I am a Vietnam War Vet with agent orange we think ha ha..I have Peripheral neuropathy of the feet and spine. Med's Turmeric Curcumin 2000 mg. or more with pepper.Plus Gabapentin 600 mg.Three times a day. But the best thing that helps me is my Laser TouchOne for pain.So what ya say! HOOT""
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Mine has come on suddenly and my doctor doesn't know what is causing it. Have 2 herniated discs in
Lower back so he is presuming that is why. I'm not sure it is. The buzzing and vibrating and numbness freak me out. Going to PT now. Are there any natural products that help?
I was diagnosed with Transverse Myelitis in 1999 and diabetes in 2011. Burning, pins and needles in my feet and calves, I have tried Verizon's anti depressants but the side effects are worse than the pain. The pain gets worse when I get too hot or when it gets cold and damp outside. Just started using magnesium oil spray, I how not really noticed a difference yet.
I take Lyrica, but it doesn't help much. Tried Gabepentin and gained weight guickly. My legs also swelled up. I guess I'm not really dealing with neuropathy at this time. My lower body bothers me all day long. My legs, butt, groin & feet. I'm wondering if something like Valium would help. I don't want to get hooked on a drug, but would love to have something to alleviate my nerve pain.
I developed peripheral neuropathy because of chemo. My oncologist says the only thing studies have proven effective is gabapentin (neurotoxin) It doesn't work for everyone and if the dose isn't high enough it won't work at all. I think it has gotten slightly better but my fingers and toes and soles are pretty numb and cold makes it worse. I know others suffer more severely and at least I'm not in pain but you might want to ask your doctor about medication. I'm glad to read above there may be new treatments down the pipe. Ones based on science, not snake oil
Hello,
Just joined this very informative site a few minutes ago.
Here is my story :
In November of 2014 I fell off an escalator and landed full body weight on my right side. I tore all the ligaments in my right ankle and trough physical therapy learned that I had CRPS ( Chronic Reginal Pain Syndrome or RSD ) . My left top of the foot would be firey red and require a cold wash cloth at night to keep the heat down. The last doctor I went to said I know longer have the CRPS as the symptoms magically went away. I do have chronic pins and needs and can barely walk. My life is horrible, all I do is sleep and then come downstairs and watch TV or read on my IPad. This is now way to live and I even tried to commit suicide with a failed attempt. Currently talking Cymbalta and Gapentin for pain and they do help.
Any suggestions or feedback would be appreciated .
My peripheral Neuropathy has been developing for 7 or 8 years.,I have never had chemo or diabetes. Looking back, I'm sure my Dad had it. Also my brother and his son. None of us have ever had chemo or diabetes. So far Ihave little pain. But do hAve numbness and occasionally a burning sensation. For many years I have taken a lot of ShakleeFood Supplements including a " pain relief complex" .so that maybe controlling the pain.
So glad to have you all on Mayo Clinic Connect...and already connected with such great insights! Thank you all for sharing your history and joining us here.
We would love to get to know you all better, and continue this insightful conversation. What have been your biggest challenges in dealing with your symptoms? What has helped you find relief?
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Is anyone on here dealing with CIDP (chronic inflammatory demylenating polyneuropathy )?
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2 ReactionsI am a Vietnam War Vet with agent orange we think ha ha..I have Peripheral neuropathy of the feet and spine. Med's Turmeric Curcumin 2000 mg. or more with pepper.Plus Gabapentin 600 mg.Three times a day. But the best thing that helps me is my Laser TouchOne for pain.So what ya say! HOOT""
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2 ReactionsGabapentin 300 mg. at bedtime works wonders - along with 300 mg. twice a day
Mine has come on suddenly and my doctor doesn't know what is causing it. Have 2 herniated discs in
Lower back so he is presuming that is why. I'm not sure it is. The buzzing and vibrating and numbness freak me out. Going to PT now. Are there any natural products that help?
-
Like -
Helpful -
Hug
2 ReactionsI was diagnosed with Transverse Myelitis in 1999 and diabetes in 2011. Burning, pins and needles in my feet and calves, I have tried Verizon's anti depressants but the side effects are worse than the pain. The pain gets worse when I get too hot or when it gets cold and damp outside. Just started using magnesium oil spray, I how not really noticed a difference yet.
-
Like -
Helpful -
Hug
2 ReactionsI take Lyrica, but it doesn't help much. Tried Gabepentin and gained weight guickly. My legs also swelled up. I guess I'm not really dealing with neuropathy at this time. My lower body bothers me all day long. My legs, butt, groin & feet. I'm wondering if something like Valium would help. I don't want to get hooked on a drug, but would love to have something to alleviate my nerve pain.
-
Like -
Helpful -
Hug
2 ReactionsI developed peripheral neuropathy because of chemo. My oncologist says the only thing studies have proven effective is gabapentin (neurotoxin) It doesn't work for everyone and if the dose isn't high enough it won't work at all. I think it has gotten slightly better but my fingers and toes and soles are pretty numb and cold makes it worse. I know others suffer more severely and at least I'm not in pain but you might want to ask your doctor about medication. I'm glad to read above there may be new treatments down the pipe. Ones based on science, not snake oil
-
Like -
Helpful -
Hug
2 ReactionsHello,
Just joined this very informative site a few minutes ago.
Here is my story :
In November of 2014 I fell off an escalator and landed full body weight on my right side. I tore all the ligaments in my right ankle and trough physical therapy learned that I had CRPS ( Chronic Reginal Pain Syndrome or RSD ) . My left top of the foot would be firey red and require a cold wash cloth at night to keep the heat down. The last doctor I went to said I know longer have the CRPS as the symptoms magically went away. I do have chronic pins and needs and can barely walk. My life is horrible, all I do is sleep and then come downstairs and watch TV or read on my IPad. This is now way to live and I even tried to commit suicide with a failed attempt. Currently talking Cymbalta and Gapentin for pain and they do help.
Any suggestions or feedback would be appreciated .
Thanks for reading this ❤️
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3 ReactionsMy peripheral Neuropathy has been developing for 7 or 8 years.,I have never had chemo or diabetes. Looking back, I'm sure my Dad had it. Also my brother and his son. None of us have ever had chemo or diabetes. So far Ihave little pain. But do hAve numbness and occasionally a burning sensation. For many years I have taken a lot of ShakleeFood Supplements including a " pain relief complex" .so that maybe controlling the pain.
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Hug
3 ReactionsHello @tjjc123, @jkstrawther, @bod8shs, @hoot, @lisamaria, @materk, @alexandria56
So glad to have you all on Mayo Clinic Connect...and already connected with such great insights! Thank you all for sharing your history and joining us here.
In this discussion, you will meet members like @johnbishop, @ridgerunner, @jczarkowski1270, @mfobrien36, @magg, @twinky, and many others who have discussed living with peripheral neuropathy and various remedies to help ease the symptoms.
@hoot, you may also wish to view this discussion, "Agent Orange and Neurological Disorders," http://mayocl.in/2lJzlv5, where you will meet @johnjames @turner14 @macbeth @ggopher and others who talk about their journey and experiences about Agent Orange.
We would love to get to know you all better, and continue this insightful conversation. What have been your biggest challenges in dealing with your symptoms? What has helped you find relief?
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