Myasthenia Gravis with Type 2 Diabetes

Posted by ellen307 @ellen307, Jun 6, 2021

Have Myasthenia Gravis and Came down with type 2 diabetics with sugar count 1800
Has been a rocky road past month Any suggestions on diet etc.?

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I have Myasthenia Gravis and take three pyridostigmine tablets a day (each 60 mg.). I was diagnosed 2 1/2 years ago). I also have Type 2 diabetes and stage 3a kidney disease. I am scheduled for a colonoscopy this week. It will be done in a hospital with MAD anathesia and am anesthesiologist on hand just in case. However, I have been given SuTabs as my prep. I am apprehensive about taking it. Is it safe for me to take?

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I also have MG and take generic Mestinon. I had a colonoscopy a few months back, and the GI office prescribed SuTab as the prep. Since magnesium sulfate is one of the ingredients and magnesium can lead to muscle weakness in MG, I was reluctant to take it. The GI office tried to tell me that all the preps contained magnesium, so I was about ready to cancel my colonoscopy when they came up with a PEG prep that did not. I found it extremely frustrating that not only were my concerns not being taken seriously but I was actually given incorrect information. If I were you, I would ask about alternatives to SuTab. I have no idea whether the PEG prep is a problem for diabetics or kidney disease, but I agree with you about being apprehensive about taking SuTabs.

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@hopeful33250

Hello @ellen307

I can imagine that this must have felt like a "rocky road" as you said. MG and diabetes represent difficult dual diagnoses. A blood sugar of 1800 is very high.

Are you now under the care of an endocrinologist? If not, please get a referral to one. An endocrinologist is the best doctor to see for a diabetes problem, especially given your two diagnoses.

It would be a good idea to ask for a referral to a registered dietician as well. They can help you with planning an eating plan to keep your blood sugar better controlled.

If you care to share more, what type of symptoms were you having prior to knowing you had Type II diabetes? Are you now taking oral medications or insulin?

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Hello Hope all is well with you . I am doing better, recently had ultra sound of my stomach 'to see what are issues with digestion and bloating seems this happens alot, do ge stressed out
more than I should .
Lately began making pillow cases for neumours children to keep me busy and my hands.
Medication has been changed to 2 Metformin morning and 1 5pm and 1 trajenta. Around 8
take one Glipzide to help manage my glucose>.has helped.
My symptoms with MG were droppy eyes and weakness in my hands drop thing.
Thanks for keeping Myasthenia Gravis seperate good idea. Hng In there my favorite quote from Dale Armstrong book on hi strial of Myasthenia Gravis. good luck to all Might add Blood sugar of typoe 2 no fun to manage. Yogurt are excelent easy to digest. Rice cakes also good

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@ellen307

Hello Hope all is well with you . I am doing better, recently had ultra sound of my stomach 'to see what are issues with digestion and bloating seems this happens alot, do ge stressed out
more than I should .
Lately began making pillow cases for neumours children to keep me busy and my hands.
Medication has been changed to 2 Metformin morning and 1 5pm and 1 trajenta. Around 8
take one Glipzide to help manage my glucose>.has helped.
My symptoms with MG were droppy eyes and weakness in my hands drop thing.
Thanks for keeping Myasthenia Gravis seperate good idea. Hng In there my favorite quote from Dale Armstrong book on hi strial of Myasthenia Gravis. good luck to all Might add Blood sugar of typoe 2 no fun to manage. Yogurt are excelent easy to digest. Rice cakes also good

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Hello @ellen307

It is good to hear from you again. I'm glad that you are doing better and finding worthwhile activities to keep you engaged. I take it that the change in your medication has also helped you with blood sugar control.

Stress control is important for all of us with chronic health issues. I'm glad that you are working on that as well. It sounds like the book about Dale Armstrong has been inspiring. I'll have to look for that!

Will you post again as you have questions and thoughts?

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@hopeful33250

Hello @ellen307

It is good to hear from you again. I'm glad that you are doing better and finding worthwhile activities to keep you engaged. I take it that the change in your medication has also helped you with blood sugar control.

Stress control is important for all of us with chronic health issues. I'm glad that you are working on that as well. It sounds like the book about Dale Armstrong has been inspiring. I'll have to look for that!

Will you post again as you have questions and thoughts?

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Hello

If you can locate this book worth while reading Hang In There was Dale Armstrong
who has Myasthenia Gravis his trials with MG
I lent mine and never got it back LOL

Great to hear from you Keep up the good work
ellen307

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@pkon

I’ve had myasthenia Gravis for about 30 yrs and was diagnosed with type 2 diabetes a year ago. Can anyone share the pros and cons in there treatment if both. I was have IVIGs for about 10 yrs and just stopped last August due to insurance problems. My MG is doing pretty good except for Ptosis with my eyes. Ian not taking anything right now for the MG (waiting on insurance approval for new drops that came out). I am however taking glipizide for the diabetes, having a hard time keeping my numbers down, even with watching my carbs and sugar. Would love some input from others.

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I am having good results with both MG symptoms and Type 2 diabetes since I started adding berberine to my daily diet

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@chri

I am having good results with both MG symptoms and Type 2 diabetes since I started adding berberine to my daily diet

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@chri. Can I ask what berberine is and where did you learn of it?

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@becsbuddy

@chri. Can I ask what berberine is and where did you learn of it?

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Berberine is a supplement that has been popular long ago and is getting some attention these days in researches for its anti-inflamatory and other benefits. You can find a lot of information on the internet.

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