Discussions with family
Do any of you have thoughts around how to discuss the condition of your loved one with other family members? my brother called last night and he hasn't been "home" in years so doesn't understand her condition. He doesn't do well with death so i honestly think he wanted to come out after my mom passes but i told him it wasn't too much longer. she won't know him anyway but i think he is coming out. I am nervous forhim as this isn't easy to see and experience. rest of family said they wanted to wait as they don't want to remember her that way.
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
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Others have mentioned and I will too- having worked in Home Care and Hospice, it is not unusual at all for the loved one to pass at their own timing when their primary caregiver has left the room. I think partly they relax and are ready to reach for the hand reaching down and partly they want to spare their loved one more distress.
Two stories- a hospice nurse told me that the husband had left the room, the wife looked up at her and said, “I’m ready, you’ll stay with him?”, the nurse said, “Yes I will, I’ll stay with him”. She closed her eyes and passed. Next- a hospice nurse told me our patient had died on Mother’s Day, the patient had really been looking forward to the day, the whole family had planned to gather at her house and enjoy a big family get-together. The nurse told me the meal was over, the “girls” were in the kitchen cleaning up, the guys had taken the nephews and nieces outside to play, Mom was in her comfy living room chair. One daughter came in to see if Mom needed anything and she had passed.
Please temper expectations that you’ll be there at the final moment, your loved one may have something else in mind. Wishing you peace and comfort.
hpjuniperflat,
We live in Scottsdale, it would be great to have some extra support. What hospice group was it? What kind of support care did they offer and why were you discharged? Sorry for so many questions but I've never heard of that.
My mother passed away on July 4th at 2:08 am. I am so grateful for the advice, support, discussions, etc in this group. You will have no idea how much it meant to me. I will continue to be here and try to support those of you still in the midst of this process and pray for comfort, peace, strength and understanding.
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8 Reactionsfor everyone on her my mom passed away July 4th 2 am and I was able to be by her side even at the end. I am grateful for this site as i didn't feel so alone during caregiving for her during her hospice period. it build a great relationship with my father and honestly i felt close to my mom at the end. I regret nothing now and can move on past the caregiver stage until i am needed again. I pray for everyone who is giving of themselves and going through loving a person with dementia and wish all of you peace, comfort,patience and understanding. while my heart is heavy from missing my mom i know she is happier with Jesus.
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4 Reactions@buggirl55 I’m very sorry to hear that your mother passed away. I know how hard it has been for you. But, I also know that you did the very best that you could do, and your dad will always remember.
Your comments and advice here on Connect will help so many in the future. Please stay with us and pop in when you can. Becky
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2 ReactionsThank you. I plan to stay on and discuss and encourage everyone going through what I did 🙂
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2 ReactionsI am so sorry for your loss. You had a tough job. I think no one fully knows all that is involved as a caregiver.
I hope you feel good knowing what a tough job you had and loving your Mother.
My sympathy
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