Body vibrations when falling asleep or waking?

Thanks John! I take those already and will certainly continue to do so.
I’m also going to do a heavy metals test and possibly try a heavy metal detox though I’ve had no known exposure.
Neurologist was largely unhelpful sadly. I’m seeing a second neuro soon though. My doctor was also not helpful but thankfully I also have a naturopath and she is very knowledgeable and most importantly, she actually listens and she believes me.

Just following up on all of this. I decided not to do the heavy metals testing / detox after looking into it further. They're not really evidence-based. (The exception is if you have mercury poisoning, which is a medical emergency and requires hospitalization.). I also stopped seeing a naturopath after I learned more. Much of what they do is not evidence-based. She wanted me to spend hundreds of dollars for tests that wouldn't have been useful.

I did follow up with the second neurologist who was fantastic. Very attentive, knowledgeable, and responsive. Did several MRIs including a brain scan, nerve conduction studies (2) and muscle tests (2). Thankfully everything came back normal, despite the twitching I was experiencing getting worse throughout 2022. I was ultimately diagnosed with Benign Fasciculation Syndrome - which gets worse with stress, insomnia, and anxiety. Managing those factors keeps the twitching down to a minimum. I also started hormone replacement therapy because in the middle of last year I also entered menopause, which can exacerbate insomnia and muscle twitching.

Regarding body vibrations when falling asleep or waking: I now believe this is most likely Sleep Paralysis, which gets worse with fatigue or chronic insomnia. Just two nights ago, I had an episode of full body vibrations around 5 am, which even included auditory hallucinations and flashing lights. It was wild. The last time I experienced this was in late 2021. I am not the only one in my family that gets these sensations, just drifting off to sleep or emerging from sleep. This is the best article I have found yet on the topic. Maybe it applies to some others here. (I hadn't slept well for a few nights, and the night I experienced this, was the first night I got a deep sleep and a full 8 hours - which, ironically, makes Sleep Paralysis more likely, due to REM deprivation from the previous nights!)

I really feel for how much fear is involved in this process and I hope and pray that everyone here gets good news, and clear answers in their search.

For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.

Hello, I have been looking everywhere for something that has been happening to me but I couldn't find anything, but this thread is somewhat like what I'm experiencing. Maybe someone could give their input on why or what is happening. So sometimes when I sleep for a very long time or don't sleep enough I experience my whole body begin to tingle/vibrate/buzz. It's very hard to explain, but it's not like when your arm falls asleep and it begins to tingle, it's more of a very very pleasing tingling/buzzing. This can happen when I'm almost asleep or if I just wake up in the night and go to sleep again, but it happens when I 'am awake. Also i can kinda intensify it if I close my eyes harder or look up. When you close your eyes hard you can kinda hear it / feel it in your ears and that's the feeling * 100.

Also it's one of the most pleasant feelings I've ever felt, and it might sound a bit weird but it almost feels like an orgasm.

I personally think it has something to do with sleep myoclonus where my mind is awake while my body is being sedated

I have had these internal tremors for years. The first time I noticed them was after my first pregnancy. It turned out I was anemic and b12 deficient. I supplemented and they went away. They came back after my net pregnancy and I was also b12 deficient with low iron. I supplemented and they went away.

Last year I developed POTS (postural orthostatic tachycardia) and these tremors returned even though my b12 levels and iron were fine. b12 and iron deficiency cause neurological symptoms such as vibrations and pOTS is a neurological auto immune disease.

Someone in another forum mentioned that it is related to shallow breathing and that possibly makes it worse. I have heard it is related to GERD. I cannot get any answers and nothing helps. I do take clonazepam when it is incredibly bad. I always get these tremors when I am having a poTs flare.