1. < Polymyalgia Rheumatica (PMR)

Adjusting to life with temporal arteritis

Posted by MLeeB @MLeeB, Mar 21, 2016

Would like to hear from people that have gone thru or going thru temporal artritis. I am now going on my 5 month after being diagnosed. It is getting better but very slowly. Is this normal?

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artist01 | @artist01 | Feb 27, 2021
In reply to @kimh "Thanks @artist01 ! Having said that, with my luck, they will probably carve out what little..." + (show)
@kimh

Thanks @artist01 ! Having said that, with my luck, they will probably carve out what little brain is left! Seriously though, thank-you for sharing. When my doctors first mentioned it, I got a little freaked out. I have had several surgeries in my abdominal area, but the head area seemed a little scary to me.

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@kimh. I was really scared too, when I was told I had to have a biopsy of my temporal artery! It wasn't one bit painful. My artery was so inflamed that the surgeon said to his nurse during the procedure, "Look how big it is!" He told me he knew without getting a biopsy report that it was GCA because the inflammation was so obvious. He confirmed that I had GCA right after the surgery. Don't worry about this minor procedure, Kim. You'll do fine! Warmest wishes, Laurie

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artist01 | @artist01 | Feb 27, 2021
In reply to @kimh "Thanks @artist01 ! Having said that, with my luck, they will probably carve out what little..." + (show)
@kimh

Thanks @artist01 ! Having said that, with my luck, they will probably carve out what little brain is left! Seriously though, thank-you for sharing. When my doctors first mentioned it, I got a little freaked out. I have had several surgeries in my abdominal area, but the head area seemed a little scary to me.

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@kimh . Hahaha, don't worry, they won't go near your brain! I'm going to start calling you Nervous Nellie. 😂 That's what my 3 sons call me when I'm stewing too much about something. You're going to be fine! I hope all this info has put some of your fears to rest. Thinking of you. Take care.

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kimh | @kimh | Feb 28, 2021
In reply to @artist01 "@kimh, the pain in my right temple area and right scalp were continual, not like a..." + (show)
@artist01

@kimh, the pain in my right temple area and right scalp were continual, not like a headache that comes and goes.

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Good to know. Mine come and go, so maybe migraines are coming back.

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kimh | @kimh | Feb 28, 2021
In reply to @artist01 "@kimh . Hahaha, don't worry, they won't go near your brain! I'm going to start calling..." + (show)
@artist01

@kimh . Hahaha, don't worry, they won't go near your brain! I'm going to start calling you Nervous Nellie. 😂 That's what my 3 sons call me when I'm stewing too much about something. You're going to be fine! I hope all this info has put some of your fears to rest. Thinking of you. Take care.

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hahhaha....you brought a smile to my morning! BTW, I have three sons as well!

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artist01 | @artist01 | Feb 28, 2021
In reply to @kimh "Good to know. Mine come and go, so maybe migraines are coming back." + (show)
@kimh

Good to know. Mine come and go, so maybe migraines are coming back.

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@kimh, but check with your doctor!

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1 reply
kimh | @kimh | Feb 28, 2021
In reply to @artist01 "@kimh, but check with your doctor!" + (show)
@artist01

@kimh, but check with your doctor!

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Oh absolutely. He's keeping a close eye on me. I'm very lucky to have the 'team' that I do!

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1 reply
artist01 | @artist01 | Feb 28, 2021
In reply to @kimh "Oh absolutely. He's keeping a close eye on me. I'm very lucky to have the 'team'..." + (show)
@kimh

Oh absolutely. He's keeping a close eye on me. I'm very lucky to have the 'team' that I do!

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@kimh. That's GREAT to know, Kim!

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MariannJ | @mariannj | Mar 13, 2021

I am interested in following discussions of Giant Cell Arteritis. Unfortunately, I have it but still have my vision.

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1 reply
Moderator
Amanda Roe | @amandajro | Mar 13, 2021

Hello @mariannj , you will notice that I have moved your post into an existing discussion on Temporal Arteritis as a way to connect you to information and members in this discussion.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Mar 15, 2021
In reply to @mariannj "I am interested in following discussions of Giant Cell Arteritis. Unfortunately, I have it but still..." + (show)
@mariannj

I am interested in following discussions of Giant Cell Arteritis. Unfortunately, I have it but still have my vision.

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@mariannj Welcome. May I ask how long you have had GCA and what treatment you’ve received? Do you take any prednisone?
I have a different autoimmune disease but I find that we all learn from each other. Strength in numbers!

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