MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Good Morning
The diagnosis is very frightening. Like you I was/am
A caregiver ( teacher and caregiver for elderly parents). It is shocking to have to focus on my own health. You will find this group helpful, supportive and at times alarming. But unlike the rest of the world, they understand the the uncertainty we are all living with. Do things you love. P

I'm new on here but I REALLY NEED to ask questions. My bloodwork just came back and my light chains are sitting at 44! I'm an RN for a health company so I can read bloodwork. My liver and kidney functions are perfect. All of my other bloodwork is also perfect. I have no pain and I've never had an infection in my life. Never get sick, never have I ever taken an antibiotic or had Covid. I feel perfectly fine. I only discovered this because I was a blood donor and they told me I couldn't donate anymore. I am very confused and scared because nothing adds up. Is ANYONE out there like me????? My cbc is also normal. My hematologist told me not to worry....ya, right!!!

Hi Robin,
Yes I am exactly like you! I have no symptoms. Slight back ache, which goes with exercise. My liver and kidney function are also perfect. The reason I got tested is because we found out just before Mum died this February at 83, she had multiple MM.
I am two weeks in. Very scared, struggling to sleep and having full on panic attacks!!! I am waiting to see the haematologist- 3 weeks to go! They have suggested it could be smouldering myeloma. I’m being told from the few friends and family I have told to keep positive as it might only be MGUS. I feel like screaming is that all!! I’ve just watched my mother die and now realise why she had all these complications!!! But I suppose though 83 isn’t a bad age!
it is really good that Your haematologist says not to worry. I know that’s not much, but it is a little bit of hope. Keep doing what you’re doing if you’re healthy in every other way.
Sending a huge hug X

They ALWAYS say don't worry because it's NOT THEM!!! He also hadn't seen my follow-up bloodwork. I live my life with my glass half full all the time. 20 years ago I was dx with stage III colon cancer and I knew I would beat that, I DID. This just came out of nowhere, no connection! I'm just so disappointed and angry. It's like lightening striking twice but for no good reason. Anyway, thanks for your very kind words. I can tell you this much, staying positive and prayer are very important. God does listen ❤️

Haha yes and I’d probably say the same ish thing if it was someone else!!!!
That’s incredible you beat colon cancer. If you can beat that you can keep this at bay. You’ve inspired me! There is hope!
I am angry too, absolutely pissed off in fact!! I’ve just turned 50 and thought I was fit and healthy, i exercise and eat well. I don’t have a faith but I do believe our minds can do incredible things..
Have you had any scans, or a bone marrow biopsy yet?

No I've had none of those yet. I just had my 60th birthday and won the title of Mrs. Classic Universe. I was having a pretty epic year. I wasn't too concerned until I saw my light chain levels. I honestly think I'm just odd. I am quite anxious to hear what he has to say. I'm trying to stay positive but I honestly just have no idea what to think. Praying for the best. I have so much left to do ♡

@robinrossrn @amossarah It's easy to do the Dr. Google thing, and read many negative statements, from many different sources, that are not always scientific or credible. And it's also very easy to "awfulize" everything. We learn to be aware, to take care of ourselves as best we can. Take each level, each appointment, each discovery, and fit it into our lives. What one person experiences, another may not. We may have other health issues, also, that play into the picture. So glad we are here as a group, to share and support each other.
Ginger

@robinrossrn @amossarah It's easy to do the Dr. Google thing, and read many negative statements, from many different sources, that are not always scientific or credible. And it's also very easy to "awfulize" everything. We learn to be aware, to take care of ourselves as best we can. Take each level, each appointment, each discovery, and fit it into our lives. What one person experiences, another may not. We may have other health issues, also, that play into the picture. So glad we are here as a group, to share and support each other.
Ginger