Hope: Starting Calmare scrambler therapy

Posted by sprinrosa64 @sprinrosa64, Dec 5, 2022

It;s been just over 5yrs since my TKR and I have been in terrible pain since. I am told it's due to nerve condition or damage and I have tried everything so I thought , well today I will be start Calmare scrambler therapy. I have done my research and am praying this is my answer . I will keep you posted as to the outcome

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Best of luck @sprinrosa64. I hope you find relief and like that you are keeping hope alive!

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Hello @sprinrosa64 , I'm wondering how the new scrambler therapy is going for you so far. Is it too early to tell? Looking forward to your update when you can.

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Thanks for asking Rachel , normally it is a 10 day program but they are allowing me just 4 days to see if we get any results, helps save a lot of money doing it that way. Tomorrow will be my 4th day so 🙏. I will let you know

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Well the search will have to continue. I am told in all their yrs that I am their 1st patient to get zero relief from this therapy, lucky me. In their opinion I must be dealing with some kind of structural problem , last ortho doctor said it has to be nerves. Who knows but I will keep moving and searching there must be an answer out there PEACEFUL HOLIDAYS STEVE

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@sprinrosa64

Well the search will have to continue. I am told in all their yrs that I am their 1st patient to get zero relief from this therapy, lucky me. In their opinion I must be dealing with some kind of structural problem , last ortho doctor said it has to be nerves. Who knows but I will keep moving and searching there must be an answer out there PEACEFUL HOLIDAYS STEVE

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Steve - what a bummer to hear! I'm sorry you didn't receive the benefits you were hoping for. How disappointing. At least you tried and now can chalk it off your list.

The sad part of a chronic pain journey is that we all just hope for relief and many times fall short of finding it through medical interventions. Medications can do just so much, then it kind of falls back into our laps with acceptance and lifestyle changes. That's been my journey anyway.

I'm not sure where your at in your journey, but maybe listening to Dr. Sletten from the Mayo Clinic talk about chronic pain may help a little.

I've posted his video quite a bit on Connect so please forgive me if you've already watched. Its pretty good stuff and gave me the confidence to make serious changes in my life.

Do you have another plan of action? Are there any treatments you have not tried yet that you have hope for?

PS: Happy Holidays to you as well!!!

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Question, how hard is it to get into The Mayo . Is it the type place where you send all your records and they decide if they are willing to see you ? I am also looking into HSS in NYC to see if any orthopedic is willing to take a look at me.

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have any of you seen dr. tom smith of johns hopkins speak about calmare/scrambler tx?

https://drive.google.com/file/d/1Kq4QEOsudVZtS2sQ2Hvm3dpsVZjpNyhB/view
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@sprinrosa64

Question, how hard is it to get into The Mayo . Is it the type place where you send all your records and they decide if they are willing to see you ? I am also looking into HSS in NYC to see if any orthopedic is willing to take a look at me.

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Yes, that is typically the case. Medical records are sent by your doctor, after application. Here is a link to apply in case your interested:

Mayo Clinic Appointment Request-
- http://mayocl.in/1mtmR63

Mayo is very friendly and easy to work with by my experience.
There is nothing lose by inquiring.

Have you applied to Hospital for Special Surgery in New York City yet?

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I have had PHN of the head for over 2 years and no medications have helped. Has anyone tried scrambler therapy by Calmare? I am desperate to try anything and by the way I have tried CBD, botox and acupuncture to say a few. I was told it is the tri geminal nerve that goes to my eyebrow an center of head.

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@cnola

I have had PHN of the head for over 2 years and no medications have helped. Has anyone tried scrambler therapy by Calmare? I am desperate to try anything and by the way I have tried CBD, botox and acupuncture to say a few. I was told it is the tri geminal nerve that goes to my eyebrow an center of head.

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I’ve never heard of that. Can you give us a brief description please?

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