Long Term PAC and PVC Suffer. Need your support and guidance

Posted by rr1967 @rr1967, May 23, 2023

Hello everyone. Thank you for reading this below is my story:

I have been dealing with PVCs and PACs for almost 20 years. They flare up once per year usually. I have had Zio Patch monitors, tons of EKGs, a stress echo four years ago, two heart CT scans two decades ago, many ER visits, etc, etc. All results were normal with the exception of showing PACs and PVC. My burden has always been below 2% when they flare up.
25-e some stats:
1. I am 55 and in good health
2. Borderline blood pressure: usually around 120-130/75-85 most normal days.
3. Borderline type 2 diabetic.
4. I do suffer from chronic anxiety and depression. Twenty years ago I suffered many panic attacks for the course of a year. But they have gone away. Mostly I deal with almost daily anxiety and worry.
5. Non smoker, no drugs
6. I do drink alcohol ( wine or beer) on weekends with my wife, only at night.
7. I am at a healthy weight. Cholesterol and Triglycerides all normal.
8. Resting heart rate: 50-60. Cardio doc states that this heart rate is normal for me.

Well my most recent flare up started two weeks ago and they seem worse. I feel the extra beat the moment I wake up they go on all day until I go to bed. I went to the ER and they did another EKG and ran a bunch of blood work. Of course...all normal. Diagnosis: PACs. Electrolytes also all normal.

In the last week, I have noticed my skipped beats increasing when I move around, go grab groceries, go for a walk, even exercise. This has me more scared than ever. My regular doctor told me not to worry, but I am seeing an electrophysiologist (EP) tomorrow. I did see an EP two years ago and he told me I was fine and prescribed Flecianide to take as needed. I saw the side effects and they scared me off so I never tried them. Eventually, the extra beats went away.

I have also tried Metropolol and they did not work. They also made my heart rate slower so my cardio doc told me to stop taking them.

But as stated, they extra beats are back and I am more scared then ever, especially with them increasing with movement or exercise. I have never fainted or felt dizzy from these. I only catch my breath and feel extra alerted.

Finally, my palpitations also seem to increase considerably after I eat a meal. Is this normal?

Any advice, recommendations, encouragement, support please.

Thank you and my apologies for any typos or writing errors.
RR

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

After an ablation for afib, I was having PACS and many PVCs, about 4 to 6 per minute at times. My EP suggested magnesium oxide. That did not do anything, except cause diarrhea. Research lead me to a product called "Triple Calm", which is a combination of magnesium taurate, magnesium glycinate, and magnesium malate. That helped a lot. Then after further research, I switched to a magnesium taurate only supplement. My PACs have gone away and my PVCs have greatly reduced. I also drink one or two glasses of sodium free V8 juice each day. The sodium free V8 has potassium instead of sodium. Take all of this with a "grain of salt" (a little humor there). I have learned that with this heart rhythm stuff, what works for one person may not work for the next person. Good luck to you.

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@anniegk

If you have digestive issues, like diarrhea, be careful when taking magnesium. It can cause diarrhea.

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I’d rather have diarrhea any day than heart PVC’s and PAC’s .
I’ve been taking it for years when I heart starts going out and of sync . It’s saved me like said so many trips to ER .
This is 3 diff magnesium’s w/ Potassium and Q—10 .

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It’s called Heart Calm by Vital Biologics , google it .

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I hear you! I have had SVT for years. They finally put me on a Beta Blocker and it seems to help. Glad the med. is working for you.

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I hear you! I have had SVT for years. They finally put me on a Beta Blocker and it seems to help. Glad the med. is working for you.🙂

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Hello everyone!
Thank you for much for the support and posts!
A few more events and questions.

