Endless withdrawal from benzos and pregabalin

Posted by chaos @chaos, Jun 3, 2022

Hi,
I’m at my wit’s end. I have been withdrawing for so so long that euthanasia is looking good to me. Since last November I have withdrawn from clonazepam and closely followed by pregabalin. Actually still struggling with the later drug. I am not sleeping, full of anxiety, fear and wanting to off myself. It feels like every week I reduce the drug, I lose hope that things will get better. I don’t have anyone in the medical system that understands withdrawal from these drugs.
It would be good to connect with people that have gone through this process and have improved their lives.
Also, I’m not sure if there is a discussion already in place for this topic.

Interested in more discussions like this? Go to the Addiction & Recovery Support Group.

@ecline84

I've detoxed off alcohol which was pretty bad. Not something to mess around with. Definitely dangerous dont go down that road. But I've also had heroin withdrawals at least a dozen times, and I will admit that sucks too but not bad enough to relapse.

Xanax? Oh god, please anyone that reads this please don't go past like 2 to 4 weeks on any benzo. I was doing like 8 mg/day for about a year. This was all recreational so when I ran out I was at the mercy of my dealer. Had a seizure after like day 4 or 5 quitting cold turkey. Ended up having 3 total that day. Then the anxiety, zero sleep for days on end I wish I would've researched this first. So bad. I'll do heroin withdrawals any day over benzos. I did ibogaine which resets your opioid receptors in your brain, and I would recommend it if you are pretty deep in opiates. But it's a psychedelic trip, can kick your butt mentality if you aren't prepared. So research first. But it works. Ayahuasca was tougher honestly, that is an ass kicker, so definitely be mentality prepared for that if you try it. I've done Ayahuasca like 10 times and a couple were pretty frightening, it is gonna bring the deepest part of your soul and subconscious to the surface, along with some serious energy from the universe that you didn't even know existed. It's mentality tough and might give you a wake up call which honestly was necessary for me but I was so relieved when it finally ended. Amazing soul cleanser but prepare yourself first and do it with a shaman who can guide you. But back to the subject, stay away from benzos. They are amazing for anxiety and sleep but no way do I ever want to do that crap again. Literally screws up your brain, and I am sorry for you guys that did it for multiple years. Just quitting cold turkey after a couple months was bad enough to make me relapse. I hope someone reads this before they get too deep. It's hell and don't screw up like the rest of us here. Like I said, I've done almost everything. Crazy mushroom trips, peyote, dmt, ketamine, week long trips in the amazon doing ayahuasca, and others I won't get into but definitely had some spiritual ass kickers. Benzos? The worst by far. I prescription is fine. After that figure something out because you will regret it if you go too far. Pretty much 24/7 panic attack feeling for who knows how long. Could be weeks could be months. Just depends. I bought plenty of supplements on amazon, some that replenish dopamine and serotonin. L dopa and L theanine will help you get your dopamine back. But if anyone has questions feel free to ask. Support is big when quitting benzos. Taper and reset your brain. If you haven't gone past 30 days then I hope you read this somehow first. Not worth it. Just a warning but hang in there and if you have depression or anxiety try tms therapy, acupuncture, meditation, reiki, sound tables, float tanks, anything natural. Anxiety sucks but there's holistic ways to beat it. Chemicals aren't the answer

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Well said! Thank you. I was thinking about trying ayahuasca as did a great deal of LSD in the 1960's and liked it very much. However, I am starting to think I may be too old for all the crap. I have been clean of benzos for 2 months. It takes a great deal of grit to do it. What helps me is when . . . I went to a new doctor to establish care for high blood pressure and hypothyroidism. I didn't put valium on my list of prescriptions I am taking. He asked me if I was still taking valium because HE would NOT be prescribing it for me. Like I was drug seeking. Doctor shopping. Does anyone know how to get the pharmacies to stop disclosing my prescription medication list?

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If benzos no longer work, you definitely took them way too long. Honestly you can try whatever crap prescriptions your doctor will try to give you, but opiates have been the way I quit benzos. 3 or 4 weeks tops, then quit opiates. By this time you should be ready to kick benzos. If not, cut the dose and taper for a couple weeks. Then cycle opiates again and taper each and within 6 months or a year you will have the doses low enough that you can quit cold turkey. But you can skip the withdrawals if you cycle between these 2 they will offset the negative feelings of the other each time you switch. Just saying what worked for me. Not what a doctor would recommend, but I know the feeling. I had to do it on my own. Doctors never helped

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@lindasmith1222

Well said! Thank you. I was thinking about trying ayahuasca as did a great deal of LSD in the 1960's and liked it very much. However, I am starting to think I may be too old for all the crap. I have been clean of benzos for 2 months. It takes a great deal of grit to do it. What helps me is when . . . I went to a new doctor to establish care for high blood pressure and hypothyroidism. I didn't put valium on my list of prescriptions I am taking. He asked me if I was still taking valium because HE would NOT be prescribing it for me. Like I was drug seeking. Doctor shopping. Does anyone know how to get the pharmacies to stop disclosing my prescription medication list?

