How do you handle uncooperative and manipulative behaviors?

Posted by cmiddlet @cmiddlet, Mar 11, 2023

How do you handle uncooperative and manipulative behaviors?

I'm at my wits end. It would be so much easier if all this was over.

My 51 year old LBD husband won't cooperate (go to therapy with me and our 12 and 15 year old children.). He blames me for his LBD. He manipulates and alienates the children from me. Something simple as "i need to leave now to get the kids to school on time" becomes a tirade on how we are wrong and everything has to be about him all the time and RIGHT now. He refuses to take his medication and insists all his neurologists are wrong and we are all delusional.

It is literally sucking our souls. He won't come out of denial about his diagnosis. He won't respect anyone's boundaries. It has become the most miserable existence ever.

Are most LBD patients like this? Are they all uncooperative jerks? Is it better to leave and cut our losses and let him deal with himself, find someone else willing to put up with it?

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@nemo1

My dad had frontal lobe trouble and he became very selfish and self centered. It would seem his inhibitions were diminished as everything was about him. Some issues were a battle. Eating. Sometimes he did sometimes he refused. After a while we soon realized this was due to condition and not so much reflective of his prior demeanor.

When I realized that was the case I began to accept this was not dad anymore. That it was a different person. There was grieving with this process. But a new peace was found when dealing with the poor attitudes. Realizing they cannot help it and aren’t intentionally being abusive. They lack the insight and self reflection. Its like it evaporated.

I hope the situation gets better for your family.

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@nemo1 My friends father had dementia and was so angry and combative they stopped visiting him as they didn't want to deal with his meanness and he didn't remember anyone at the last few years anyway. They had to accept that wasn't him but at the same time didn't want to remember him that way.
You are so right. i had to realize i was using words like combative etc but realized it wasn't her trying to be that way. My dad said this week she is being unreasonable. No she is being a patient with dementia who doesn't understand reason (he tries to reason with her. example: honey don't you want to be dry instead of wet bedding, etc for over 30 minutes sometimes). I just go in and tell her I am changing her and she might be angry but in 10 min she will forget and thank me for helping her with everything. Can't reason with unreasonable illness.

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@buggirl55

@nemo1 My friends father had dementia and was so angry and combative they stopped visiting him as they didn't want to deal with his meanness and he didn't remember anyone at the last few years anyway. They had to accept that wasn't him but at the same time didn't want to remember him that way.
You are so right. i had to realize i was using words like combative etc but realized it wasn't her trying to be that way. My dad said this week she is being unreasonable. No she is being a patient with dementia who doesn't understand reason (he tries to reason with her. example: honey don't you want to be dry instead of wet bedding, etc for over 30 minutes sometimes). I just go in and tell her I am changing her and she might be angry but in 10 min she will forget and thank me for helping her with everything. Can't reason with unreasonable illness.

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Absolutely. Oh my goodness…that sounds like my mom and I’m sure many people. She - every time dad would dig his heels in refusing to eat, would try and negotiate and debate his lack of eating. Trying everything to get him to want to. She spent so much time and reaching her about that and to try to get her to accept this is not about his stubborn will. Its about his sickness. Thats the only way to see it (in my estimation). There was so much waisted time. I know she felt less than as a caregiver if she could not get the man who never missed a meal to eat. She felt responsible. But I tried to explain in delicate terms (because tensions are high with that going on). In the end, she resigned to accept but it was near the end when that happened. It is hard to say goodbye when the person is right in front of us. Even if it is a notion, I have found emotionally it saves a lot of heartache in one way. I remember feeling guilty for these initial thoughts, but realized right away asking myself why I am feeling guilty. We do what we can when we can. If and when they let us. You are so right - you can’t reason with an unreasonable illness.

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@nemo1

My dad had frontal lobe trouble and he became very selfish and self centered. It would seem his inhibitions were diminished as everything was about him. Some issues were a battle. Eating. Sometimes he did sometimes he refused. After a while we soon realized this was due to condition and not so much reflective of his prior demeanor.

When I realized that was the case I began to accept this was not dad anymore. That it was a different person. There was grieving with this process. But a new peace was found when dealing with the poor attitudes. Realizing they cannot help it and aren’t intentionally being abusive. They lack the insight and self reflection. Its like it evaporated.

I hope the situation gets better for your family.

