Newly diagnosed with Macular Degeneration

Posted by Tracey001 @tracey001, Aug 18, 2011

I just found out that i have Macular Degeneration possibly Macular Dystorphy and I am scared to death. I haven't eaten in three days and I feel a huge sence of hoplessness. I would really like to talk to others who have it and how they are coping

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Christine | @thisoldewe | May 22, 2023

I too would encourage you to grab onto treatment when that is being suggested.
The best way to slow and possibly stop disease progression is with early treatment.... please don't wait until your vision is compromised.
Be proactive!
A dear friend is now getting the shots... she said that the thought of the shots was much worse than the shots themselves.
All the best to you!

btednes2015 | @btednes2015 | May 22, 2023

In reply to @amandajro "Hello @btednes2015. I wanted to bring you into an existing discussion on this topic, so you..." + (show)

I’m hesitant because my doctor isn’t clear on what it supposed to do in one hand, he said it may make it worse and the other may help that and then it’ll be a series of injections. Right now it’s not bad it’s been over a year since I’ve been diagnosed, it seems to be very slow and on the vitamins and I do eat pretty healthy, I’m just wondering what would happen if I just let it go on its own

decabea | @decabea | May 22, 2023

In reply to @amandajro "Hello @btednes2015. I wanted to bring you into an existing discussion on this topic, so you..." + (show)

Not reluctant, I post under Decabea, wrote about new on market treatment for dry, my experience with doctor whose treatment schedule I did not agree with and my wet Mac experiences. Read the posts each am too

pacer3702 | @pacer3702 | May 23, 2023

In reply to @btednes2015 "Hi, sorry there must be a misunderstanding I have dry AMD. Our injection is also used..." + (show)

In that case, your doctor must be recommending the new injected medication for advanced dry AMD.

btednes2015 | @btednes2015 | May 23, 2023

Is this a common treatment for dry age macular degeneration? I’m concerned because he said it’s possible it will make it worse. I’m not sure it’s worth it.

ritanada | @ritanada | May 23, 2023

Well i understand the feeling I was diagnosed while having a check for cataract
It's now almost a year i was treated with Avastin injection intraocular
It's really annoying painful but after two days you keep going on one forgets
My vision has not deteriorated improved slightly so now the specialist recommended ILEA newer drug
Not yet received
I get sad but then i meditate thing good and accept
Maybe medicine cannot cure it really but at least stop loss of vision and in some cases improve

btednes2015 | @btednes2015 | May 23, 2023

In reply to @ritanada "Well i understand the feeling I was diagnosed while having a check for cataract It's now..." + (show)

Hi, thank you for your input is yours the wet or dry macular degeneration? Also, do you have to continue with the injections how often you have to get them

ritanada | @ritanada | May 23, 2023

In reply to @btednes2015 "Hi, thank you for your input is yours the wet or dry macular degeneration? Also, do..." + (show)

My OCT last one shows that there's not resorption of the leak
I took 5avastin each monthly
I need ILEA each month awaiting to get my insurance to accept.i hope to get better
In medicine many times one gets drugs that so called maintain but don't really resolve
However three ophthalmologists said the same so i am going through this pain treatment
As i said after two days one feels ok