Has anyone been diagnosed with Central Sensitization?
Has anyone been diagnosed with Central Sensitization? If so I'd like to discuss.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Has anyone been diagnosed with Central Sensitization? If so I'd like to discuss.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Actually truegrit1213 is not speaking truth. Mayo's PRC treats CSS Centralized Sensitivization Syndrome by removing you from pain meds & Dr's. The first thing they teach you is they can't take away your pain or other Chronic desease. They educate you about about what is happening in your body, wean you off medications, they get you moving, exersicing, strengthing your body and help you live a functional life. When you follow their program you won't be cured (if you are curable you probably won't qualify to be in the PRC program), you may still be "diabled" but they will help YOU put Life back in your Life. I finished the program 3 years ago and although I still can't work I live better than before and without Dr's and Meds. I qualified for the program because of multiple uncontrolled pain and other issues that all the "ologist's" could not help me with. I was only disappointed there was not specific education on nutrition, food and diet and no follow up unless YOU go to expensive bimonthly after care lectures. My program had patients from a 16 year old high school student to a couple ladies well into thier70's in wheelchairs which they wouldn't get out of day 1 but by day 10 were walking to physical therapy class without canes!
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2 ReactionsHello @robert58 -- Welcome to Connect. Each of us is different when it comes to pain but I think you are correct. I have no medical training or background but have learned a person needs to be their own advocate and search for answers for what works for them. The more a person can educate themselves about their illness, the better questions they can ask their doctors and hopefully help them come up with a better treatment plan. With that said, there are a lot of people out there making money off of people in pain so that is another good reason to keep yourself informed.
For those not familiar with what you mentioned - Mayo's PRC treating Centralized Sensitization Syndrome, here are some links for more information:
Pain Rehabilitation Center
-- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center
Pain Rehabilitation Clinic (PRC) Testimonial - Mayo Clinic -- Patient Corey Plath explains about how chronic pain has impacted his life. Multiple concussions led to daily headaches then unimaginable pain. Corey found answers on how to handle this chronic pain when he visited Mayo Clinic's Pain Rehabilitation Clinic.
-- https://www.youtube.com/watch
John
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4 ReactionsI was recently given a diagnosis of Central sensitization syndrome....but I have told every doctor that pain is not my biggest problem. The neurologist that put thus in my chart did not mention it to me, only put ut in his notes. This makes no sense. I have very painful carpel tunnel in my arms, but I even told him that it is not constant. I dont get it.
@fortyisyoung I have a thought which might or might not apply to you. When I was about 40, I started having painful carpel tunnel in my arms. The docs I saw said nothing about other problems. But within a couple years I was having problems everywhere. joints, organs, glands, head, eyes, etc. Now, almost 50 years later I am being tested for various types of Amyloidosis Light Chain. I am pretty certain now that mine is Gelsolin, which is Systemic, primary, hereditary. It begins at conception and grows in your tissues and fluids until after you die. Most people, including doctors have never heard of it. Carpal Tunnel is one of the first signs that show up, and almost always in one's 5th generation. The testing is somewhat complicated, but not difficult. The better 1-AAA clinics and labs can do the testing for you, or if you have a local doc you trust, they can contact Mayo-AZ (Martha Grogan) or Stanford or Wherever, and ask what to do for the testing. My writeup of my history is available to anyone at https://bit.Ly/1w7j4j8, Amyloid and Old Karl. It is free, and in pdf so it can not be played with. I suggest you and your family and doc watch Martha Grogan's video on diagnosing Amyloidosis.
thank you
No but if u have or know anyone with Netflix it has a program called Afflicted about such problems.
Pretty sure I'm about to be diagnosed with CS, as Dr. Malavet mentioned it when I walked in on Monday and, so far, every other specialist has seemed to agree. There's a really good paper I found this morning, that is aimed more at doctors and practitioners, but has some good information about the symptoms of CS as well as what should be done about it with education and care. I'll post it once my "you're new and can't post links" timer has worn off. The basics seem to be that CS is a layer on top of fibromyalgia--you can have fibromyalgia without CS, and you can have CS triggered by something other than fibro (like severe arthritis.)
I was scheduled for the fibro two-day class next week before I even stepped onto Mayo Florida's campus. Not sure if I'll end up at the PRC, but if they can help me walk without this damned rollator again, I will take it!
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1 Reactionsorry to hear of your pain and apparent Dx. Hope things go well for you.
I've had dreadful fibro for three decades, read everything and try everything pharmacological and otherwise, very little help. I haven't run across your article and look forward to your posting.
GLTA.
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1 ReactionHello @relientkitten, Welcome to Connect. Thank you for sharing with us. You should be able to post the link right now. There is no new member timer on posting links, images, etc. You just have to type or paste the link in your post.
Can you try and post it when you get a chance?
John
Hi @relientkitten
You're right. New members can only post links after they have been an active member (3 days or 10 posts). We do this to protect the community from unwanted spammers. However, I reviewed the link you were attempting to post and it is very useful to this discussion. Thank you for finding it.
- Central Sensitization Syndrome and the Initial Evaluation of a Patient with Fibromyalgia: A Review by Dr. Kevin Fleming and Mary Volchek, RN (Mayo Clinic) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4422459/
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