Does anyone know of anyone whom has gotten over Long Covid Condition

Posted by jimmiep @jimmiep, Jul 30, 2023

We are all hearing of our issues that don't seem to get any better BUT, does anyone know of someone who has beat this bug. My wife made the comment that those who beat it probably don't communicate hear on this sight any more. If someone has found a way to beat this thing please let the rest of us know how you did it.
I've only been dealing with this for 7 months now and I am exhausted with it. Hearing that some have been suffering with this for 2 1/2 to 3 years is dis-heartening for sure. I really feel bad for you folks. I'd be a pot head by now. At least I'd be able to control the way I feel. I'm starting to think that way. Good luck everyone.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

After battling long covid for a year, I realized that it was a blood thickness problem. I used natural blood thinners such as vitamin E, garlic, ginger, cayenne, turmeric and natto. I am now blessed in being back to normal.

My realization came from "roller coaster" good and bad days. I observed that after I had things like curry or natto, I had some good days. When I did not have them, I took a dive again into fatigue, muscle aches, breathing problems and brain fog. The thick, or sticky, blood keeps the oxygen from flowing into the small blood vessels. Oxygen deprivation can cause the symptoms.

I have found, for me, that a significant volume of the natural blood thinners are needed to maintain normalcy. Exercise is also important. I hope everyone finds a solution.

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@joanma

I’m no doctor or scientist, so here’s my amateur understanding. I have read everything I can find on Long Covid, and many see it as a disease of the mitochondria at the cell level — the virus has damaged them so our cells can’t produce the energy levels we need. That’s why the exhaustion and the overall incapacitation, and why pacing is so critical — push beyond the energy our cells have and there is a toxic build-up at the cellular level which makes us feel worse (not better) and energy levels get/stay low — and pushing too much brought me days of needing to recover to even get back to where I was before the energy crash with accompanying aches, pains, and limits as if I had been hit by a truck. When I worked from that premise, I accepted I could not go beyond my current energy limits without a crash and burn. The more I paced, the more over time I could do and the fewer/milder the crashes. I fuel by lying down and mini-naps, not coffee. It’s been a long recovery but the trend has been uphill and healing lasting. Hope this helps. Long Covid has been a bear and a shock beyond anything I expected life to bring my way. But I have hopes to heal completely.

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Hi Johanna,
I can relate to much of what you've said - especially about pacing, crashing and massive reading, especially of medical abstracts, of everything I can get my hands on about Long Covid. I am leaning toward another major medical theory about Long Covid causation - microclots. Medical evidence in the US, UK, Germany, South Africa and elsewhere has led to the conclusion the microclots produced during viral illnesses and normally dispensed with during the recovery process, linger in Long Covid patients. The theory is that these microclots prevent necessary oxygen from being adequately dispersed organs within the body, resulting in the shortness of breath and brain fog common to Long Covid patients. There's even an experimental treatment in Germany and UK where and apheresis process to remove blood, "cleanse" it and return it to the body. Results are mixed. Based on this medical research and experimental treatments, I am trying donating blood to see if it helps my symptoms. I had never donated blood before and will be alternating between donating whole blood and also plasma and "power red". The later two use process similar to the apheresis Long Covid treatment. Just started, but noticed some improvement and will be further chronicling any changes and healing with upcoming blood donations. Worst case - I'll be saving lives by donating blood.

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I have wondered about this too. Could my ear issues and eye issues have to do with just not getting enough oxygen/blood supply?
Went to vascular specialist and he checked blood flow in my legs, and pronounced me fine. But how would that tell what is getting to my head?
I’ve been taking an aspirin a day and K. vitamin with hopes of helping blood flow. Isn’t is
horrible to be your own doctor??

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Sorry I don’t know how to insert a link. Look this up on Twitter (X). Very interesting and a little worrisome.