I had a really episode of palpitations last Thursday and of course, I panicked and went to my local ER. When I got there they did a quick EKG and of course, everything was normal...no palpitations at all! But while I am sitting in a chair at home or in the ER, the palps are firing off like crazy! The moment I lie down to do an EKG, they go away. Well I then had another full set of labs done and a chest Xray. All normal of course! They then did another EKG and I asked the nurse if I could maybe sit up a bit when the EKG is being done. Then she caught one PAC and another. The ER doctor told me that I am fine and my cardiologist then put me on Dilitiazem, calcium channel blocker, to take at night. I already take Amlodipine and Losartan in the morning for blood pressure and my numbers are good. I started taking the Dilitiazem on Thursday night and on Friday, I felt some relief. I am still on the medication, but I struggled all day yesterday and again this morning I am having many PACs. My cardio also ordered another chest holter monitor (A Zio Patch recorder) and I started that on Friday and I will wear it for a week. Cardio doc also wants to me restart exercising as I have been scared to do so with the PACs and PVCs.

My cardio (great person) keeps reassuring me that the PACs and PVCs are not harmful even if they hit 10,000 to 20,000 per day. I am curious to see what my new monitor says but I am sure I am having at least 5000 to 8000 per day. He also told me that his father gets up to 30,000 per day and that he is in perfect health.

I know that these will never go away, but I want them to reduce in quantity and severity. I can FEEL each one and when they hit, my anxiety just soars!

Questions:
1. Do you great folks feel more palpitations when sitting? I feel much more when sitting and they really reduce when standing up or walking around.

2. I notice a huge increase in them when I wake up in the morning? Sometimes they slow down in the afternoon and evening.

3. What have you heard about ways to reduce how many we can actually feel? I have tried Xanax, Hydroxizine, meditation, breathing exercises, distraction, etc.

4. Finally, I keep reading about how the VAGUS nerve could be responsible for causing these. However, I have three cardiologists tell me that vagus nerve is not a cause.

Thank you,

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@rr1967

Hello everyone!
Thank you for much for the support and posts!
A few more events and questions.

I had a really episode of palpitations last Thursday and of course, I panicked and went to my local ER. When I got there they did a quick EKG and of course, everything was normal...no palpitations at all! But while I am sitting in a chair at home or in the ER, the palps are firing off like crazy! The moment I lie down to do an EKG, they go away. Well I then had another full set of labs done and a chest Xray. All normal of course! They then did another EKG and I asked the nurse if I could maybe sit up a bit when the EKG is being done. Then she caught one PAC and another. The ER doctor told me that I am fine and my cardiologist then put me on Dilitiazem, calcium channel blocker, to take at night. I already take Amlodipine and Losartan in the morning for blood pressure and my numbers are good. I started taking the Dilitiazem on Thursday night and on Friday, I felt some relief. I am still on the medication, but I struggled all day yesterday and again this morning I am having many PACs. My cardio also ordered another chest holter monitor (A Zio Patch recorder) and I started that on Friday and I will wear it for a week. Cardio doc also wants to me restart exercising as I have been scared to do so with the PACs and PVCs.

My cardio (great person) keeps reassuring me that the PACs and PVCs are not harmful even if they hit 10,000 to 20,000 per day. I am curious to see what my new monitor says but I am sure I am having at least 5000 to 8000 per day. He also told me that his father gets up to 30,000 per day and that he is in perfect health.

I know that these will never go away, but I want them to reduce in quantity and severity. I can FEEL each one and when they hit, my anxiety just soars!

Questions:
1. Do you great folks feel more palpitations when sitting? I feel much more when sitting and they really reduce when standing up or walking around.

2. I notice a huge increase in them when I wake up in the morning? Sometimes they slow down in the afternoon and evening.

3. What have you heard about ways to reduce how many we can actually feel? I have tried Xanax, Hydroxizine, meditation, breathing exercises, distraction, etc.

4. Finally, I keep reading about how the VAGUS nerve could be responsible for causing these. However, I have three cardiologists tell me that vagus nerve is not a cause.

Thank you,

Jump to this post

A couple of thoughts:
Have you had a cardiac MRI? My EP thought my occasional AT and VT were “idiopathic”, until he got the MRI finding that my Left Ventricle was dilated and my expulsion fraction was 43%.
My background: 72yo male in good health (otherwise), developed AFIB in Nov’21, had an ablation in Nov’22 which resolved the AFIB, but have had ongoing PAC/PVC’s with a 15% burden. Like you, they made me anxious and uncomfortable. I was constantly checking my HR on my watch and keeping notes about what I ate. I completely cut out alcohol and caffeine, and tried to avoid red meat. Still they were there. Fast forward to May’23: I had an Insertable Cardiac Defibrillator (combo PaceMaker and Defribulator) installed. At the same time, my EP switched me from Metoprolol to Sotalol and stopped my Eliquis. Bingo! I feel so much better. I continue to see and feel anywhere from 5 to 15% PVC’s but they no longer bother me. It’s too soon for the ICD to be playing an active role, so I’m thinking it was either the Eliquis or the Metoprolol (or both) that somehow affected the way I was feeling. I see my EP again in 2 months at which time I expect he will “tune” the parameters on my ICD and perhaps that will calm the PVCs.

