I have PMR, as well as a high PTH level of 117, anyone else have this?

Posted by bruce1951vet @bruce1951vet, May 19, 2023

I was diagnosed 2 months ago with PMR. I started with 15mg per day of prednisone and am now down to 10mg per day. I am in the process of tapering down. My annual appointment for blood work the doctor noticed my PTH Intact level was 117. Could this be because of the prednisone I am taking for PMR?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Hello @bruce1951vet, Welcome to Connect. I also have PMR but it's currently in remission. Both times I was started at 20 mg prednisone but the only tests I had were CRP and ESR. Hopefully others with PMR who have also had a parathyroid hormone test can share experience. There is another discussion you may want to join to learn what others have shared on treating high levels of PTH.

--- Elevated parathyroid hormone (PTH): How is it treated?: https://connect.mayoclinic.org/discussion/elevated-parathyroid-hormone-pth/.

Here is some information from Mayo Clinic on possible causes:
"What is the most common cause of elevated PTH?
If your kidneys work poorly, usable vitamin D may decrease and calcium levels drop. This causes parathyroid hormone levels to go up. Chronic kidney failure is the most common cause of secondary hyperparathyroidism."
--- Hyperparathyroidism - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194.

Have you discussed the PTH levels with your doctor?

REPLY
@johnbishop

Hello @bruce1951vet, Welcome to Connect. I also have PMR but it's currently in remission. Both times I was started at 20 mg prednisone but the only tests I had were CRP and ESR. Hopefully others with PMR who have also had a parathyroid hormone test can share experience. There is another discussion you may want to join to learn what others have shared on treating high levels of PTH.

--- Elevated parathyroid hormone (PTH): How is it treated?: https://connect.mayoclinic.org/discussion/elevated-parathyroid-hormone-pth/.

Here is some information from Mayo Clinic on possible causes:
"What is the most common cause of elevated PTH?
If your kidneys work poorly, usable vitamin D may decrease and calcium levels drop. This causes parathyroid hormone levels to go up. Chronic kidney failure is the most common cause of secondary hyperparathyroidism."
--- Hyperparathyroidism - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194.

Have you discussed the PTH levels with your doctor?

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Hello johnbishop, Thanks for the welcome. I have an appointment with a Endocrinologist to discuss the high levels of PTH. The high levels of PTH were caught at my annual VA visit, and they recommended a Endocrinologist. Thanks for the other information you shared!

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@bruce1951vet

Hello johnbishop, Thanks for the welcome. I have an appointment with a Endocrinologist to discuss the high levels of PTH. The high levels of PTH were caught at my annual VA visit, and they recommended a Endocrinologist. Thanks for the other information you shared!

Jump to this post

Hoping you can provide an update after your appointment with the Endocrinologist.

REPLY
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