1. < Autoimmune Diseases

Pyoderma gangrenosum

Posted by aunkey @aunkey, Aug 12, 2021

2 yrs, 4 Drs, 4 diagnoses & unsuccessful surgery ending in this !
Supposedly mastectomy is the last option but MRSA & type 1 diabetes (50 plus yrs) makes it ultra risky but do I survive without surgery?
Rare case and no experts here. Considering Mayo

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

grammy82 | @grammy82 | May 18, 2023
In reply to @married40years "Thank you for your response I have unknowingly been dealing with my leg wounds for 2..." + (show)
@married40years

Thank you for your response I have unknowingly been dealing with my leg wounds for 2 years. Just found out positive diagnosis 2 months ago. I have had 3 debridements with skin grafts and every time it failed before proper diagnosis. I am on immune supresent drugs and steroids. Suppose to go for debridement tomorrow

Jump to this post

I read your post yesterday, and my heart aches...I decided not to respond since I saw that @aunkey had responded to you, so I was checking on you today.
I have to ask, if I may, have you gone to the Mayo Clinic? They will work with you in every way possible, and you will be treated by the best...they saved my life in 1985. I hope it is possible for you. 💞

REPLY
1 reply
married40years | @married40years | May 18, 2023
In reply to @grammy82 "I read your post yesterday, and my heart aches...I decided not to respond since I saw..." + (show)
@grammy82

I read your post yesterday, and my heart aches...I decided not to respond since I saw that @aunkey had responded to you, so I was checking on you today.
I have to ask, if I may, have you gone to the Mayo Clinic? They will work with you in every way possible, and you will be treated by the best...they saved my life in 1985. I hope it is possible for you. 💞

Jump to this post

Thank you for your concern and kind words. I am actually going in this morning to get another debridement and skin graft. They say my immune system is low enough that it may work

REPLY
1 reply
grammy82 | @grammy82 | May 18, 2023
In reply to @married40years "Thank you for your concern and kind words. I am actually going in this morning to..." + (show)
@married40years

Thank you for your concern and kind words. I am actually going in this morning to get another debridement and skin graft. They say my immune system is low enough that it may work

Jump to this post

Let me know how you do...! I'll be hoping for the best, as will everyone who has reached out. Mayo Clinic has many satellite offices, and it still may be very well worthwhile to seek their advice since you have been dealing with this...almost since Moses was a baby!!💞

REPLY
1 reply
married40years | @married40years | May 19, 2023
In reply to @grammy82 "Let me know how you do...! I'll be hoping for the best, as will everyone who..." + (show)
@grammy82

Let me know how you do...! I'll be hoping for the best, as will everyone who has reached out. Mayo Clinic has many satellite offices, and it still may be very well worthwhile to seek their advice since you have been dealing with this...almost since Moses was a baby!!💞

Jump to this post

I had the debridement and skin graft yesterday not a great morning I go to wound care Monday for a bandage change so I guess we will see how it is. Thank you for asking

REPLY
1 reply
aunkey | @aunkey | May 19, 2023

So much detail I’ve decided to screen shot my journal 5/12/19 - 10/26/21.

REPLY
2 replies
married40years | @married40years | May 19, 2023
In reply to @aunkey "So much detail I’ve decided to screen shot my journal 5/12/19 - 10/26/21." + (show)
@aunkey

So much detail I’ve decided to screen shot my journal 5/12/19 - 10/26/21.

Jump to this post

If I kept a journal it would probably look like yours but mine has only been going on for two years. I just heard of a new drug that's successfully treated pg patients and cured the wounds in twelve weeks

REPLY
aunkey | @aunkey | May 19, 2023

MRSA and 58 yrs type I diabetes complicated my healing. I’m on an insulin pump with Medicare. Another recent development- covid/ ICU/pneumonia trumped MRSA and now I’m clear! Bizarre. Yes, I’m fully vacxed from tge got go. Probably saved my life. I’m on #9 as it is. Have a great day!

REPLY
grammy82 | @grammy82 | May 19, 2023
In reply to @married40years "I had the debridement and skin graft yesterday not a great morning I go to wound..." + (show)
@married40years

I had the debridement and skin graft yesterday not a great morning I go to wound care Monday for a bandage change so I guess we will see how it is. Thank you for asking

Jump to this post

Certainly hope all goes well...and I'm sure you follow all instructions. Please lay low and I'll be looking for good news on Monday. My very best to you💞

REPLY
grammy82 | @grammy82 | May 19, 2023
In reply to @aunkey "So much detail I’ve decided to screen shot my journal 5/12/19 - 10/26/21." + (show)
@aunkey

So much detail I’ve decided to screen shot my journal 5/12/19 - 10/26/21.

Jump to this post

Oh, my heart. Whenever I think I have a problem...I'll think of you gals and this ongoing saga. What courage both you and @married40years have...and many more people, I'm sure. My prayers for you both.💞

REPLY
View MoreView Less
Please sign in or register to post a reply.