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Your remarks about “…this was not dad anymore” prompts this reply. My wife has MCI (Mild Cognitive Impairment) a pre-condition sometimes to dementia. Her most dominant of the 3 symptoms is emotional impact. Anger, hostile behavior comes and goes along with ANTs (Automatic Negative Thoughts). Dark. At times she is far from her old self; as you said a “Different Person”. While imperfect, my means to contend with this is to use a pair of pseudonyms. Resulting in 3 names: her natural given name, and two nicknames. (She revolves among these personas)
One nick name has been ‘GG’. Fun, happy, and lovable. Another nick name is ‘Gertrud’: angry, hostile, dark and patently negative. If I had to be around Gertrud all the time, that would make ME useless, and I’d bail out. However, I can deal with Gertrud part time, and when it’s unbearable I get away for awhile, and re-center (as opposed to resent her 😊 😵‍💫)
And one final thought in the spiritual dimension. We are called to ‘light a candle, rather than curse the darkness’ At times that candle is lit for her, at really dark times that is fruitless and the candle is lit for others. And that lighting generates renewal in me, and gift from Him.

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@randywhite

Your remarks about “…this was not dad anymore” prompts this reply. My wife has MCI (Mild Cognitive Impairment) a pre-condition sometimes to dementia. Her most dominant of the 3 symptoms is emotional impact. Anger, hostile behavior comes and goes along with ANTs (Automatic Negative Thoughts). Dark. At times she is far from her old self; as you said a “Different Person”. While imperfect, my means to contend with this is to use a pair of pseudonyms. Resulting in 3 names: her natural given name, and two nicknames. (She revolves among these personas)
One nick name has been ‘GG’. Fun, happy, and lovable. Another nick name is ‘Gertrud’: angry, hostile, dark and patently negative. If I had to be around Gertrud all the time, that would make ME useless, and I’d bail out. However, I can deal with Gertrud part time, and when it’s unbearable I get away for awhile, and re-center (as opposed to resent her 😊 😵‍💫)
And one final thought in the spiritual dimension. We are called to ‘light a candle, rather than curse the darkness’ At times that candle is lit for her, at really dark times that is fruitless and the candle is lit for others. And that lighting generates renewal in me, and gift from Him.

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What a lovely response. Thank you so much. We all used nicknames for dad. We called him Grumpy after one of the seven dwarfs and another which I cannot recall for the life of me. He responded positively later in the disease to expressions or sounds that were humorous. I sang to him before he passed. He loved music. Spiritually, I offer up my day to Him and to use my thoughts and prayers to help myself and others. The one thing He can use is what at times seems useless to me which is pain. Pain of any and every kind. It can be used for HIs purposes. Stay strong. If I didn’t have faith, I would be in a different place. My dad loved to listen to music all the time. Big bands. I miss my dad. I will light one of my candles for him right now. Thank you for your reply. Blessings.

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@buggirl55

Interesting. We have hospice aides and nurses coming in at this point. She is unable to take meds any other way. So they advised us to crush them

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Hi @buggirl55 Not sure if this helps or not, but during my wife's journey there came a time we had to switch to liquid or patch forms of her medications. Not sure about your situation but it really was a huge help for my wife.

Strength, Courage, & Peace

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@nemo1

What a lovely response. Thank you so much. We all used nicknames for dad. We called him Grumpy after one of the seven dwarfs and another which I cannot recall for the life of me. He responded positively later in the disease to expressions or sounds that were humorous. I sang to him before he passed. He loved music. Spiritually, I offer up my day to Him and to use my thoughts and prayers to help myself and others. The one thing He can use is what at times seems useless to me which is pain. Pain of any and every kind. It can be used for HIs purposes. Stay strong. If I didn’t have faith, I would be in a different place. My dad loved to listen to music all the time. Big bands. I miss my dad. I will light one of my candles for him right now. Thank you for your reply. Blessings.

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It is truly a blessing to receive your appreciation and thoughts. I like the ‘grumpy’ pseudonym, as it touches the issue, but makes light of it.
I agree pain can be used for His purposes. Over the past few months he had given me pain, and it has prompted me to consider, why? Well, one outcome is to permit me to develop sympathy for my wife. Another outcome is to prompt me to correct my posture (which in our generation can insidiously degrade) With better posture, and less associated discomfort and pain, I can be a better servant for Him for longer.
Blessings, Randy

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@nemo1

Absolutely. Oh my goodness…that sounds like my mom and I’m sure many people. She - every time dad would dig his heels in refusing to eat, would try and negotiate and debate his lack of eating. Trying everything to get him to want to. She spent so much time and reaching her about that and to try to get her to accept this is not about his stubborn will. Its about his sickness. Thats the only way to see it (in my estimation). There was so much waisted time. I know she felt less than as a caregiver if she could not get the man who never missed a meal to eat. She felt responsible. But I tried to explain in delicate terms (because tensions are high with that going on). In the end, she resigned to accept but it was near the end when that happened. It is hard to say goodbye when the person is right in front of us. Even if it is a notion, I have found emotionally it saves a lot of heartache in one way. I remember feeling guilty for these initial thoughts, but realized right away asking myself why I am feeling guilty. We do what we can when we can. If and when they let us. You are so right - you can’t reason with an unreasonable illness.

Jump to this post

@nemo1 makes complete sense. we are definitely doing all we can when we can lol

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