The Long Covid Sessions Podcast
⁦‪@SessionsTlc‬⁩

Long COVID. Shorter Life? New research reveals an arduous road to recovery | Fortune fortune.com/2023/08/21/lon…

8/24/23, 1:49 AM

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I too am a long covid survivor. Although I use that term loosely. I have been to TEAMS of docs at THEE Cleveland Clinic and the only help I seem to be getting from the sozen doctors I see, is from the FUNCTIONAL MEDICINE Dr's. They believe my crazy symptoms post covid Sept 2022, are from MAST CELL ACTIVATION that has not turned off since my Covid in Sept 2022. I have vibratory feelings in me chest or abdomen as well as my legs. It feels like a cell phone on vibe. My skin on the back of my arms often feels like its got sunburn despite no sunburn being there. My head feels foggy on and off and also feels vibratory at times. My teeth even sometimes mildly klank because of jaw spasm but the dentist said its not TMJ. I HAD tremors that were unbelievable and had a spinal tap and brain and spinal MRI's to rule out M.S and Parkinsons and ALS. The tremors are less pronounced but they persist daily. My rib cage constantly feels like its being squeezed and the skin burns there too. I've had scans and blood tests beyond belief and the ONLY blood test that came back abnormal was my TRYPTASE BLOOD tests .I've had SIX of those tests to see if there is a patterns and all of the, were just over the norm by a point or two. I am on mast cell stabilizers and second generation antihistamines (ie...zyrtec, xyzal) and H2 blockers like Famotidine or Pepcid. The mast cell stabilizer meds must be prescribed by a physician ( Ketotifen, Cromolyn, Singulair) although there are weaker mast cell stabilizers in OTC supplements but these too need to be discussed with your physician since they CAN interact with MANY other medications or physical conditions. I just turned 60 years old and was quite an athlete. Always had an athletic build and incredible stamina. Now I can barely stand long enough to shower. It's been 10 months of misery and don't know if any of the meds I am on are helping. I am told I need to give the meds three months. In one more month it will be three months. I AM ALSO being tested for mold toxicity because Covid can bring out many conditions that we were able to deal with prior to getting covid. Covid brings out a lot of problems and screws up your immune system badly. Any one else ever hear of all these crazy symptoms?

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@dloos

I have wondered about this too. Could my ear issues and eye issues have to do with just not getting enough oxygen/blood supply?
Went to vascular specialist and he checked blood flow in my legs, and pronounced me fine. But how would that tell what is getting to my head?
I’ve been taking an aspirin a day and K. vitamin with hopes of helping blood flow. Isn’t is
horrible to be your own doctor??

Jump to this post

Sometimes u have to be your own Dr ! Who knows our bodies better than ourselves??? It’s trial and error anyway with this LC😛

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@laja

I too am a long covid survivor. Although I use that term loosely. I have been to TEAMS of docs at THEE Cleveland Clinic and the only help I seem to be getting from the sozen doctors I see, is from the FUNCTIONAL MEDICINE Dr's. They believe my crazy symptoms post covid Sept 2022, are from MAST CELL ACTIVATION that has not turned off since my Covid in Sept 2022. I have vibratory feelings in me chest or abdomen as well as my legs. It feels like a cell phone on vibe. My skin on the back of my arms often feels like its got sunburn despite no sunburn being there. My head feels foggy on and off and also feels vibratory at times. My teeth even sometimes mildly klank because of jaw spasm but the dentist said its not TMJ. I HAD tremors that were unbelievable and had a spinal tap and brain and spinal MRI's to rule out M.S and Parkinsons and ALS. The tremors are less pronounced but they persist daily. My rib cage constantly feels like its being squeezed and the skin burns there too. I've had scans and blood tests beyond belief and the ONLY blood test that came back abnormal was my TRYPTASE BLOOD tests .I've had SIX of those tests to see if there is a patterns and all of the, were just over the norm by a point or two. I am on mast cell stabilizers and second generation antihistamines (ie...zyrtec, xyzal) and H2 blockers like Famotidine or Pepcid. The mast cell stabilizer meds must be prescribed by a physician ( Ketotifen, Cromolyn, Singulair) although there are weaker mast cell stabilizers in OTC supplements but these too need to be discussed with your physician since they CAN interact with MANY other medications or physical conditions. I just turned 60 years old and was quite an athlete. Always had an athletic build and incredible stamina. Now I can barely stand long enough to shower. It's been 10 months of misery and don't know if any of the meds I am on are helping. I am told I need to give the meds three months. In one more month it will be three months. I AM ALSO being tested for mold toxicity because Covid can bring out many conditions that we were able to deal with prior to getting covid. Covid brings out a lot of problems and screws up your immune system badly. Any one else ever hear of all these crazy symptoms?

