I went through Mayo's Pain Rehab Clinic and was a little better for a short time. It was there that I learned of Central Sensitization. I've had progressive symptoms over the past 5 years. It's reached a point where the fatigue is so profound that I have trouble getting up the energy to do much of anything. And the pain.....some days I can control the pain.....most days I cannot. I take pain medication but am developing a tolerance. How do you cope?
The one thing I remember Dr Malovat saying to me, was "don't give in to the pain, and do something for your self and your family every day." It can be as simple as showering and putting on make up, or making my husbands lunch for work ( no matter how small). I know the pain and fatigue is so bad still some days, that I wish it would just kill me, but then I remember that there are easier days of pain if I can just get through this one day. I did develope a dependency for the meds. I came off ALL of them and went to all non narcotic meds and feel SO MUCH better. I take Tramadol for pain, with Lyrica, and an anti depressant, and Trazadone for sleep. I really do feel better than I did when I was first diagnosed.
Well, I sure can understand what you both are talking about pain as my fibro just gets worse despite acupuncture, Tramadol, etc. I like the idea of doing something for yourself or your family every day. A personal trainer friends says start the day with a win. The pain is pretty awful, though, and unless you have, you don't really understand it or the psychological effects to.
Yes, I was diagnosed with Central Sensitization this month at Mayo. Last year diagnosed with Burning Mouth syndrome and candida of the mouth and esophagus. It’s miserable and I fight taking gabapentin and search for any answers as to what makes with better, foods that could make it works, anything natural I can do to keep from taking gabapentin due to the side effects involved. Any suggestions?
Once again, asking if anyone has been diagnosed with burning mouth syndrome or central sensitization? Looking for any natural alternatives that have helped.
Once again, asking if anyone has been diagnosed with burning mouth syndrome or central sensitization? Looking for any natural alternatives that have helped.
Once again, asking if anyone has been diagnosed with burning mouth syndrome or central sensitization? Looking for any natural alternatives that have helped.
I have not been officially diagnosed with "central sensitization" but I
know I have it. I have fibromyalgia and with FM, something happens in the
central nervous system so that a person with this condition feels a lot of
pain from a stimuli wherast a "normal" person will feel little or not pain.
We are cursed!!
believe it or not my gastroenterologist diagnosed me with it but i think it is BS they say (look it up on Google) that your pain is a 3 but your brain is saying it is a 10....doesnt matter to me i need to deal with the pain...tried Gabepentin got so sick then they tried me on cymbalta got low blood pressure and i am trying to ween off it now and it is terrible...you know what do some research on the computer and then find yourself a good pain management doctor.......dont go on either of those two drugs unless you want to experiment....some people can take them some can't but my fibromyalgia is causing me the most grief.....
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The one thing I remember Dr Malovat saying to me, was "don't give in to the pain, and do something for your self and your family every day." It can be as simple as showering and putting on make up, or making my husbands lunch for work ( no matter how small). I know the pain and fatigue is so bad still some days, that I wish it would just kill me, but then I remember that there are easier days of pain if I can just get through this one day. I did develope a dependency for the meds. I came off ALL of them and went to all non narcotic meds and feel SO MUCH better. I take Tramadol for pain, with Lyrica, and an anti depressant, and Trazadone for sleep. I really do feel better than I did when I was first diagnosed.
Well, I sure can understand what you both are talking about pain as my fibro just gets worse despite acupuncture, Tramadol, etc. I like the idea of doing something for yourself or your family every day. A personal trainer friends says start the day with a win. The pain is pretty awful, though, and unless you have, you don't really understand it or the psychological effects to.
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3 ReactionsYes, I was diagnosed with Central Sensitization this month at Mayo. Last year diagnosed with Burning Mouth syndrome and candida of the mouth and esophagus. It’s miserable and I fight taking gabapentin and search for any answers as to what makes with better, foods that could make it works, anything natural I can do to keep from taking gabapentin due to the side effects involved. Any suggestions?
Have you found anything that helps?
Once again, asking if anyone has been diagnosed with burning mouth syndrome or central sensitization? Looking for any natural alternatives that have helped.
Hi @destinnana,
I'm still hopeful that @capefibro @rosie1302 @leh09 and others will jump in with their experiences with central sensitization. I'd also like to invite you to join the discussions about burning mouth syndrome here:
- burning mouth syndrome very severe https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-very-severe/
- burning mouth syndrome,or bms https://connect.mayoclinic.org/discussion/burning-mouth-syndromeor-bms/
And these discussions
- Candidiasis of esophagus https://connect.mayoclinic.org/discussion/candidiasis-of-esophagus
- Esophageal Thrush https://connect.mayoclinic.org/discussion/esophageal-thrush/
How is the central sensitization being managed for you?
Hi @destinnana
I invite you to take part in the active discussion about Burning Mouth Syndrome (BMS) here:
- burning mouth syndrome very severe https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-very-severe/
believe it or not my gastroenterologist diagnosed me with it but i think it is BS they say (look it up on Google) that your pain is a 3 but your brain is saying it is a 10....doesnt matter to me i need to deal with the pain...tried Gabepentin got so sick then they tried me on cymbalta got low blood pressure and i am trying to ween off it now and it is terrible...you know what do some research on the computer and then find yourself a good pain management doctor.......dont go on either of those two drugs unless you want to experiment....some people can take them some can't but my fibromyalgia is causing me the most grief.....
no........they are two different things...read up on it...
I have been diagnosed with this! Who wants to talk?