Adjusting to life with temporal arteritis
Would like to hear from people that have gone thru or going thru temporal artritis. I am now going on my 5 month after being diagnosed. It is getting better but very slowly. Is this normal?
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Actually when I heard about the biopsy, I did get scared! I'm so glad you brought this up. I have head several surgeries/procedures, but not on my head.
I was nervous also. That was just the start little did I know , years ago.
Was diagnosed in Kentucky . Have lived in Texas for the last four years. My rheumatatoligst (sp) is very good and monitors me carefully !
Going ask my doctor about it.
@kimh. Yes, the pain was in the right temporal area of my face, just in front of the ear, and the scalp pain was on the right side too. The pain can be either side though, wherever GCA decides to strike each individual person.
@kimh, don't be afraid of the GCA biopsy, Kim. Honestly, it was not bad at all, and just took a few minutes. You don't feel a thing, and there's no pain afterward.
To be honest, I have a few autoimmune diseases going on and am praying daily for them not to progress. Are you on any meds @65321?
Right now, mine are (what I would call) sporadic headaches. I am already on prednisone and methotrexate (among other meds, for other things!). I am hoping that they will postpone what is feeling like the inevitable! I am so grateful for this site. You are all helping me calm my nerves!
Also so glad to have this site . Very comforting !
Thanks @artist01 ! Having said that, with my luck, they will probably carve out what little brain is left! Seriously though, thank-you for sharing. When my doctors first mentioned it, I got a little freaked out. I have had several surgeries in my abdominal area, but the head area seemed a little scary to me.
@kimh, the pain in my right temple area and right scalp were continual, not like a headache that comes and goes.