Thank you for the excellent information @danab 😊
I appreciate knowing all about your experiences. You are so helpful! I will definitely ask my doctor at my next visit.
Hi @jaxpilot 😊
Wow, it sounds like you are getting excellent results! When I tried the sonic toothbrush it seemed to take forever. I would hold the toothbrush for seven seconds and then move it along to the next spot. But to cover all my teeth on all three sides seemed to take forever. Approximately how long does it take you with Waterpik version?
@jaxpilot 😊
You are awesome! You have officially inspired me to make this purchase. (I appreciate all the hand holding and the brands you use)
Your dental hygienist must be so proud of you... and you are enjoying trouble free gums.
Thank you again @jaxpilot
@jaxpilot 😊
Thanks for the added info regarding Evero! Why did they switch your Cellcept to Evero? Did you have a recurring infection that they wanted to nip in the bud?
I think @caretakermom husband had recurring CMV that was solved with that med change.
@jaxpilot
Wonderful story of Mayo jumping in and making the needed correction! What was your original creatinine and what's your number now?
I agree that Mayo is excellent managing the immune suppression meds to achieve the sweet spot! Good news 😊
@jaxpilot 😊
It sounds like everything is under control now. And my favorite part of the story is how well you feel! It's true that when you feel so good, you start to forget that you are transplant. It's easy to forget to drink enough, etc. I am a three year post kidney transplant patient. When did you have your transplant?
Hope everything is going well for you. I asked UCLA about taking antibiotics prior to dental work and the nephrologist says it's a controversial subject. UCLA does NOT recommend it because the antibiotics could interact with your immunosuppressants that you're currently taking and could potentially cause other issues. Mayo AZ doesn't recommend it either but leaves it to the dentist to make final decision.
Our local neph recommends it only when you're getting dental work done, but not necessary for teeth cleaning.
@jaxpilot
Are you also on Tacrolimus? What does your team want your trough levels at? Mayo Az wants it around 3-5 for Tac and 4-7 for Everolimus. Husband's CMV has not recurred since Mayo Az switched him from Myfortic to Everolimus.
Hope everything is going well for you. I asked UCLA about taking antibiotics prior to dental work and the nephrologist says it's a controversial subject. UCLA does NOT recommend it because the antibiotics could interact with your immunosuppressants that you're currently taking and could potentially cause other issues. Mayo AZ doesn't recommend it either but leaves it to the dentist to make final decision.
Our local neph recommends it only when you're getting dental work done, but not necessary for teeth cleaning.
Hi @caretakermom 😊
It's great to hear from you! I have been having a lot of worry. I was diagnosed with squamous cell carcinoma and had surgery by a local doctor. The stiches became inflamed looking so the nurse called in a prescription for Doxycycline. (the doctor went out of town immediately after the surgery). I took the Doxycycline which totally destroyed my stomach and gave me awful diarrhea. Yesterday, I had a dental cleaning. I was told that for dental cleaning there was no amoxicillin needed. Unfortunately, my hygienist was extremely aggressive with lots of blood. I regretted my decision to not premedicate.
Last night I had the chills (no temp) and nausea. I contemplated the idea of going to the ER to test for sepsis. I waited until this morning, and now I am blowing my nose with what I am guessing is a cold. Very stressful. When these decisions have controversy, it's difficult to know what to do. Too many antibiotics are not good. Not enough is not good either.
I am so happy you joined in the conversation. Your comment that it's "controversial" is right on and helps me identify how I am feeling!
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Thank you for the excellent information @danab 😊
I appreciate knowing all about your experiences. You are so helpful! I will definitely ask my doctor at my next visit.
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Helpful -
Hug
1 ReactionHi @jaxpilot 😊
Wow, it sounds like you are getting excellent results! When I tried the sonic toothbrush it seemed to take forever. I would hold the toothbrush for seven seconds and then move it along to the next spot. But to cover all my teeth on all three sides seemed to take forever. Approximately how long does it take you with Waterpik version?
@jaxpilot 😊
You are awesome! You have officially inspired me to make this purchase. (I appreciate all the hand holding and the brands you use)
Your dental hygienist must be so proud of you... and you are enjoying trouble free gums.
Thank you again @jaxpilot
@jaxpilot 😊
Thanks for the added info regarding Evero! Why did they switch your Cellcept to Evero? Did you have a recurring infection that they wanted to nip in the bud?
I think @caretakermom husband had recurring CMV that was solved with that med change.
-
Like -
Helpful -
Hug
1 Reaction@jaxpilot
Wonderful story of Mayo jumping in and making the needed correction! What was your original creatinine and what's your number now?
I agree that Mayo is excellent managing the immune suppression meds to achieve the sweet spot! Good news 😊
@jaxpilot 😊
It sounds like everything is under control now. And my favorite part of the story is how well you feel! It's true that when you feel so good, you start to forget that you are transplant. It's easy to forget to drink enough, etc. I am a three year post kidney transplant patient. When did you have your transplant?
@jaxpilot
You are the bearer of all wonderful news....I am happy you joined the conversation. Lots of helpful, valuable and uplifting topics! 😊
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1 ReactionHi @hello1234
Hope everything is going well for you. I asked UCLA about taking antibiotics prior to dental work and the nephrologist says it's a controversial subject. UCLA does NOT recommend it because the antibiotics could interact with your immunosuppressants that you're currently taking and could potentially cause other issues. Mayo AZ doesn't recommend it either but leaves it to the dentist to make final decision.
Our local neph recommends it only when you're getting dental work done, but not necessary for teeth cleaning.
-
Like -
Helpful -
Hug
2 Reactions@jaxpilot
Are you also on Tacrolimus? What does your team want your trough levels at? Mayo Az wants it around 3-5 for Tac and 4-7 for Everolimus. Husband's CMV has not recurred since Mayo Az switched him from Myfortic to Everolimus.
-
Like -
Helpful -
Hug
1 ReactionHi @caretakermom 😊
It's great to hear from you! I have been having a lot of worry. I was diagnosed with squamous cell carcinoma and had surgery by a local doctor. The stiches became inflamed looking so the nurse called in a prescription for Doxycycline. (the doctor went out of town immediately after the surgery). I took the Doxycycline which totally destroyed my stomach and gave me awful diarrhea. Yesterday, I had a dental cleaning. I was told that for dental cleaning there was no amoxicillin needed. Unfortunately, my hygienist was extremely aggressive with lots of blood. I regretted my decision to not premedicate.
Last night I had the chills (no temp) and nausea. I contemplated the idea of going to the ER to test for sepsis. I waited until this morning, and now I am blowing my nose with what I am guessing is a cold. Very stressful. When these decisions have controversy, it's difficult to know what to do. Too many antibiotics are not good. Not enough is not good either.
I am so happy you joined in the conversation. Your comment that it's "controversial" is right on and helps me identify how I am feeling!
-
Like -
Helpful -
Hug
1 Reaction