I've been on a Fentanyl patch for years for my peripheral neuropathy. It's the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can't survive without it.
Im glad it helps relieves your pain, I hate to know when someone goes through so much pain. An for the rest of you that is suffering. Ive live with pain most of my life, but not from the same illness, and I dont believe in the degree you suffer.I hope you want be afended if I tell you I will pray for you and the others who are suffering.I admire your stregth. Hang in there!
I would like to know more about your situation. You must go through a lot.<br />
I had a severe head trauma when I was young, now I have migraine headaches<br />
that causes me to loose conciseness, and I have symptoms of MS. My Dr.<br />
wants me to have an MRI done to rule out that I have MS. There are days I<br />
can walk. So when I have a good day I do as much as I can. Will keep you<br />
posted as to see how you feel, an in my prayers.<br />
<br />
salena<br />
I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />
There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.
What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.
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<br />
<br />
<br />
<br />
after having kemo I started have bad flashes My Dr tried everything. Then by accident my pain management Dr gave me cymbalta for fibromyalgia It didn't help my fibromyalgia but I noticed it took away my flashes. Maybe it would work for you <br />
<br />
<br />
I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />
Salena54 thank for your reply. I have both peripheral neuropathy And restless leg syndrome along sigh arthritis in my hip and spine. Night is the worst for rls I take requip and tramadol and. Natural sleeping Aid. Otherwise I would never sleep. I have a TENS machine for the neuropathy which I find to be quite affective though I still have pins and needles all the time in legs and hands and sometimes numbness. I used tha e migraines too so I feel for you they can be quite debilitating. Mine stopped zagged <br />
Menopause. Thank you for your concern and I hope you can get relief soon.<br />
<br />
I've been on a Fentanyl patch for years for my peripheral neuropathy. It's the only thing that works to keep the burning pins and needles feeling at bay. My strength on the patch is 100 mcg/hr. I replace it at the same time every three days. I really can't survive without it.
ThAnk you you have a lot of strength too. Let us know how hour ms test turns out I will be praying for you too and all the others who are in pain<br />
<br />
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Im glad it helps relieves your pain, I hate to know when someone goes through so much pain. An for the rest of you that is suffering. Ive live with pain most of my life, but not from the same illness, and I dont believe in the degree you suffer.I hope you want be afended if I tell you I will pray for you and the others who are suffering.I admire your stregth. Hang in there!
I would like to know more about your situation. You must go through a lot.<br />
I had a severe head trauma when I was young, now I have migraine headaches<br />
that causes me to loose conciseness, and I have symptoms of MS. My Dr.<br />
wants me to have an MRI done to rule out that I have MS. There are days I<br />
can walk. So when I have a good day I do as much as I can. Will keep you<br />
posted as to see how you feel, an in my prayers.<br />
<br />
salena<br />
I don't know what that is, is it a brand and where do I get it? Thanks for your response.<br />
<br />
I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />
-
Like -
Helpful -
Hug
1 Reaction<br />
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<br />
<br />
<br />
<br />
after having kemo I started have bad flashes My Dr tried everything. Then by accident my pain management Dr gave me cymbalta for fibromyalgia It didn't help my fibromyalgia but I noticed it took away my flashes. Maybe it would work for you <br />
<br />
<br />
Thank you for the suggestion. I'll Ask my doctor about it. Have a good night<br />
<br />
Dbentley I am so sorry for all you have been through and still no relief. I hope this procedure will help you.<br />
<br />
Salena54 thank for your reply. I have both peripheral neuropathy And restless leg syndrome along sigh arthritis in my hip and spine. Night is the worst for rls I take requip and tramadol and. Natural sleeping Aid. Otherwise I would never sleep. I have a TENS machine for the neuropathy which I find to be quite affective though I still have pins and needles all the time in legs and hands and sometimes numbness. I used tha e migraines too so I feel for you they can be quite debilitating. Mine stopped zagged <br />
Menopause. Thank you for your concern and I hope you can get relief soon.<br />
<br />
-
Like -
Helpful -
Hug
1 ReactionThAnk you you have a lot of strength too. Let us know how hour ms test turns out I will be praying for you too and all the others who are in pain<br />
<br />
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Like -
Helpful -
Hug
1 ReactionI'm glad you can get some sleep and have to use whatever works for you. Take care of yourself.<br />
<br />