I was diagnosed in March 2011 with nh lymphoma in my right lund. Removed lower section. Following year 1 small spot on right lung , radiation , now 6 years clean and now in stomach. Did Rituxan for a month last year and have been doing Chemo the last 4 months. My problem is that i started having itchy bumps showing up each month it got worse. This month we stopped for 2 weeks but they are still appearing. Around my eyes really bad. Can't figure out if Bendeka or neulasta.I have 2 more rounds to go but I can't live with this constant itching and bumps all over. Have steroid creams but they just seem to keep coming back. Thank you
Colleen Young, Connect Director | @colleenyoung | Jun 22, 2018
Many of you sharing about lymphoma in the Blood Cancers group have already met @travelgirl. She is featured on this week's member spotlight. Click the link and get to know a little more about Jackie @travelgirl
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
For the nausea I took Zofran and Phenergen and ate smaller, frequent, small portions. For the exhaustion I have never gone back to my pre NHF level of activity. I have gotten used to doing less. To be honest, I still take the anti nausea meds because I can't stand to eat otherwise. But I have had intractable nausea since early 2013. When I got diagnosed with the NHF tumor in the small intestine in 2017, and they removed it and did R-CHOP, we all thought that the nausea would disappear. No such luck. But I feel fortunate to not be worse, so onward and upward.
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Are you by any chance talking about B-PLL? probably not. I started a discussion on that,but no one else seems to be connected with such a rare cancer.It's nice to be unique for some things,but not cancer. No research on how to treat ,and what to expect.
I have Non Hodgkin Follicular Lymphoma, I was diagnosed on 1/5. My Lymphoma was found two weeks after finding my cecum cancer. When my surgeon ordered a CT scan, after my polyp came back cancerous. sighing.. double trouble. Cecum cancer was a stage 1 had surgery to remove that. The Lymphoma is on a watch and wait approach.. since I have no symptoms other than swollen lymph nodes near and around my aorta. Not sure if you heard of this book? I purchased it to and it has lots of helpful information. "Living with Lymphoma: A Patient's Guide" by Elizabeth M. Adler. I wish you the best.
Hi, I'm looking for ideas. I have follicular nhl. Had chemo . Iwas doing well. I can tell it's coming back.. last time I was full both above and below my diaphram. What is going now is causing a lot of trapped intestinal gas and has slowed down my bowels. I'm taking miralax which helps with my bowels. Not the trapped gas. I've tired extra strength gasex. Helps a little. Does anyone have suggestions?
Connect
Connect
Like
Helpful
Hug
That's awesome! I pray you'll get the same news next year. In the meantime, enjoy life!
congratulations! Enjoy. gp
I was diagnosed in March 2011 with nh lymphoma in my right lund. Removed lower section. Following year 1 small spot on right lung , radiation , now 6 years clean and now in stomach. Did Rituxan for a month last year and have been doing Chemo the last 4 months. My problem is that i started having itchy bumps showing up each month it got worse. This month we stopped for 2 weeks but they are still appearing. Around my eyes really bad. Can't figure out if Bendeka or neulasta.I have 2 more rounds to go but I can't live with this constant itching and bumps all over. Have steroid creams but they just seem to keep coming back. Thank you
Many of you sharing about lymphoma in the Blood Cancers group have already met @travelgirl. She is featured on this week's member spotlight. Click the link and get to know a little more about Jackie @travelgirl
– Where there’s a Will there's a Way: Meet @travelgirl https://connect.mayoclinic.org/newsfeed-post/where-theres-a-will-theres-a-way-meet-travelgirl/
See more Member Spotlights https://connect.mayoclinic.org/page/about-connect/tab/newsfeed/
-
Like -
Helpful -
Hug
1 ReactionHow is she now please?
-
Like -
Helpful -
Hug
1 ReactionHello dear..how did u cope with thw side effects??...after ur chemo..wat else did u do?
Same here
For the nausea I took Zofran and Phenergen and ate smaller, frequent, small portions. For the exhaustion I have never gone back to my pre NHF level of activity. I have gotten used to doing less. To be honest, I still take the anti nausea meds because I can't stand to eat otherwise. But I have had intractable nausea since early 2013. When I got diagnosed with the NHF tumor in the small intestine in 2017, and they removed it and did R-CHOP, we all thought that the nausea would disappear. No such luck. But I feel fortunate to not be worse, so onward and upward.
-
Like -
Helpful -
Hug
1 ReactionAre you by any chance talking about B-PLL? probably not. I started a discussion on that,but no one else seems to be connected with such a rare cancer.It's nice to be unique for some things,but not cancer. No research on how to treat ,and what to expect.
Hi, I'm looking for ideas. I have follicular nhl. Had chemo . Iwas doing well. I can tell it's coming back.. last time I was full both above and below my diaphram. What is going now is causing a lot of trapped intestinal gas and has slowed down my bowels. I'm taking miralax which helps with my bowels. Not the trapped gas. I've tired extra strength gasex. Helps a little. Does anyone have suggestions?
-
Like -
Helpful -
Hug
2 Reactions