One door closes another one opens: As dementia changes evolve

Posted by justbill123 @justbill123, Aug 5, 2023

For the last year I have been taking my wife to work with me. She stayed in the office occupying herself with coloring books, computer games, rubiks cube, pencil and paper and whatever else she wanted. About a month ago she started getting really hyper, cannot sit still pacing all over the house compulsively gathering and piling everything and anything everywhere and anywhere. At the same time she went full time into an alternate reality. Communication is lost in translation. "Wait here" doesn't register, as soon as I say it she bolts on a wanderabout. She has always been sweet and cooperative, now she is more belligerent and argumentative. The more impaired she gets the more she resents the extra help I need to give her. Anyway all these symptoms ads up to no more bringing her to work. Friday was her last day. She would not stay in the office, kept wandering around the shop. It is a machine shop so huge safety hazard. Her closing scene was a toddler like outburst on the way out where I had restrain her arms and take her to the car. Bringing her to work door closes and the looking for a caregiver door opens. I am grieving the last year and put off this step in the process as long as possible. Looking for a caregiver that can get along with my wife sounds easy in theory but I am prepared for an adventure in execution.

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@justbill123 I am so sorry to hear about your wife. It must be so difficult for you, especially as you want to keep your job. Have you looked into options like senior day care? Or maybe respite care in a nursing home while you investigate all the possibilities.
https://americancaregiverassociation.org/#
This American CaregiverAssociation may have some good information.
You can check at your local senior centers and the Area Agency on Aging.
You will also need to make a list covering: This is just a few ideas
How many hours during the day you will need someone
What you might be expected to provide, ie meals for caregiver
What is cost per hour
Who can i get to brainstorm with me
You have a difficult journey ahead. I’m sure some of the members have been through this already.
With love and a big hug, Becky

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@justbill123, I notice you chose the word "grieving" the change. Every evolution represents a loss and I think it is helpful to recognize that loss and the accompanying emotion of sadness. As a title you chose "One door closes another one opens" recognizing that there is often little time to dwell on what was. You have to move towards the door that is open - the next stage and its needs.

I wanted to check in on how are you and your wife are doing. Have you had any luck in finding a solution for care for your wife while you're at work? How is she accepting change?

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Just Bill 123 - Wow, so sad that this change has occurred. I got awake this morning thinking and praying about what I need to do. More to the point, what I need to change. Yesterday was a circus here. DH was so loopy and it totally exhausted me. I ended up going to bed before the sun went down. He was already in one of his rare moods yesterday before the repairman came. Then it went into high gear. The repairman picked up pretty quickly that things weren't right and handled it very well. DH wanted to do all of the talking for everyone...and wanted to direct everything. It didn't stop even when the repairman left. For the remainder of the day, he was in his "I'm in charge" mode barking orders and being verbally abusive because I wasn't listening to him. I need a break.
We still do not have a diagnosis and it is taking forever. I've gone the supplements route to try and calm him down. Ashwagandha does work....when he takes it. I think he's been skipping it. What did you end up doing?

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@anotherday

Just Bill 123 - Wow, so sad that this change has occurred. I got awake this morning thinking and praying about what I need to do. More to the point, what I need to change. Yesterday was a circus here. DH was so loopy and it totally exhausted me. I ended up going to bed before the sun went down. He was already in one of his rare moods yesterday before the repairman came. Then it went into high gear. The repairman picked up pretty quickly that things weren't right and handled it very well. DH wanted to do all of the talking for everyone...and wanted to direct everything. It didn't stop even when the repairman left. For the remainder of the day, he was in his "I'm in charge" mode barking orders and being verbally abusive because I wasn't listening to him. I need a break.
We still do not have a diagnosis and it is taking forever. I've gone the supplements route to try and calm him down. Ashwagandha does work....when he takes it. I think he's been skipping it. What did you end up doing?

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So sorry you have these days. I also have the “take charge” days at my house. He blames me for his diagnosis of lewy body dementia. He is back to I have ldm they say. But I dont have any symptoms. His dr tried to explain to him you might perceive it that way. Other people might see it differently. He listens in dr office. But is back to same behaviors at home. Some days are so hard.

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