Epstein-Barr Treatment for Long Covid?

Share the treatment. We are all ready to try anything, so if your feeling better I'm willing to see what is working. Thank you for sharing,

This fine new disease we get to experience is awful. I've had this with the same symptoms as you for 6 months now. I dread the idea that this is our new normal. Does it tease you with a few really good feeling day's, then pow it starts all over. I try to keep busy thru the day and not focus on it. Some day's that doesn't work. Some day's you stay in bed and don't move. I find a little hit of weed helps a lot. I don't smoke but I have tried this and it helps me thru the depression and I can ignore the brain fog thru the day. Good luck. I'll enjoy this journey with you.

I am in pembroke pines. I have had ebv now for 5-6 weeks i was hospitalized 9 days. DEAD TIRED AND CANT GET ANYthing done. WHAT SHould i say to my dr to prescribe me a good drug like adderall or valacyclovir. MY QUALITY of life is a F-
i APPRECIATE YOUR ADVISE

6 weeks with ebv. I AM very tired and cant get any energy going. SOMETIMES VERY DIZZY and I need help. ALSO NEED to boost my hemoglobin fast, ANY ADVICE?!

i have gotten rejected multiple times for covid aliments at mayo clinic. They always indicate to go to my primary care dr who knows nothing and dismisses symptoms. I have lost a lot of muscle mass and have extra skin on muscles. Liver & spleen inflammed and bloating is unreal. All my clothes are big on my but my at my waist. Dr tells me to loose weight, even though my mre liver indicates NASH. I dont feel like drs really care anymore

I am in the same fix! Bad mono at 17yrs old. I was just tested for Epstein Barr and it was negative but showed I still have virus in my body!! At this point I have just endured my worst crash ever and the body pain is unreal!!! And I have a great team working hard to give some relief! THC
gummies at night help me bbut are quite expensive . I am now just embracing the beast and when my body says go I go and when it says not I go to bed. I have unwavering hope that I will heal some day. I am going through all kinds of testing because of anemia. This whole thing is pretty scary 😦

I care. So please don’t believe that. How can I help.. I need more bio feed back to help you help yourself.

I recommend you buy a whoop..
Get a free WHOOP 4.0 and one month free when you join with my link: https://join.whoop.com/2486A4

Where do you live?

Your metabolic system could be malfunctioning.

The information and treatment is slow in development. Aviv Clinics in Florida has a protocol.

If you are on social media you can find my content and information at jdaniellegillan.

#covidrecoverymama

I have a whoop watch my heart rate is low below 60 when im sitting watching tv. I dont recover from physical activity. I have small fiber neuropathy and a dr i saw for consultation told me that im not getting enough cerebal blood flow and that a virus is causing my symptoms and possible infection and nobody helping figure out cause of SFN. All standard testing for causes of SFN have been negative. I need help i feel weak

julesmango that is great that is helping you. Due respect, do your research. Dr. Martin Lerner pioneered this treatment 20 years ago in his clinic and helped hundreds of patients with me/cfs and reactivated EBV get their lives back. Just kind of a low dose that you're on. Standard would be 1,000 mg bid. And it takes at generally 3-6 months before you gradually start seeing great effects. I'm a retired nurse and it saved my life as I knew it before Me/CFS Via reactivated EBV and long covid. Search on his name and me/cfs. I can't really tell you my doctor's name on here but I can tell you to do that research and also add the words innate immune system. Also there is new research now if you search on Long covid post viral fatigue CFS and valacyclovir. LOL and they're acting like they invented the therapy. Btw, the success rate is pretty high if properly diagnosed. This is just my opinion with my experience yrmv. The best of luck to you. I almost never to post like this because nobody ever really listens for the most part LOL.

The Bateman Horne clinic in Utah is doing a study with valacyclovir
It is a randomized trial so you may get the valacyclovir and celecoxib or placebo. Virios is the pharma company. Valacyclovir is usually used for herpes but there is some suggestions it will help LC due to viral reactivation. . This summer I had a fever blister on my lip and I was prescribed a one day high dose valacyclovir. It resolved the fever blister and my Long Covid symptoms completely resolved but started back 2 weeks later. My fatigue, dysautonomia, breathlessness etc were relieved but then returned. I think if I could have taken a longer duration it may have helped
This study will be 3 + months of therapy. Their pilot study showed success but you have to be under 65 yrs.
Is it possible for the person who mentioned the functional neurologist in Iowa to send me the doctors name and the functional dietician.
I agree, I am told many times to ask my primary care to prescribe me a therapy or med rather than the LC doctor but my primary refers me back to the LC doctor and says he won’t prescribe anything for LC since he doesn’t know that literature. The LC nurse told me to tell my primary care doctor that he needs to read the literature and that was not a realistic nor helpful suggestion or advice