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@laja,
Wow, can I relate - we are like twins in our symptoms! My rib cage and stomach feels like I'm being squeezed by a Cobra snake. I've been suffering with same symptoms now for 3 yrs!

In addition to the above, I developed a chalazion below my lower lash line and phetheris and I never had issues with my eyes. The chalazion became infected after Dr did a steriod shot. That resulted in two surgeries to lance it and get the pus out, all to no avail and chalazion is still there 1 yr later. Just recently my throat started to hurt, went to walk-in clinic fearing Covid or strep, again which luckily tested negative. 1 week ago, I now have a sore red area in back of my throat with a white/creamy colored spot in center, hurts to swallow. I'm thinking possibly EBV, etc.
Again, never had any of these issues prior. Also now developed a groin hernia which requires surgery I can't get because my weight is now down to 90 lbs.

Blood work now shows low B-12, ferritin and zinc - hello Covid! I was told I need a B-12 injection and iron infusion. Infusion was worst mistake every! I had such a severe reaction and my feet turned bright red/blue-ish in color and were very painful with pins & needles senstions. It was the worst experience every. They had to give me strong antihistamine. Worst yet, they want me to come back and continue with the infusions!

As an FYI, save yourself some $$$. I did the same and tested for mold toxicity and it tested fine. If anything, I would focus on the gut for fungus, etc. My stomach is in so much pain and I can no longer even it the foods I always ate and loved. I had an endoscopy due to the extreme weight loss and it showed mild inflammation in lining of stomach. Never had this pre-covid and I know I wouldn't have it now if I never got Covid, twice.

Like you, I was so very health and active and enjoyed running, walking, hiking, yoga, working in my yard and lovin' my job so much. I can barely function and survive now.

I'm going to send you PM - please watch for it.
Your right, Covid messed with our very healthy immune system and is attacking our body in ways we can't imagine.

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@britelite

Sorry I don’t know how to insert a link. Look this up on Twitter (X). Very interesting and a little worrisome.

The Long Covid Sessions Podcast
⁦‪@SessionsTlc‬⁩

Long COVID. Shorter Life? New research reveals an arduous road to recovery | Fortune fortune.com/2023/08/21/lon…

8/24/23, 1:49 AM

Jump to this post

I hope this may help you to have hope for the future. I'm making a very long story short, you can read my prior posts if you wish to. I dealt with long C for a year and a half. I was is in the hospital emergency room five times, hospitalized for 3 days. I had every symptom you can imagine. I thought I was having a stroke. I thought I was having a heart attack, there were so many things going on, internal vibrations, headaches, hair loss. I felt like it was the end for me. I am feeling so much better many of the symptoms are gone. I am now back on the tennis court and feeling 90% better. I keep waiting to see if it will come back and I have days where I'm a little tired but I just keep pushing through it and try not to think about it. I refuse to let this take over my life if I can help it. So with that I hope that there's hope for other people out there reading this. I never thought I would see another day, let alone feel better. Hang in there, I truly feel it gets better it just takes time. For some reason this seems to have its own time frame. Keep positive, I have always believed that thoughts become things so I do not think about it at all. Even days that I did not want to do anything I made myself get out there.
Be kind to yourself take care of yourself!

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I have had long covid twice, both times - 9 months. I’m sorry you are suffering with it.

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Cindelee,
Was there a treatment that helped, or did you just start to pull out of it on your own?
Your symptoms are not like mine, but I’ve been in this for 16 months and it never lets up. I have hearing loss, tinnitus, hyperacusis, dizziness, hair loss, blurry vision and digestive issues. I’ve been to all the traditional doctors and also alternative treatments with no help from anybody.
I have begun to believe unless my body figures it out.....there just is no help.
I try to stay positive and do as much as I can.

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