About 10 years ago, I began feeling "funny" sensations in my feet. I<br />
notified my dr. who used a small instrument to poke at toes/feet asking<br />
"can you feel that?" Yup, I could feel it so he said it was probably okay.<br />
It continued. Five years later, I developed cancer and underwent chemo for<br />
6 months and some radiation. Now, I have a full-blown case of neuropathy<br />
that extends from feet up to ankles but it is a different than the *lack of<br />
feeling* type - I feel everything. I can't stand on my bathmat because it<br />
hurts - how odd is that? Feet and ankles feel as though they are tightly<br />
bound much as if you'd wrapped duct tape tightly around feet and ankles<br />
many times. If my feet become too warm, they itch and there are frequent<br />
jabs of severe pain. Ankles swell by bedtime. So, before I go to bed at<br />
night, I stand on the cold garage floor for a few minutes to be sure the<br />
feet are cold enough to allow me to get some sleep. I take no pain meds<br />
(other than acetomenaphin) but take warfarin for a blood clot. I'm 80<br />
years old and have heard horror stories about the testing that is done to<br />
determine extent of nerve damage and am not in a mood to experience further<br />
discomfort unless something really can be accomplished. So far, the best<br />
therapy I've found is to keep your feet cool and apply a good foot cream<br />
both AM and PM. Just a note<br />
@salena54 and others - I just started reading a book The Wahls Protocol: A radical new way to treat all chronic autoimmune conditions using Paleo principles by Terry Wahls, M.D. with Eve Adamson which looks like it might be of interest to a lot of us looking into alternative treatments. More info here: http://terrywahls.com/about-the-wahls-protocol/ - I know I need to eat better just hoping to get some extra incentive.
I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />
I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />
@salena54 and others - I just started reading a book The Wahls Protocol: A radical new way to treat all chronic autoimmune conditions using Paleo principles by Terry Wahls, M.D. with Eve Adamson which looks like it might be of interest to a lot of us looking into alternative treatments. More info here: http://terrywahls.com/about-the-wahls-protocol/ - I know I need to eat better just hoping to get some extra incentive.
Mary so sorry that happened to you hope you I'll find something in these posts that will help you. I have already received some suggestions to try. Good luck<br />
<br />
Yes I am sure it is getting hard to walk since the neuropathy also makes legs unsteady and with fibromyalgia just adds to the problem. I wish you to find something in these posts to help you.<br />
<br />
I have been thinking of the essential oils since I heard of them on these<br />
post. I have tried about everything known to man but not this. Could<br />
you give me the ingredients and the amounts to use for the cream?<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
@selena54<br />
I pray every night thanking the Lord for his intervention in my medical care. I am on Medicare which pays for a lot of my care and meds. Another supplemental plan that helps pick up some of the remainder. He has seen me through so much these past few years and I am doing much better but I will never be my full self again. The damage is done but He gives me light and my life is spared. He is keeping me around, I figure, to complete his plan for me. I submit to Him all my troubles and He rewards me everyday. Medical advances are miracles but can't compare to His compassion and love for us. I wish you the best and thank you for opening up. I will pray for you Selena and ask Him to bring upon you all his marvelous Grace and set you free of what troubles you.<br />
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About 10 years ago, I began feeling "funny" sensations in my feet. I<br />
notified my dr. who used a small instrument to poke at toes/feet asking<br />
"can you feel that?" Yup, I could feel it so he said it was probably okay.<br />
It continued. Five years later, I developed cancer and underwent chemo for<br />
6 months and some radiation. Now, I have a full-blown case of neuropathy<br />
that extends from feet up to ankles but it is a different than the *lack of<br />
feeling* type - I feel everything. I can't stand on my bathmat because it<br />
hurts - how odd is that? Feet and ankles feel as though they are tightly<br />
bound much as if you'd wrapped duct tape tightly around feet and ankles<br />
many times. If my feet become too warm, they itch and there are frequent<br />
jabs of severe pain. Ankles swell by bedtime. So, before I go to bed at<br />
night, I stand on the cold garage floor for a few minutes to be sure the<br />
feet are cold enough to allow me to get some sleep. I take no pain meds<br />
(other than acetomenaphin) but take warfarin for a blood clot. I'm 80<br />
years old and have heard horror stories about the testing that is done to<br />
determine extent of nerve damage and am not in a mood to experience further<br />
discomfort unless something really can be accomplished. So far, the best<br />
therapy I've found is to keep your feet cool and apply a good foot cream<br />
both AM and PM. Just a note<br />
-
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1 Reaction@salena54 and others - I just started reading a book The Wahls Protocol: A radical new way to treat all chronic autoimmune conditions using Paleo principles by Terry Wahls, M.D. with Eve Adamson which looks like it might be of interest to a lot of us looking into alternative treatments. More info here: http://terrywahls.com/about-the-wahls-protocol/ - I know I need to eat better just hoping to get some extra incentive.
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1 ReactionThanks, I will look it up.
@salena54,
Pain pumps are implantable devices that can help when severe chronic nerve pain doesn't respond to medication, surgery or physical therapy. You can read more about them on Mayo Clinic Network News http://newsnetwork.mayoclinic.org/discussion/devices-help-reduce-severe-chronic-nerve-pain/
Sale a thanks for that information. I'm not there yet but nice to know just in case it gets really bad<br />
<br />
Thanks<br />
<br />
Mary so sorry that happened to you hope you I'll find something in these posts that will help you. I have already received some suggestions to try. Good luck<br />
<br />
Yes I am sure it is getting hard to walk since the neuropathy also makes legs unsteady and with fibromyalgia just adds to the problem. I wish you to find something in these posts to help you.<br />
<br />
-
Like -
Helpful -
Hug
1 ReactionI have been thinking of the essential oils since I heard of them on these<br />
post. I have tried about everything known to man but not this. Could<br />
you give me the ingredients and the amounts to use for the cream?<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
@selena54<br />
I pray every night thanking the Lord for his intervention in my medical care. I am on Medicare which pays for a lot of my care and meds. Another supplemental plan that helps pick up some of the remainder. He has seen me through so much these past few years and I am doing much better but I will never be my full self again. The damage is done but He gives me light and my life is spared. He is keeping me around, I figure, to complete his plan for me. I submit to Him all my troubles and He rewards me everyday. Medical advances are miracles but can't compare to His compassion and love for us. I wish you the best and thank you for opening up. I will pray for you Selena and ask Him to bring upon you all his marvelous Grace and set you free of what troubles you.<br />
-
Like -
Helpful -
Hug
4 Reactions