Will feel great. . . short lived. . . poof it's gone!

@summerof42. I am soooo sorry you have gone through so many attempts with those results. Myself and Im sure most others here have similar stories and just want to further suggest due to my experiences running medical practices and dealing with beyond frustrating arduous processes for two adult disabled children. Since Mayo Clinic did sound hopeful, most healthcare systems have patient advocates who work with social workers to help make special arrangements that your situation needs. I have found being very respectful but forthright from the first call to patient services informing them in very few words your severe health and challenges with no family/transportation/caregiver/travel companion to get there, that allows them to reach out to sources outside the normal box and at first sign of push back kindly ask what dept helps the disabled there. It will probably take several follow up calls due to the number of us now challenging abilities of healthcare systems so dont give up and pace yourself as know just typing here can really use up days energy/bring on symptoms next couple of days🙃 There are also private social workers that can be hired however I know most of us going through this have lost or limited income to afford that☹️ We will find a way to help you!🌈

I feel so bad for you, but hope in time this will be behind you. Just a thought, you might want to change the dr. you see for therapy.
I guess anything is possible, but by now I would think you should be feeling better than you are. At one time I needed therapy and was on meds dr. ordered. I took a while for them to kick-in. I did feel much better after an 18 month Rx therapy.
Good luck to you, get better quickly. You have the "community" with you.

@tchart - Thank you kindly. Throughout the past 3 yrs I have switched Doctors for therapy with no luck in outcomes. They just quickly go through different meds and there's no support, they rush thru the appt as I try to talk and I'm merely a number. . . next! I remember the first Doctor I saw to discuss meds for anxiety/depression took 8 months to get in! When I tried other Doctors and locations I was told the same and the wait list is long.

I know that's the reason I'm doing so poorly and in such a state of terrible health with unbearable symptoms and just want to "jump out of my skin," for lack of a better description. Every morning I wake to feeling much worse - like now, it's taking all my strength and will power just to type this note. What's so scary right now is the groin hernia I developed which I believe happened because of the extreme weight loss being now down to 89 lbs and now fat to hold in my intestines.

Hugs & Love to all.

Excellent point. You know, I’ll only speak for myself… but I could get sooooo much from hearing from mom’s of adult children with disabilities! You are in a different and superior plane than I am. Thank you for your suggestions. I’ve been very concerned abt Summer of 42. I wish I lived closer and was in any shape to help…( I also wish for world peace and believe in the tooth fairy… )( that was me being facetious)

I wish I had a time machine, go to China and make sure Covid does not escape the lab, or better yet, prevent it from getting created all together! It's insane we anyone felt the need to create such a horrible virus.

Hugs and Love to all. Let's pray they come up with a cure and treatment soon. Power in prayers.

Hi @car0. Thank you so much for bringing a grin to my face and I wish the same for our world. Hope others on the site have seen our posts and summerof42 will allow us to help in any way we can as we’re all here for each other🌈

For anyone reading this post, let's all hold hands (virtually) and take a moment to ask our Dear Lord Jesus to hear our prayers and provide the knowledge and power to the Doctors, Scientists, Biologists and all those working on this virus to help us and give us the cure we need to take away our pain and heal us.

POWER IN PRAYERS.

How can they see you as do emaciated at under a hundred pounds and say you're fine and send you home ? Something doesn't add up. Feeding tube, feeding tube, feeding tube before it's too late.

Summer of — just checking in on you. Please hang in there….

Thank you so much for your kindness. I'm hanging in there as best as I can. I even called the ER and they said, per my last two visits there wasn't really anything different they would do and more than likely release me AGAIN since my tests turned out normal and primary indicates "anxiety" this is causing the problem. Idiot.
I told them I know have lymph nodes in the neck, extreme pain in right flank area an stomach, hernia and some lab abnormalities (as listed below) and they said I should reach out to the Dr. who ordered them to discuss. Trust me, at these hospitals in my town they don't care, especially if your over 65. Even the hospital I went to 2 yrs ago, which was the Northwestern University Hospital, they released me next day.

I really prefer a integrative/holistic MD that treats symptoms and cares, especially when it comes to LT Covid. Trust me, I would find the strength within me to travel and get the help I need, but where? Even when I saw the internal MD at Mayo it was a big waste of time and $$$$$. He gave me an Rx for Guafancine, said, "why not try it, it'd good stuff." When I reached out to him 15 times pleading for him to call me back because it lowers blood pressure and mine is already low at my weight, and he refuses to call me back - nurses say he's too busy.

Free Kappa 19.4 mg/L *3.3 - 19.4 mg/L)
Free Lambda 11.1 mg/L (5.7 - 26.3 mg
Kappa/Lambda Ratio 1.75 (0.26 - 1.65 H)
Iron 137 ug/dL (37 - 145 ug/dL) - this is good
Transferrin 386 mg/dL (189 - 340 mg/dL H(
Iron binding capacity, calculated 540 ug/dL {250 - 450 ug/dL H)
Mean Corpuscular Volume 102.2 fL (80.0 - 100.0 fL H)
Mean Platelet Volume 11.9 fL (7.0 - 11.0 fL H)
Vitamin B12 243 pg/mL (180 - 914 pg/mL) - definitely on low end of normal.