Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@dbently here is the link I found for essential oils for peripheral neuropathy that I am going to try. I am going to an informational group meeting tonight with a person who is just getting into the Young Living Essential Oils business. http://theherbalistjournal.com/essential-oils-and-peripheral-neuropathy/ .

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@bobsconnect

@selena54<br />
I pray every night thanking the Lord for his intervention in my medical care. I am on Medicare which pays for a lot of my care and meds. Another supplemental plan that helps pick up some of the remainder. He has seen me through so much these past few years and I am doing much better but I will never be my full self again. The damage is done but He gives me light and my life is spared. He is keeping me around, I figure, to complete his plan for me. I submit to Him all my troubles and He rewards me everyday. Medical advances are miracles but can't compare to His compassion and love for us. I wish you the best and thank you for opening up. I will pray for you Selena and ask Him to bring upon you all his marvelous Grace and set you free of what troubles you.<br />

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@bobsconnect, I agree with you. What faith you have, you are truly a strong<br />
and kind person! I to am kept my the Lord's mercy. There's peace through<br />
the pain. My mom is on Medicare, and I know what a blessing it is. She has<br />
RA, that has taken her independence from her. She was diagnosed with fist<br />
stages of Alzheimer's disease six months ago. So when you pray please pray<br />
for her. Thanks for your post. Salena<br />
<br />
salena<br />

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Is anyone here on mycophenolate for severe neuropathy or anything else? The neurologists recommended that I try it yesterday and I will, but I'm concerned about possible serious side effects, like lymphoma.

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My daughter in law sells oils from young living. She makes a rub with<br />
coconut oil and uses olive oil so the oils I roll on for pain. I've been<br />
using the oils for about five months now. They work OK, when I have a bad<br />
day I have to take something stronger. I use the oils for all kinds of<br />
things. I even use them in a diffuser I purchased from the same company.<br />
<br />
salena<br />

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@salena54

My daughter in law sells oils from young living. She makes a rub with<br />
coconut oil and uses olive oil so the oils I roll on for pain. I've been<br />
using the oils for about five months now. They work OK, when I have a bad<br />
day I have to take something stronger. I use the oils for all kinds of<br />
things. I even use them in a diffuser I purchased from the same company.<br />
<br />
salena<br />

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Thanks. I'm going to look up their website.<br />
<br />

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If you live in the Minneapolis area, the Minnesota Neuropathy Association is having a meeting on Thursday, April 28th at 7pm - a guest speaker, Denise Nelson, RN is giving a talk - "Solving the Health Care Puzzle and the Role of the RN Patient Advocate". More information can be found on the website - http://www.neuropathy-mn.org/

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@bobsconnect - I don't have any side effects from the 100mcg/hr. It is the only thing that has ever helped. I took gabapentin for three months, several years ago, and have no memory of that time. I made so many mistakes at work. My neuropathy is caused by nerve damage from spine tumors and the six lower back surgeries I've had. I've been on the 100mcg for years and it still works. Why won't your doctor up your dosage instead of having you switch it out every two days in the summer?

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@johnwburns

Is anyone here on mycophenolate for severe neuropathy or anything else? The neurologists recommended that I try it yesterday and I will, but I'm concerned about possible serious side effects, like lymphoma.

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Go to: http://www.realfoodnutrients.com and click on the Nerve Formula. This is a<br />
supplement with NO side effects. I have had neuropathy for about 10 years<br />
and this is what I have taken. No more pain, burning, stabbing, etc. I am<br />
sooo thankful for this supplement. Best of all, no side effects as you have<br />
with prescription drugs!<br />
<br />
<br />
<br />
<br />
<br />
The things we take for granted, others are praying for!<br />
<br />
<br />
<br />

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@johnwburns

Is anyone here on mycophenolate for severe neuropathy or anything else? The neurologists recommended that I try it yesterday and I will, but I'm concerned about possible serious side effects, like lymphoma.

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Thanks. I have no doubt that it may help. I've looked into b vitamins for neuropathy before, especially B6 and methylcobalamin. The only problem with using high doses of B12, and thiamine more so, is that they may stimulate cancer growth. The jury is still out but I'm trying to minimize my risk. I'm looking at a second recurrence of prostate cancer so the neuropathy is just one of several issues, albeit a big one. High doses of thiamine may hinder cancer growth but until they are sure, and it seems like they never are, I'll be cautious.

High-dose vitamin B1 reduces proliferation in cancer cell lines analogous to dichloroacetate. - PubMed - NCBI

High-dose vitamin B1 reduces proliferation in cancer cell lines analogous t...
By Hanberry BS , et al. Cancer Chemother Pharmacol. 2014 Mar;73(3):585-94. doi: 10.1007/s00280-014-2386-z. Epub 2014 Jan 23. Research S... | |

The formula that you suggested does look particularly good and I'll file it in case I decide to drop the drugs and go the natural route. Thanks very much for the suggestion.

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@johnwburns

Is anyone here on mycophenolate for severe neuropathy or anything else? The neurologists recommended that I try it yesterday and I will, but I'm concerned about possible serious side effects, like lymphoma.

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I had hip replacement surgery in November 2015 now I have pain in the leg that it makes it impossible to move my left leg it is like the foot is super glued to the floor surgeon says everything is fine work says u have 37 more days to figure it out or you can't work this means I lose my job and insurance any suggestions<br />
<br />

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