1. < Blood Cancers & Disorders

Chronic Myeloid Leukemia (CML)

Posted by neoandgreen @neoandgreen, Sep 2, 2017

My brother aged-21 is suffering from chronic myeloid leukemia and doctors said that he has less than a week .what should i do? I dont know how to react

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billybee | @billybee | Jul 29, 2023
In reply to @craighatescancer "Diagnosed in January of 2019 with CML and have been taking Gleevec (Imatinib) to help keep..." + (show)
@craighatescancer

Diagnosed in January of 2019 with CML and have been taking Gleevec (Imatinib) to help keep things in check. Some side effects (but manageable) from the medication but it seems to be helping as my blood work results have improved and a recent bone biopsy showed improvement as well. For now I’m having blood work done every 2 months and a Dr consult every 4 months.

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What is your current bcr reading and how often are you tested. I was diagnosed in December 2022 with a reading of 42% and I have been on imatinib.My current reading
is 0.3% and my doctor indicated that I would need to go on stronger meds to get a deeper response.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 10, 2023
In reply to @billybee "What is your current bcr reading and how often are you tested. I was diagnosed in..." + (show)
@billybee

What is your current bcr reading and how often are you tested. I was diagnosed in December 2022 with a reading of 42% and I have been on imatinib.My current reading
is 0.3% and my doctor indicated that I would need to go on stronger meds to get a deeper response.

Jump to this post

Hey @billybee (love the username), I'm not sure @craighatescancer is active on the forum. I want to get you connect with other CML-ers like @anglis @living @annareenu @suzie71 @quita123 @pam62.

What medications are you on now? Care to share more about your CML journey thus far?

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1 reply
suzie71 | @suzie71 | Aug 10, 2023
In reply to @colleenyoung "Hey @billybee (love the username), I'm not sure @craighatescancer is active on the forum. I want..." + (show)
@colleenyoung

Hey @billybee (love the username), I'm not sure @craighatescancer is active on the forum. I want to get you connect with other CML-ers like @anglis @living @annareenu @suzie71 @quita123 @pam62.

What medications are you on now? Care to share more about your CML journey thus far?

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I just saw this post, and I have posted my journey, but for those who have not seen it yet let me just say that CML is treatable. Diagnosed in 1998, and just went for my blood test yesterday as I have been undetected since 2022, and off all treatment since 2018. I go every 6 months for my PCR test to keep an eye on my CML. Just praying that it is all good, and if all is still good when I do my Feb test it will be 6 years of treatment free remission with no BMT. I did it with Gleevec.

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