Remedies for Joint Discomfort/Pain on AI ( Anastrozole)

Posted by anjalima @anjalima, Jun 22, 2023

Anyone find relief with supplemental remedies such as Collagen or Glucosamine or Cherry Juice?

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@mossa

Loratadine (generic Claritin) has helped discomfort at night. I still have terrible stiffness in hips, knees and ankles during day but that improves with walking. Tart cherry juice did not help (but I grew to enjoy it added to diet soda lol)

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I really don’t know how an antihistamine, claryiton, can help my back? I’ve heard of people using this before…xx

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@timely

Hi rosa1935:

I did not know that you are in England.

We all have the assertive gene in that we all know that is the only way to get results, no matter where you are.

You have that and determination and have made a lot of progress with the medical system.
🌺🌺🌺🌺🌺
Wishing you smooth sailing and good news for the future.

Best Wishes,
🌺🌺🌺🌺🌺

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Thank you. I’m a fighter ❤️

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@rosa1935

Thank you and I will take a note if that med, but I don’t have a prob with my back, and my back is what I’m concentrating on, when I’m sitting down it in bed at night. My problem is I can’t walk fir long distance, can’t stand for more than a couple mins. ❤️

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With my back at night in bed!! ❤️

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@timely

Hi rosa1935:

I did not know that you are in England.

We all have the assertive gene in that we all know that is the only way to get results, no matter where you are.

You have that and determination and have made a lot of progress with the medical system.
🌺🌺🌺🌺🌺
Wishing you smooth sailing and good news for the future.

Best Wishes,
🌺🌺🌺🌺🌺

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Thank you. I’m Irish, by the way, a tough nut.🤣 married an English man 11 years ago so live here in Scarborough. I was married before to my sons dad, but he died of cancer in 1988. Long story short, met mike in 2003, married him
In 2012, and with due respect to him the words in the wedding ceremony ‘in sickness and in health’those words really came to the fore. Love him dearly. Xx

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I don’t understand how it helps,either. My oncologist prescribed it when I had extreme pain following neulasta and it worked then, so I tried it after reading how others got relief with joint pain from anastrozole. I was not able to sleep r night due to joint pain until I started Claritin. I hope you are able to find something that helps you.

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@mglinkhart

I have been using Non drowsy Claritin for bone pain and it works well. I take Anastrozole this time. My first round of cancer I was on exemestaine snd had horrible bone pain but didn’t know about the Claritin then.

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I was given Anatrozole for just a couple of weeks, and my oncologist told me that exemestane caused less joint pain. Literally, days after being on exemestane, I couldn't even stand my right foot, hip, carpel tunnel etc. crippled me. My oncologist took me off after one month and switched me to Tamoxifen (which is not what I need) for the next year or two and then I will go back to an AI. He said that Tamoxifen is gentler in suppressing estrogen and will give me a chance to not suffer as much. I too am very concerned as I just turned 69 and had planned on traveling abroad during the next five years. There was no quality of life on exemestane.
I was so surprised to see that, in fact, the exemestane was worse for you than Anastrozole.

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The exemestaine was awful for me. The Anastrozole is not perfect but tolerable.

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It’s “tolerable “ for me as well… it was more tolerable earlier on. Walking A LOT really helps as well as hand stretches. Hoping I get approval for turmeric.

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@anjalima

It’s “tolerable “ for me as well… it was more tolerable earlier on. Walking A LOT really helps as well as hand stretches. Hoping I get approval for turmeric.

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My medical oncologist approved turmeric.

Raven my cardiologist approved it before that...

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@rosa1935

I’ve been blaming Anastrozole for my back pain but now I’m thinking it could be rivaroxaban that I ‘have’ to take whilst on Anastrozole! I had a pulmonary embolism last year and I was told it’s ‘safer’ to take tge blood thinner with Anastrozole fir 5 years!! I can hardly walk now without pain. Luckily I’m having an MRI next Thursday, 13 July. All this is very frightening. 😢

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Hi Rosa1935
My ongoing connection to this sharing relationship with all in this forum has tested my thoughts and decisions as I bounced around trying to come to some action that made sense to me. To remind me each day what my goal was I would write at the top of my date book how far away I was from the quality of life I believed was acceptable.

After many months of taking Anastrozole my side effects began and my daily calendar went from 100% slowly down. I went from deciding to work through each side effect with all the remedies I could come across for each issue - to realizing there were some side effects that were going to be part of my life going forward.

My right knee pain never left me and was told by all (both medical and anyone else who was kind enough to listen) that it was no doubt arthritis. When I researched arthritis there were a few suggested ways of dealing with that but was no ‘cure’.
The first week in April my doctor approved. 3 month hiatus. Immediately side effects such as chapped lips, cankers my mouth, carpel tunnel feelings in my hands, sleep issues, unexplained sadness, hair loss went away! The muscle/bone side effect continued and made me panic that if this indeed was arthritis- I was destined to endure this going forward in spite of Anastrozole. Fortunately my brain fog had gone and I was able to think!! I read that this particular side effect took much longer to go away after stopping and I waited. One and a half weeks ago I woke up and and had only a little pain in my leg/knee. Slowly each day has allowed me to believe this debilitating side effect may be gone. I have read nothing that gives arthritis this characteristic.
I think all of my advisors were willing to find logic in the arthritis option when there were viable alternatives to that theory.
For all those who have done fine on Anastrozole, I am envious!! There is just a vast majority of women who have suffered because of it and have had to work too hard to be listened to.

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