Living with Neuropathy - Welcome to the group

Hi @patpalme, Welcome to Connect. I know it's probably not much comfort, but I can tell you that you are not alone. There are a few burning mouth syndrome discussions you might find helpful.

--- Burning Mouth Syndrome (BMS): Anyone found any relief?: https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/
--- Burning Mouth Syndrome: Anyone had success with compounded mouth rinse:
https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-clonazepam/
How long have you had the burning mouth symptoms?

Hi Ted,

Gabapentin did nothing for my neuropathy but Lyrica and Benfotiamine have helped a lot. A little more help has come from Primrose Oil and Alpha lipoic Acid but mostly L and B have helped a lot.

Friday someone wrote about a national forum that has studies on the many treatments for Neuropathy. I was a 5 page study covering groups of Studies. t broke down Medicines from Pills, Creams, Docter studies, home remedies. There were no conclusions. I misplaced the name of the Foundation. Any chance anyone their name or study, Thank You.
GBA

@gba, I think you are referring to the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/) but I don't think it's a study. It's list they compiled based on input from members of the foundation who have neuropathy. Here's the document: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

Just started having a burning in my feet and ankles. Once in a while I feel a sudden pinch in feet. What are others doing to help with mild pain. Thank you

Welcome @rhonda1830, I don't have the burning feet with my neuropathy but do have the numbness and haven't found much that gets rid of it. There is another discussion you might find some answers in while we wait for others to share their experience.

--- Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/.

Here are some home remedies that might provide some relief:
--- 9 home remedies for burning feet: https://www.medicalnewstoday.com/articles/home-remedies-for-burning-feet.

Have you seen a doctor for your symptoms?

Thank You, John
Yes, that is exactly what I wanted. Great reference to look up all that been tried.
Regards, GBA

Hi, I'm Bob. I have foot neuropathy, sometimes right and sometimes left, never both at the same time. It occurs mostly at night and wakes me up. I have applied the creams and they work but not as fast and greasy-free as ice-hot roll on that works well and faster. I also notice it when I sit for an extended period of time when working on the computer, but this is daytime and a hint to get up and move around and it stops, if I can't move in a meeting, I sign the alphabet with my foot and it subsides. I can't do this at night because by the time I awake it is game on burning. I have the electrical stimulation test and there was no problem. This started after my second chemo treatment and auto-transplant in 2008, 2006 chemo treatment lasted a year, and the non-Hodkins lymphoma came back. I think it could be related to my blood sugar (intake) in the evening but holding off on sugar does not seem to make a difference. Yes, cancer doc said I make have this as a treatment after effect. Oddly after a week of night attacks it stops for a week or so then starts up again. I am on metformin for pre-diabetes, so I minimize my sugar and carbs intake significantly. I also wear diabetic socks to enhance circulation. I am now purchasing a Cloud Massage Shiatsu Foot Massager Machine. Is there anything else I am not considering doing or check on?

Hi Bob @revbobcoulson, Welcome to Connect. I also have neuropathy in my feet and legs but I don't have any pain, just some numbness. I'm not sure if you've seen the Foundation for Peripheral Neuropathy but they have some good information on different possible complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

You might also be interested in the following webinar by the Foundation for Peripheral Neuropathy.
--- Webinar: Chemo-Induced Peripheral Neuropathy: https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/.

John, I have not seen these and will jump right on them...thank you for guiding and mentoring!