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Hello
Thank you for information. Both my cardiologist and EP feel that no additional imaging is needed. I have never had Afib and my full stress echo showed completely normal results including the ejection fraction. According to several doctors and cardiologists, any serious heart issues have been ruled out.
Yes, I am always checking my heart rate and sadly, I can feel almost every PAC and PVC. With my diet, I am a vegetarian, never drink coffee (only a cup or two of decaf), and have quit drinking alcohol. I was told today the Diltiazem may take several days to a week to work. I am fine with the PACs and PVCs never fully going way and I can deal with one to three per minute. It is when they go in runs or start hitting hard (almost 10 per minute) is when my anxiety takes over and I become very scared. I can't go on any beta blocker...it simply slows my heart rate too much. I am normally between 50-60 resting and the beta blockers brings it even lower. My cardio and regular doc tell me that my current heart rate is fine and it shows good health.

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Oh that’s so so frustrating!! I’ve been down the road you are on and have done everything you have done . I’m not on any heart ♥️ RX now as it lowered my BP too low .
I feel each one as well when I have them . I also have Chronic gastrointestinal disorders daily that can trigger them .
I have to tell you , last night at 2 am , I was asleep and woke up to really crazy sporadic fast heart ♥️ beats .
It wasn’t pvcs or PAC’s … it was something I never really felt before .
I put on my Apple 🍎 watch and did several ecg ( like ekg ) on it .
Omg just watching the screen and what my heart my doing was so crazy . Sure enough my heart rate was 145 and I was in A- Fib for 1.5 hrs .
I got up walked around , did deep breathing exercises. I took my Triple magnesium supplement called Heart Calm by Vital Biologics w/ an xtra potassium. I took 3 , usually w/ in 20 min my pvcs would go away . Not last night w/ this A-Fib .
I finally feel back asleep 💤 and woke an hour later and my heart was in sinus rhythm.
I always have the 1000’s of deep belching and churning gut day and night . This was just so horrific.
Try the product I mentioned. It’s $30 made in USA and free shipping in USA .
It’s 3 diff magnesium’s combined with Q-10 and a small amount of potassium.
It’s saved me many trips to ER .
I pray you start getting relief .
I’m on a 10 yr journey with Gastro cardiac syndrome and 6 Gastros later , a couple of cardiologists. Still I suffer .
God Bless .. Rosemary

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Hello
I am following up from my original post on being a long term PVC and PAC sufferer. After a really bad episode about two weeks ago, my EP put me on 120mg of Diltiazem, a calcium channel blocker and I take it at night along with .5mg of Clonazepam. I do seem to tolerate the Diltiazem well. The EP suggested that I could go to 240mg but that made me way too tired and lowered my heart rate again. The 120mg at night is just right for me. These drugs due to take about a week to two weeks to fully work.
My pacs and pvcs seemed to have reduced along with my anxiety. Now last night, my wife and I decided to unload some stress and ate some rich food and had too much sugar and drinks. My palps are back today but not in full force as they were in the past two weeks. I guess I have to be very careful going forward. The cardiologist and other doctors have told me that lack of sleep, sugar, especially chocolate, and of course any type of alcohol are all triggers for PACs and PVCs. I pretty much only drink micro brews these days and it had been several weeks since my last beer. I figure a few beers once or twice a month can't be too bad.
I did notice the past few times I have exercised that the palps did not appear but they were present after...I guess this is due the adrenaline still being in my system. My cardio doc still wants me to exercise. I am waiting on the results of my Zio patch heart monitor and it may be another week.

This is a great support group and I will keep posting updates. Your posts have made a difference in my life and thank you!

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