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rabbit10 (@rabbit10)

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Nov 3 12:45pm | Replies (2200)

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@dbentley

I have been dealing with painful peripheral neuropathy for about 10 to 12
years. My main pain is in the bottoms of my feet but the neuropathy has
worked up to my knees. You talk about a frustrating experience. I
have tried every prescription, compounds, Anodyne therapy, Acupuncture and
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator
now. I was told when all else fails the last thing they can do is a Pain
Pump. Well I have had that for about 2 years and get a steady dose of
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery
on both ankles.

My average pain level is 5 to 6 every day. Now my only hope is that one
of the programs of the new Spinal Cord Stimulator will help. I am
seriously considering going to Mayo Clinic. Would be an expensive trip
from Texas.

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Replies to "I have been dealing with painful peripheral neuropathy for about 10 to 12 years. My main..."

Dbentley I am so sorry for all you have been through and still no relief. I hope this procedure will help you.

Thanks, according to the Doctors and the Techs, the new Stimulator is
supposed to be working wonders on some people. They told me last week
that most patients will get relief within the first programs, I have just
had my 11th and still nothing. But with this type stimulator there are
supposed to a lot of potential programs so maybe there is one out there for
me. The Doctor did say that they would consider it a success if I got 40%
relief. I would gladly accept that.

What is a pain pump? I dont think I have ever heard of one. I have a tens 3000 also, I bought it from my chiropractor.I go once a month for my headaces and neck, I have arthritis in the first, third and seventh vertebra caused by a head injury.

@salena54,
Pain pumps are implantable devices that can help when severe chronic nerve pain doesn't respond to medication, surgery or physical therapy. You can read more about them on Mayo Clinic Network News http://newsnetwork.mayoclinic.org/discussion/devices-help-reduce-severe-chronic-nerve-pain/

Sale a thanks for that information. I’m not there yet but nice to know just in case it gets really bad

I just had the trial BurstDR. This is the Spinal Cord Stimulator that is “silent.” I did notice some improvement with the stinging I have in my feet but it was hard to tell because I had it for seven days and had some good days and some bad days. I’m praying about what to do.

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