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You're medical record is in a database and no matter where you go every doctor will see it before they see you. Trust me I've tried many doctors. They will never give you addictive drugs, so don't even bother asking. If you want to taper or use your own method you will probably need to just go it alone. If I have friends that can get it for me that's one way, or dark web will be a for sure thing. Not telling anyone to do anything illegal. Do what you think is right. But if doctors can't help, then you need to do something when your health is at a critical level. Maybe Mexico? I'm sure you can get what you need down there

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Clarification: I have never intended on asking ANY doctor for addicting drugs of any kind. I want to forget the past and having it brought up and feeling the need to explain that I never asked for valium in the first place. When my house burned down in Arizona, my doctor of 10 years prescribed me valium for sleep. I became addicted and he continued to prescribe valium for me and to this day he would. I weaned myself off, not an easy task, using the guidelines I found on this site. I moved to SC and being from Arizona, I am not interested in going to Mexico for anything. In the condition Arizona is in due to illegal border crossings and the cartels running the state, I would never recommend someone go to Mexico. Americans go missing all the time, it is no longer reported on as it occurs so often.

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@horowitz71

I'm going cold turkey off Benjos--was cut off abruptly, but for some reason, my doctor oferred to write me a prescription for Zolpidan/Ambien. I wanted to accept the prescription, but declined because my goal it to live without Benjos or other tranquilizers, which were giving me a difficult enough problem. What is wrong with doctors these days? I'm beginning to mistrust all of them. I thought they had stopped getting kick-backs from pharmaceutical sales persons. My goal is to live out my days drug-free and face my problems head on without masking my emotions and feelings with drugs--prescription or otherwise. I'd appreciate how others feel about this.

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Cold turkey isn't a good idea unless you take them occasionally. You can die going cold turkey on two drugs - Benzos and alcohol. I had convulsions and was in the hospital. Be careful. Best of luck.

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@chaos

I am a bit confused as to which dose you are asking about. I was on 4mg of clonazepam on and off over 30 years. I was on 300mg of pregabalin since November of 2021. I came off the drug one night at the insistence of a pharmacist due to some serious side effects. I was completely crazy with withdrawal symptoms and told to tough it out since it would only take 1-2 days. This was not true at all. I went back on 300mg and have been reducing weekly. I am currently at 75mg.
I also have high dose bio-identical progesterone that has been helping through all of this. This drug would be at 1200mg per day. Without it, I fear that I would have died by now.
Hope this helps.

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How long did it take you to come off the 4 mg a day ofclonazepam? I'm asking because I've been on lorazepam for 25 years. 3 mg a day. I'd be agoraphobic without them so my doctor said I could stay on them. But yesterday he told me it would take years to wean off the lorazepam! Years????

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Ashton manual. It was my guide to getting completely off benzos. First, my doctor switched me from lorazepam to clonazepam. I shared the manual with my doctor. He approved. Then I followed the guide. It took me less than a year. The last 1/2-1 mg was the hardest for me because of 'mental gymnastics' and fear. So, the last small dosages I took my time and was kind to myself. It has been 3 months clean for me, but I do not have agoraphobia. I was taking benzos for sleep issues. I still have sleep issues, but I am retired so I get up in the middle of the night, do something, get tired, go back to bed and get up about 8:00 in the morning for the day. I hope this helps.

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I admire you. Keep on keeping on.
Valleyb

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@yvonne55

How long did it take you to come off the 4 mg a day ofclonazepam? I'm asking because I've been on lorazepam for 25 years. 3 mg a day. I'd be agoraphobic without them so my doctor said I could stay on them. But yesterday he told me it would take years to wean off the lorazepam! Years????

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I also have been on valium for 20 years for pelvic muscle spasms. It stopped working years ago but have been unable to stop. I decided to taper 12 years ago. My GP doc at the time told me to go from 35mg to 0 in 6 days. Had convulsions and ended in the hospital emergency room. Was reinstated at 20 mg by a psychiatrist but of course terrible disabling withdrawal. Got a UTI. Urologist put me on Cipro which displaced Valium so went thru cold turkey again. Have been going down ever since. Sometimes holding for awhile but always in the ups and downs of withdrawal.
I had gotten down to 2.4 mg daily. I got a yeast infection and was prescribed fluconazole 3 days then once a week for 4 months. Turns out it is like eating grapefruit. So the Valium had built up in my system so when I stopped thé fluconazole I was in terrible withdrawal again. My psychiatrist told me I had basically doubled my dose. So I have started tapering again.
I am currently on 3.4mg daily and sometimes feel like I can’t go on.
I feel that the medical profession has disabled me.
Almost no doctors know how to get you off Benzos only how to prescribe them. There were 92 million prescriptions written last year and increasing.
The best information I have found is the Benzo coalition. They were responsible for the new FDA guidelines. Dr Christie Huff is on the board. She is a cardiologist who has been damaged by Benzos. You are your own doctor and hopefully like me, you find a doc who will allow you to direct your own taper. And one day we will be Benzo free.

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Hi kathy! What did you mean your cardiologist was damaged by these things? All I know was 25 years ago my doctor prescribed them and refilled and refilled and never once said "hey do you know what these are and what they'll do eventually "? Now I am terrified of withdrawal and already had a seizure after running out and unable to get more due severe snow. Mind you my mom took 1 mg a day and got tired of begging for refills without a lecture so she just stopped. No problem no symptoms. I just dont know. I'm on them for agoraphobia so may never be off them.

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