive.

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Thank you. I'm not sure if you will see this, but you encouraged me. I was diagnosed with leiomyosarcoma in January 2023, after having a total hysterectomy. It metastasized to my lungs, on my 2nd round of treatment. Trusting God and staying positive, all the way. I

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3 replies
marchelle | @marchelle | Aug 2, 2023
In reply to @azhotpets "Thank you. I do agree I need a dr. That specializes in LMS. In arizona, I..." + (show)
@azhotpets

Thank you. I do agree I need a dr. That specializes in LMS. In arizona, I have not found one yet. Wishing you no more spreading only shrinking!💕

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You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

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3 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 11, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

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Hi @marchelle, a belated welcome to you and I'm hoping @azhotpets @karynk @dfflores @rdm62 @designer22 will join me in my welcome.

May I ask what treatment you're now on Marchelle? How are you doing?

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rdm62 | @rdm62 | Aug 11, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

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Hi Michelle. I'm sorry to hear that LMS had spread to your lungs. I do hope that your treatments and your faith eradicate the cancer. Staying positive is so important in healing. Cancer can be physically and emotionally draining, but I hope that you have a strong support system around you that can help you get through this physically and mentally. I will keep you in my prayers.

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dfflores | @dfflores | Aug 12, 2023
In reply to @marchelle "You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total..." + (show)
@marchelle

You ladies inspire me. I was diagnosed with LMS In January 2023; I had a total hysterectomy, now spread to my lungs. I'm in my 2nd round of treatment. I pray that God send His healing angels to touch us all. I pray for no more spreading, only shrinking tumors and they are all destroyed to their core, in Jesus name. Bless you, and stay encouraged.

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Keeping you and yours in thoughts and prayers😇

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