Has anyone been using Tymlos?

Posted by curlylocks @curlylocks, Aug 1, 2019

Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@windyshores

@cloud60 everyone is different. You may do just fine with Tymlos and therefore could go up one click a day. Others may benefit from a slower ramp up. I never got to the full 8 clicks (except for a few days) but that should be the goal and most end up doing full dose.

I have also been told that thighs are okay but since studies were done with stomach, many docs, nurses and pharmacists will say tummy only. I stuck to tummy, at least 2" from the navel. I know from my kid's type 1 diabetes/insulin shots that absorption is best in the tummy.

@susanfalcon52 no sure this applied for you.....For those 65 and over, Radius Assist can provide free Tymlos if you meet income guidelines. They have changed how they provide this info. I had a personal rep at Together with Tymlos who guided me and now it seems you go on the Radius website to find the paperwork to apply for aid.

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I learned that I didn’t prime the one correctly I tapped on lower part of pen instead of liquid part. Do you think I need to reprime it.

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@cloud60

I learned that I didn’t prime the one correctly I tapped on lower part of pen instead of liquid part. Do you think I need to reprime it.

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If you released a full dose it doesn't matter that much where you tapped. It is still primed. Just make sure there are no air bubbles. If there are, tap the part of the pen where the clear liquid is and squirt them out, holding the pen upright. But it is no big deal either. If you have an air bubble in a dose you will just get a little less that day.

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@windyshores

If you released a full dose it doesn't matter that much where you tapped. It is still primed. Just make sure there are no air bubbles. If there are, tap the part of the pen where the clear liquid is and squirt them out, holding the pen upright. But it is no big deal either. If you have an air bubble in a dose you will just get a little less that day.

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Yes I released a full dose into the air but I think it might have had an air bubble bc of the redness I got the first day. I am doing 4 soon in a few minutes not jumping to 7 I am not sure if you were suggesting that.

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@cloud60

Yes I released a full dose into the air but I think it might have had an air bubble bc of the redness I got the first day. I am doing 4 soon in a few minutes not jumping to 7 I am not sure if you were suggesting that.

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No I was not suggesting jumping to 7!

You primed the pen and are fine. No need to prime again.

Air bubbles do not cause redness 🙂

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@windyshores

No I was not suggesting jumping to 7!

You primed the pen and are fine. No need to prime again.

Air bubbles do not cause redness 🙂

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No I did not release a full dose into the air I didn’t know what a full dose looked like. Today I tapped the air bubble and released half dose into the air and now I see how much a half dose is it’s way more than I released the first day which means I think I didn’t push button in far enough for the first day prime

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It is important to reiterate that Tymlos does not cause brittle bones, nor does Forteo. The mechanism by which these two drugs work builds quality bone, unlike Prolia or bisphosphonates, which do create brittle bone if used too long. See McCormick's new book or ask your doc to confirm. Here is the actual insert: note that not a single human has gotten cancer from these drugs and the black box warning has been removed.

TYMLOS may cause serious side effects including possible bone cancer (osteosarcoma), decrease in blood pressure when you change position, increased blood calcium (hypercalcemia), and increased urine calcium (hypercalciuria). The most common side effects of TYMLOS in women with postmenopausal osteoporosis include dizziness, nausea, headache, fast heartbeat, feeling tired (fatigue), upper stomach pain, and spinning feeling (vertigo). The most common side effects of TYMLOS in men with osteoporosis include redness at injection site, dizziness, joint pain, swelling at injection site, pain at injection site, bruising, abdominal bloating, diarrhea, nausea, abdominal pain, and bone pain.

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@cloud60

My specialty pharmacy said Tymlos make bones more brittle. They had to by law read an explanation of the drug from the Tymlos company to me. I heard all anabolics and all bisphosphonates make the bones more brittle but less prone to fragility fractures. So if you have an accident and break a bone it can be harder to heal and some people say you may never heal.
Basically we can’t break a bone from an accident now.

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@cloud60 not only does Tymlos not cause brittle bones but it can help with healing fractures. Anabolics work in a totally different way from anti-resorptives. Please ask your doc or a pharmacist. These incorrect posts may influence others on this forum.

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I don’t think I can delete messages in the forum

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@windyshores

It is important to reiterate that Tymlos does not cause brittle bones, nor does Forteo. The mechanism by which these two drugs work builds quality bone, unlike Prolia or bisphosphonates, which do create brittle bone if used too long. See McCormick's new book or ask your doc to confirm. Here is the actual insert: note that not a single human has gotten cancer from these drugs and the black box warning has been removed.

TYMLOS may cause serious side effects including possible bone cancer (osteosarcoma), decrease in blood pressure when you change position, increased blood calcium (hypercalcemia), and increased urine calcium (hypercalciuria). The most common side effects of TYMLOS in women with postmenopausal osteoporosis include dizziness, nausea, headache, fast heartbeat, feeling tired (fatigue), upper stomach pain, and spinning feeling (vertigo). The most common side effects of TYMLOS in men with osteoporosis include redness at injection site, dizziness, joint pain, swelling at injection site, pain at injection site, bruising, abdominal bloating, diarrhea, nausea, abdominal pain, and bone pain.

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@windyshores, Thanks so much for your fulsome responses! They are helpful for those of us reading along. I’m interested in the resource you mentioned, McCormick’s. I would like to read it to better help myself. Also, I have a dear friend who I would like to be able to refer to knowledgeable, proven resources who has just been advised to begin Prolia.
Can you give the full title?
Again, thanks!

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Keith McCormick, chiropractor in W. Mass, who is an expert on osteoporosis.

"Great Bones" (recently published, 700 pages, very thorough about meds)
"The Whole Body Approach to Osteoporosis" (older book, shorter, very thorough on alternative approaches), Can be read through or used as reference.

He also does both phone and in-person consults. He had several fractures and did meds himself, then a more natural approach.

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