3 weeks post liver transplant: when will I feel better?
I had a liver transplant 3 weeks ago because of an autoimmune disease. I don't feel like myself right now. My face is all puffy and swollen which I assume is from the high doses of steroids. I've always been a thinner person but now I feel so fat and that is weighing on me mentally. My legs are still swollen. If I keep them down for even a short time, they become heavy and make it hard to walk. Everyone keeps telling me to be patient but right now nothing feels like it'll get better. I guess I just stupidly assumed things would bounce right back and that frustrates me. Im so miserable and even becoming more depressed. I tell people that and they make you feel guilty for feeling depressed. I guess I'm just looking to talk to people who actually been thru a similar experience. I would like to know how things went for you. Did you have bad side effects to the medicines? Did you ever get depressed after? Do things actually ever go back to normal again? As far as swelling and water retention. When they lowered your steroids did you lose weight and puffy ness in ur face?
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Hi, I am 🙏🏻🙏🏻🙏🏻 that if my numbers continue to be stable they will start decreasing soon. I am getting labs once a month. I think if I could get on less I would feel stronger they make me fill tired/could be the heat also.. I know the prograf is doing a number on my kidneys.
Yes HOPE is a perfect for TP patients.
I hope u r well💚😎 also.
Hurray for stable lab results! As I was reading your response and your tiredness, heat, and kidneys I was reminded of the importance of staying hydrated. I would not be surprised if your tiredness is partially related to the recent rejection, higher doses of meds, and also the heat and the desire to get back to a more normal active life. While I have been fortunate to not have experienced any rejection episode, I still find the need to nap and take an easy day.
@myfablife, I am happy to say that I am doing well. I was at Mayo Rochester in May for my annual review, and got the 'green light' to "Keep doing what I am doing and to return in one year! "
Please keep in touch and send updates.
Thank you for your words. I keep thinking this is my liver and your reminder that it is not will help me. I also suffer daily from thinking I'll be back to the old me. That person does not exist and I find it hard to identify with this new me. I don't want to be known as a sick person. I want to be myself.
You have inspired me to continue exercising. To hot to walk much in Arizona right now so I swim.
You continue to survive with God's help anything is possible 🙏
So glad I found your reply. Now 1 month has passed. Been in the hospital for high AST,ALT,GGT. They found a stricture in one of the bile ducts and did a liver biopsy, my first. Scheduled an ERCP which was canceled because the stricture was not life threatening. Hmm. Wonder when it becomes so.
I have begun eating 3 meals a day to keep liver busy and feel it's helped but have to force it down. Still no stamina and swimming makes me more tired but I do it
. My outlook is positive today ✨️
Thank you for helping me see the brighter side of things!
Hi Rosemary, thank you , I am so happy for your good news, I hope to be going annually soon, I know I will have to have monthly labs for a while but I am ok with that.
I am very fortunate to only be on immunosuppressants meds, I hope it stays that way and the meds don’t give me other problems.
Life is good💚💙🌻😊
Stay strong u got this.. I hope the biopsy was good, they wanted to do one on me but I am so thankful we did not have to. My numbers are stable from my rejection I had last October.
😊💚❤️🌻
Happy to hear you are stable. I'll get there! Biopsy showed no rejection, fibrosis or chirossis. All great news. 👍
We just keep on going one day at a time. 😊
Yay celebrate, that is wonderful news🥳🥳🎉🎉so very HAPPY for you!
Sabes porque cirrosis ja volvio?
Hello Elaine, my name is Vivian and I have my 25th liver transplant anniversary coming up in a month. Indeed it is a privilege to have received the Gift of Life and our post transplant longevity is proof that we are good stewards to this Gift. It is a wild and scary ride at the beginning but eventually we need to remember to live our best life within the parameters of post transplant life but not allowing the transplant to become who we are. We are more than the transplant. It is nice to "meet" another long timer and to hopefully give newer transplant recipients the assurance that this is not a sprint, this is a "go steady and smell the roses" adventure with many more years ahead. It truly gets easier until you don't even think about it.