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Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
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@catalinae

Thank you for allowing me to vent and your explanation of "watch and wait" was helpful.
The print out was from the Leukemia and lymphoma society revised date of Jan.2012. When I started checking the meds they prescribed none were mentioned by anyone on the Mayo. That is probably the only reason I paid attention to the date.

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Replies to "Thank you for allowing me to vent and your explanation of "watch and wait" was helpful...."
Lori, Volunteer Mentor | @loribmt | May 21, 2023

I’m not sure if you’ve been to this site or not but there’s some good information on here and hopefully newer than the info you were handed.

Here’s the link for the Leukemia and Lymphoma Society regarding Waldenstrom macroglobulinemia
https://www.lls.org/search?search=WM
There are a number of articles on that page. Remember, you may not be needing any meds for some time, if ever. So please don’t be frighted off by things you read. I had a very aggressive form of leukemia 4 years ago and I am alive and thriving because of the powerful drugs I received. Better living through chemistry is now my motto. ☺️.
From past replies, I see you’ve been able to get quite bit of helpful information from @ejrquast for the Waldenstrom’s Macroglobulinemia Foundation, https://iwmf.com/join-the-iwmf/#
Have you been to that site yet for information and support?

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