Changes after Transplant

Posted by 2011panc @2011panc, Nov 22, 2016

I have learned that following a transplant there are many changes beyond your physical situation. What is your experience? Has your mood changed? Are you happier, calmer, more agitated, more anxious, more relaxed or something else? Do you feel you have changed emotionally, spiritually or mentally? Do you feel that your personality has changed? I am curious about more than physical. I appreciate your input on this issue.

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I haven't had that dream, and i haven't run out of meds, but I did have a '1st' mix-up a month ago!

After I took my 8AM immunosuppressant meds, I meant to take my mid morn vitamins, and I goofed, Big Time - I took my 8PM immunosuppressants instead. As soon as I swallowed, I realized what I had done, so I immediately called the Mayo Specialty Pharmacy and spoke to a pharmacist. He wanted to be absolutely certain to give me the best advice, so he told me he would call me back while assuring me that I would not pass out or anything in the meantime.
Later that afternoon, I got the information that I needed later after he had sent the information to my transplant coordinator who sent it to one of the physicians.
I did have to make the follow-up contact myself later on Friday afternoon due to no returned call from the transplant dept.
We veterans are still learning!

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Yes I can relate but I remember also how my transplant team was very insistent that I always carry my meds with me when traveling. But I also love my med app on my phone it's called Medisafe and besides always reminding me with an alarm and if im even slightly distracted I never hit taken until I have taken them. It also has an inventory section with refill reminders so I never run out. I highly recommend it because at least with me I can get distracted so easily.
Have a Blessed Day
Dana

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@coastalgirl

This is such a great topic. I am so glad that this has been brought to the table for discussion.
My kidney transplant was june 1, 2010. I was 47 and had an amazing career in court reporting so i was determined to get this transplant and move right back into my workaholic life full steam ahead.
It took me a couple years to even slow down enough to notice the physical and emotional changes that were happening to me because, honesty, I needed to keep working until I turned 62.
Well, needless to say, last yesr I had to acknowledge my inability to maintain this pace of life even after reducing my job responsibilities as much as possible.
I certainly have noticed a need for peace and a joy for nature and mother earth. The noise and hustle and bustle of life overwhelm me.
I am much more empathetic to others and their suffering and can almost feel their pain.
I find joy in listening to the birds and the sound of the ocean waves as i stroll our beautiful coast with my beloved Maltese Sydney or taking a leisurely hike up to a beautiful waterfall.
My body has succumbed to fibromyalgia and chronic fatigue and tinnitus after having my childhood asthma reactivate, but I am learning to create a more peaceful loving environment to surround myself in so that I can learn to live a long peaceful life on this earthly journey.
My prayer is that all my fellow transplant recipients find your oneness within yourself and have peace and contentment!!
Happy Holidays to All!!

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Thank you! Just what I needed to read!

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Thank you @rosemarya for referring me to this post.
I had a Kindey and Liver transplant two years ago. I had my first liver transplant at 17 and honestly cant remember that far back about how i felt. This second time around i have notied a change in my behavior., personality. I've always been a quiet person but I loved going out my early 20-3o's. I partied, hung out with friends alot. When the weekend came and i had nothing to do i felt likt i was missing out. Someone in another post asked if it was possible to adapt characteristics of our donors. My Donor second time around was an 18 years old young man, very energetic.
I have noticed since my surgery that I care less about getting out and partying. Im 39 years old and should still be up beat and wanting to hang out with friends, I think. I dont like leaving my house unless its necessary, I also dont like talking on the phone as much anymore. I love talking on the phone. When the weather is nice make it my mission to get out for walks. I hate being around crowds of people now, my apetite has changed. I'm not sure if this has. anything to do with after surgery but I like things to be peaceful. I dont like noise, I've also realized that i have some OCD tendencies that i didnt before.

Gtreat topic.

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Hello. This October it will 3 yrs for my liver transplant.
I was in hospital 2 months.
1 mo in ICU. So many drugs!
I also had a trech in my throat for 3 weeks .without talking. To get the nurse attention I use to throw stuff off my bed!! I became very depressed..crying..the whole bit! I came home and I think for the first 6 most.i
Felt suicidal..did not tell anyone cause I did not want to go to a crazy house.it worked itself out but I feel I have changed very much.i
Just go with the flow.mt doggie gives me laughter and love...this is a life changing event!

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@jackie421blfdgurl

Hello. This October it will 3 yrs for my liver transplant.
I was in hospital 2 months.
1 mo in ICU. So many drugs!
I also had a trech in my throat for 3 weeks .without talking. To get the nurse attention I use to throw stuff off my bed!! I became very depressed..crying..the whole bit! I came home and I think for the first 6 most.i
Felt suicidal..did not tell anyone cause I did not want to go to a crazy house.it worked itself out but I feel I have changed very much.i
Just go with the flow.mt doggie gives me laughter and love...this is a life changing event!

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Hi J@ackie421blfdgurl

I'm sorry to hear you had such a tough start after transplant.

I spent two weeks in the hospital after my Liver and Kindey transplant. My family and I thought it was too soon to go home but the doctors assured us that i would be fine and the organs were working well. within 24 hours i went to the back to the hospital because a stitch popped and was bleeding. I was super cautious after that. I hate haveing the trech in, to me it's the worst. I can remember getting us to walk hours after waking up from surgery and i also remember being bed bound once i got to my room. Having ppl attend to me is hard to accept evein if im in the hospital. I struggle with that and it sometimess makes me depressed. I've always been self sufficient. You just have to give yourself time to heal. Take it one day at a time. On days when im frustreated i allow myself to cry or do whatever im feeling at the time and then i do whatever i need to to cheer myself up.
I always try to remember that although what i've been through was rough, there are others out there either just like me or in worse situations.
Talking helps alot. Im glad that I decided to find myself a therapist to talk to. She may not always understand how i feel but it helps to get the frustration out. it's hard having to be strong for ourselves all the time.

Keep on!!!

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@jinja320

Hi J@ackie421blfdgurl

I'm sorry to hear you had such a tough start after transplant.

I spent two weeks in the hospital after my Liver and Kindey transplant. My family and I thought it was too soon to go home but the doctors assured us that i would be fine and the organs were working well. within 24 hours i went to the back to the hospital because a stitch popped and was bleeding. I was super cautious after that. I hate haveing the trech in, to me it's the worst. I can remember getting us to walk hours after waking up from surgery and i also remember being bed bound once i got to my room. Having ppl attend to me is hard to accept evein if im in the hospital. I struggle with that and it sometimess makes me depressed. I've always been self sufficient. You just have to give yourself time to heal. Take it one day at a time. On days when im frustreated i allow myself to cry or do whatever im feeling at the time and then i do whatever i need to to cheer myself up.
I always try to remember that although what i've been through was rough, there are others out there either just like me or in worse situations.
Talking helps alot. Im glad that I decided to find myself a therapist to talk to. She may not always understand how i feel but it helps to get the frustration out. it's hard having to be strong for ourselves all the time.

Keep on!!!

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Hi. Thanks for your reply...I have been wanting to go to therapy for long time. I am still working on that. I know there are a million people out there who are going thru a very horrible time in their lives. Do much hurt and sadness in the world.i am grateful for everything...but at times u let those feelin in and that is not a good thing. But life goes on . One foot in front of the other.

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