SRS for lower back pain or post herpetic neuralgia from shingles?

Posted by billweigle @billweigle, Feb 8, 2019

Does anyone have experience they could share with spinal cord stimulation (SRS) for either lower back pain on both sides or post herpetic neuralgia (PHN) from shingles in the lower right side and back. I have had both pains for nearly two years and am doing a seven-day trial with a Boston Scientific SRS unit.

Interested in more discussions like this? Go to the Infectious Diseases Support Group.

Profile picture for seanivor @seanivor

Hi Bill, my name is Sean, I have a spinal cord stimulator fittted since October 2012, its been a great success for me so far, message me if you need further feed back

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Sean how is the spinal cord stimulator now

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Profile picture for sukimach @sukimach

Sean how is the spinal cord stimulator now

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Welcome @sukimach, I'm not sure Sean @seanivor is still following Connect as they last posted in March 2020. Hopefully other members can share their experience with spinal cord stimulators.

Are you considering a spinal cord stimulator implant?

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Profile picture for John, Volunteer Mentor @johnbishop

Welcome @sukimach, I'm not sure Sean @seanivor is still following Connect as they last posted in March 2020. Hopefully other members can share their experience with spinal cord stimulators.

Are you considering a spinal cord stimulator implant?

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Yes Boston Scientific

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Profile picture for sukimach @sukimach

Yes Boston Scientific

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There are a couple of other discussions you might want to read through to learn what members have shared.

--- What's your experience: Boston Scientific Spinal Cord Simulator?: https://connect.mayoclinic.org/discussion/boston-scientific-spinal-cord-simulator/
--- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

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I have no experience with SRS, However, i did have both my pain nerves coterized on the left and right side. I keep the nerves from growing back together by using an inversion table.
As for shingles, I nearly had it. But circumventing it by covering the area with paper tape. I realize this sounds crazy, but 7 years ago I had chicken pox. I discovered i could control where they went using white paper medical tape. My doctor is currently doing a study on this very subject. I will recommend putting the paper tape over the area where the pain is for several days and see if the pain stops. This is how I avoided shingles. Like chicken pox it needs oxygen to manifest. And when it did not get the oxygen it needed it went away.
I hope you find this helpful.

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Profile picture for mrsjohn101 @mrsjohn101

I have no experience with SRS, However, i did have both my pain nerves coterized on the left and right side. I keep the nerves from growing back together by using an inversion table.
As for shingles, I nearly had it. But circumventing it by covering the area with paper tape. I realize this sounds crazy, but 7 years ago I had chicken pox. I discovered i could control where they went using white paper medical tape. My doctor is currently doing a study on this very subject. I will recommend putting the paper tape over the area where the pain is for several days and see if the pain stops. This is how I avoided shingles. Like chicken pox it needs oxygen to manifest. And when it did not get the oxygen it needed it went away.
I hope you find this helpful.

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@mrsjohn101 I must admit, in my 9+1/2 years of living with PHN (the after effects of shingles, “post herpetic neuralgia”), I have never heard of your solution! This would be a pain elimination solution like none other….not even heard of at Mayo Clinic! My pain is in the right side of my head & eye but I’d bandage up like a mummy if it would help!

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Profile picture for margiem @margiem

@mrsjohn101 I must admit, in my 9+1/2 years of living with PHN (the after effects of shingles, “post herpetic neuralgia”), I have never heard of your solution! This would be a pain elimination solution like none other….not even heard of at Mayo Clinic! My pain is in the right side of my head & eye but I’d bandage up like a mummy if it would help!

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@margiem honestly, SO WOULD I. And I did. For Thanksgiving of 2019 I had chicken pox for the first time at the age of 57. I was exposed to someone with shingles. This could have been deadly at my age. But other prevailing events saved me from that. (No, I did not have chicken pox as a child). By accident, as this is how most discoveries are made, I put some white paper medical tape over one of my pox to keep the pink stuff from smuging. 5 minutes after that I noticed that the pox stopped itching. I thought that was odd. In the middle of the night when the poxs attacked my face I thought of that one pox. I then covered my entire face with the tape. I'm happy to report that I only have two pox scars on my face. However, looking back I'm struck with the thought that one must get a certain number of pox as they doubled down on my head and neck. About one year later, I started experiencing the same symptoms as I did when I had chicken pox except this time I was having a really intense pain on my forhead above my left eye. I knew it could not be chicken pox. My guess was shingles. I then put the same medical tape over the area where the pain was and after awhile it went away.
I'm left with the impression that they require oxygen to manifest. My doctor is currently doing a study to see if shingles can be avoided using medical tape.
I'm currently writing a book about many of the things (medically) that I have discovered. Please let me know if you try it and whether or not it worked for you.
Thank you.

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Profile picture for mrsjohn101 @mrsjohn101

@margiem honestly, SO WOULD I. And I did. For Thanksgiving of 2019 I had chicken pox for the first time at the age of 57. I was exposed to someone with shingles. This could have been deadly at my age. But other prevailing events saved me from that. (No, I did not have chicken pox as a child). By accident, as this is how most discoveries are made, I put some white paper medical tape over one of my pox to keep the pink stuff from smuging. 5 minutes after that I noticed that the pox stopped itching. I thought that was odd. In the middle of the night when the poxs attacked my face I thought of that one pox. I then covered my entire face with the tape. I'm happy to report that I only have two pox scars on my face. However, looking back I'm struck with the thought that one must get a certain number of pox as they doubled down on my head and neck. About one year later, I started experiencing the same symptoms as I did when I had chicken pox except this time I was having a really intense pain on my forhead above my left eye. I knew it could not be chicken pox. My guess was shingles. I then put the same medical tape over the area where the pain was and after awhile it went away.
I'm left with the impression that they require oxygen to manifest. My doctor is currently doing a study to see if shingles can be avoided using medical tape.
I'm currently writing a book about many of the things (medically) that I have discovered. Please let me know if you try it and whether or not it worked for you.
Thank you.

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@mrsjohn101 I would suggest you ask your doctor about Epstein Barr Virus (which causes Shingles). My understanding is that it never leaves your body and can reactivate with various manifestations. I’m in the middle of a complicated journey to learn all about EBV which I’ve learned is the reason that I’ve had episodic flares for decades, and my doctors never identified what was going on. Alternative practitioners seem to know more about it. Good luck!

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