1. < Osteoporosis & Bone Health

Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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kgrainger | @kgrainger | May 28, 2023
In reply to @barlin717 "So sad to see that so many people have endured the side effects, at least I..." + (show)
@barlin717

So sad to see that so many people have endured the side effects, at least I am not alone...I had my 1st infusion on May 19th. That very evening I had chills, headache and couldn't keep my eyes open. I woke up around 2 a.m. throwing up and couldn't sleep. Two days later, I endured neck pain, shoulder and back pain that lasted about 3 days and led to what I am experiencing now. Both of my knees are in terrible pain, I'm finding it very difficult to stand with out falling, it's difficult for me to sit on the toilet or a chair as trying to rise up leaves me in anguish and tears. I severely regret taking this infusion and can't see myself continuing treatment.

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Wow! I won’t get another treatment either

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cat714 | @cat714 | May 29, 2023
In reply to @barlin717 "So sad to see that so many people have endured the side effects, at least I..." + (show)
@barlin717

So sad to see that so many people have endured the side effects, at least I am not alone...I had my 1st infusion on May 19th. That very evening I had chills, headache and couldn't keep my eyes open. I woke up around 2 a.m. throwing up and couldn't sleep. Two days later, I endured neck pain, shoulder and back pain that lasted about 3 days and led to what I am experiencing now. Both of my knees are in terrible pain, I'm finding it very difficult to stand with out falling, it's difficult for me to sit on the toilet or a chair as trying to rise up leaves me in anguish and tears. I severely regret taking this infusion and can't see myself continuing treatment.

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Did Dr tell you to drink alot of water before during and after. Along with tylenol

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barlin717 | @barlin717 | May 29, 2023

Hi.
No I was told there was no prep needed..., when I inquired I was told there was a very small percentage of people who actually had side effects...mostly headaches, fever, general malaise and flu like symptoms. The nurse who administered the infusion said the last time she did was 2 years ago...she said very few people get reclast.

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windyshores | @windyshores | May 29, 2023

I was told to hydrate and take tylenol, and request a slow infusion.

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njhornung | @normahorn | May 29, 2023

The instructions from the company say to drink 2 glasses of fluids a couple of hours before the infusion if you like your kidneys and want to keep them functioning.

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paala | @paala | May 29, 2023
In reply to @barlin717 "So sad to see that so many people have endured the side effects, at least I..." + (show)
@barlin717

So sad to see that so many people have endured the side effects, at least I am not alone...I had my 1st infusion on May 19th. That very evening I had chills, headache and couldn't keep my eyes open. I woke up around 2 a.m. throwing up and couldn't sleep. Two days later, I endured neck pain, shoulder and back pain that lasted about 3 days and led to what I am experiencing now. Both of my knees are in terrible pain, I'm finding it very difficult to stand with out falling, it's difficult for me to sit on the toilet or a chair as trying to rise up leaves me in anguish and tears. I severely regret taking this infusion and can't see myself continuing treatment.

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I’m so sorry you’re having such difficulty. There is such variability in people’s response to these drugs. I have some fatigue and definitely joint pain in my hands but especially in my knees. I’m walking (sometimes through pain) and getting PT which has helped so much. I agree w another reply. Hydrate profusely starting the day before treatment unless you have other medical issues preventing you. It makes a huge difference.
I hope you feel better each day.

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ljgraham166 | @ljgraham166 | May 31, 2023
In reply to @barlin717 "So sad to see that so many people have endured the side effects, at least I..." + (show)
@barlin717

So sad to see that so many people have endured the side effects, at least I am not alone...I had my 1st infusion on May 19th. That very evening I had chills, headache and couldn't keep my eyes open. I woke up around 2 a.m. throwing up and couldn't sleep. Two days later, I endured neck pain, shoulder and back pain that lasted about 3 days and led to what I am experiencing now. Both of my knees are in terrible pain, I'm finding it very difficult to stand with out falling, it's difficult for me to sit on the toilet or a chair as trying to rise up leaves me in anguish and tears. I severely regret taking this infusion and can't see myself continuing treatment.

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Same here I know how bad you feel. My GP put me on prednisone for 7 days and it helped a lot. I told my rheumatologist never again

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keaves | @keaves | Jun 1, 2023
In reply to @jccline "I had my first Reclast transfusion May 2022. I have severe ostoperosis due to a hysterectomy..." + (show)
@jccline

I had my first Reclast transfusion May 2022. I have severe ostoperosis due to a hysterectomy in 1994, which ended me with a pulmonary anurism. Due to my history of blood clots I was not put on any estergen or hormones which led me to ostoperosis. My RA Doctor decided I could have the Reclast transfusion which I had the first one. I have been feeling sick, severe pain in my muscles, and bones. I don't have any energy I was a very active woman until May 2022. Please tell me this will end!!!!!!!!!!!!!!!!

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Are you feeling better from your Reclast infusion? If so, how long did you suffer after the infusion? I hope you are feeling better. I have been sick since having my Reclast infusion. I would love any suggestions that you may have.

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windyshores | @windyshores | Jun 1, 2023

Did anyone have Reclast with chronic kidney disease?

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1 reply
kgrainger | @kgrainger | Jun 2, 2023

I ended up in the ER with in 8 hours with severe thoracic back and stomach pain. ER doctors ran tons of test. Only discharged me with diagnosis reactions to the infusion. It lasted for about 2 weeks and I will never get another infusion of reclast.

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