I'll agree with predictable 100%...after much research. I was taken off Actonel 3 yrs ago due to widespread tormenting rashes. Now Drs insist I needed to start up again since I'm high risk for fractures now. So it's been 6 mos, and constant rash, scalp itch, worsened hip and back pain. Along with those pleasant symptoms I started getting sweats 24/7. ..im going off, and doing the natural route. Taking good supplements, calcium citrate, and making a home made bone marrow broth..
To name a few. Trying to walk 30 mins, but it's causing me more pain. I'll continue helping myself, and wait for this med to flush out.

Hello @dazlin

I see that you are dealing with low bone loss and I was wondering if you are seeing an endocrinologist?

A lot of us who have low bone density also have problems with our parathyroid (different than the thyroid). A special blood test will check the parathyroid hormone levels and can help your doctor understand the loss of bone density. If this hasn't been checked yet, I would encourage you to talk with your doctor about that. Also, have your blood calcium levels been checked?

Keep posting and let us know how you are doing.

Teresa

Hi teresa, thank you for your reply...yes I see an endo, and she has taken bloodwork. Im not sure if the parathyroid was checked. I don't know the medical term on bloodwork or I would look at my blood test results. Calcium and D, and other tests have been done. Also 24 hr urine to see if I'm spilling calcium. All looked good. I have mgus, which may be a contributor. Im surprised I'm this far along in osteoporosis because I've always worked out, very active, and included calcium. They toss it off as age related, and the fact that I'm petite, and on the thin side...??? I will let Drs know I needed to stop Actonel, and if the sweats continue, I assume they'll do another bloodwork. Trying to wait till my next appt in june..with hopes symptoms will subside by then, being off the med.

Does anyone think progesterone creams help improve osteoporosis? I'm just not sure if it's doing anything...but I'm including a helpful diet, and activity. I'm thinking..to quit the cream. I started this in January, when I took myself off Actonel due to side effects. Please share your thoughts....most internet sites say it's helpful, and some say, it's not.

I have been on prolia injections for 2 yrs with little improvement. My last injection caused a reaction of severe hip pain an severe cramping in my calves. So I think I will discontinue. Don't know what else to do? Any suggestions?

Did you see a physician at Mayo Clinic?

How do I find a physician that can look into this for me? I have osteoporosis and am -4.5 at the hip and -2.5 at the spine. I have cardiac calcification and I am convinced that it's from years of taking too much calcium but it could be related to other issues as I have a number of auto-immune disease that the doctors say are idiopathic... Hashimoto's Disease, Gastroparesis, Membranous Glumerlonephritis, and osteoporosis.

I have had one Prolia injection. I had terrible back pain and increased constipation. However my doctor dismisses this is unrelated to Prolia