Covid Tremors and Covid Vibrations support group and Myoclonus (jerks)

No tremors today !!!
Today was the first doctor appointment where my wife did not have tremors!

This is what we have learned about tremor reduction. (First let me say, the reduction might be just from getting slightly better, but who knows....)
Stress reduction, stimulus reduction, learning how to stay relaxed and pacing. These things are helping her body get better. Definitely reducing this load on the nervous system is helpful.

Really glad to hear you're doing better. I have very similar symptoms to yours after getting covid last December (tremors, myoclonic jerks, electric zaps, etc). I have never had anything like it before.

Can I ask what if any treatments helped? Any anxiety medications or anything like that? I am also being treated at Mayo in Pheonix so I hope I can learn from anything you have done to help.

At least you have made progress which gives me a lot of hope.

We live in Tucson and would be honored if we could get into Mayo in PHX.
Anyway...... what has helped?
Stress reduction and stimulus reduction both reduce the tremors. What might be happening is an overloading of nerve signals in the brain stem where all these signals get bottle necked and the body responds is tremors.
Here is an example of how I know stress aggravates the tremors. Wynne's tremors have been getting better over the last few months along with her overall health, which is still very bad. The past few days Wynne has been having more nightmares and wakes up stressed about these nightmare that seem real to her. Also the last few day her day tremors have come back some and her night internal vibrations are more along with her muscles jerks.

Here is a short answer to your question about what treatments help
*LDN
*Antihistamines
* Both stress and stimulus reduction
* Pacing
* Propranolol may or may not be helping

Im so sorry to hear she is still so sick. I also have another friend that has had these tremors and vibrations, and jerks for over a year without much progress. I feel they are all related to hyperstimulation of the fight of flight. Basically Covid did something to our brains that is making us maxed out on stress hormones and anxiety which in turn causes all the tremors and jerks etc.

I have just started taking Zoloft to try to lower my overall anxiety in hopes it will help with my physical symptoms and sleep. I have never had an ounce of anxiety my whole life so to have all this now is crushing. I so hope this will change with time and better treatments will emerge. I will post on here anything that works for me.

I would skip Scottsdale and go directly to the Mayo Covid clinic in Rochester.
I went to AZ first and they don’t know anything about Covid but received great support in Rochester. Still recovering but have some answers.

https://www.mayoclinichealthsystem.org/hometown-health/featured-topic/post-covid-syndrome-the-long-haul

Zoloft did not help me.
LDN has been great for energy

how are the antihistamines working out?

is this still working?

We did not see any different with increasing of anti histamines