Chronic Myeloid Leukemia (CML)

@bettymesler
I was diagnosed with CML July 3, 2025. White blood cells and platelets were very elevated, along with almost every other test. I was initially started on hydroxyurea which decreased white count and platelets. After that I was switched to Danziten and achieved remission within the first month. I have remained in remission and am scheduled for bloodwork this week to recheck status.

Hi i was diagnosed in 2011 September. When i was 29, today i am running 44. All this time i was and still on Imatinib 800 mg. I was diagnosed in Blast crisis, but i responded well to drug. And i attained remission after 4 to 5 years . However since last two year my Values have started increasing. I get my blood work , BCR - AbL in every six months, the last value in Dec 25 was 0.024. Which started from 0 value to first one was 0.001. Now in a weeks time ill have to go for follow up, let see the values this time.
Anyone here with such kind of scenario?

I was diagnosed with a rare form of CML in November of 2025. I have the P190 oncogene wondering if anyone else has had this diagnosis? Everything I have read on the internet is disconcerting and makes me depressed about my limited future. I would really like to know if anyone else has been affected by this form of CML?

I was diagnosed in November 2025 with a rare form of CML. I have the P190 oncogene wondering if I can find another member who also has this form of CML?

@ashish12, how did the follow-up appointment go? What did you find out?