1. < Autoimmune Diseases

Is this RLS (restless leg syndrome)?

Posted by Darlia @darlia, Oct 14, 2017

I have been a member of Mayo Connect in other groups too. I am trying to find out if the symptoms I have in my muscles is connected to anything I already have been diagnosed with.
Also, would it be a Rheumatologist or Orthopedic Dr. That I need for this? I asked the Rheumo and they said it's nothing that they handle. But I would think they would because it feels like muscles.
At night while relaxing, my legs get restless, want to tense up, like on rubber bands. Then my right arm, just my forearm starts to feel the same. Then it makes me put my hand into a "claw" as it intensifies.
Any clues anyone?
@darlia

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

btednes2015 | @btednes2015 | May 14, 2023

Hi I’m new to connect. Just started taking gabapentin forRLS. Am scared to death if it but desperate can anyone put my mind at ease. Is this medication safe?

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | May 15, 2023
In reply to @btednes2015 "Hi I’m new to connect. Just started taking gabapentin forRLS. Am scared to death if it..." + (show)
@btednes2015

Hi I’m new to connect. Just started taking gabapentin forRLS. Am scared to death if it but desperate can anyone put my mind at ease. Is this medication safe?

Jump to this post

Hello @btednes2015, Welcome to Connect. It can be a little scary sometimes when taking a new medication. @zenk, @sunny1971, @willows and others may be able to share their experience with you.

Have you discussed your question with your doctor or pharmacist?

REPLY
sunny1971 | @sunny1971 | May 15, 2023

Hello, my fiancé has RLS extremely bad he’s had it since he was in his 30s and now he’s in his 60s inherited from his mother. His two sisters have it. He takes Carbo level which is a medicine to treat Parkinson’s but I think now he’s immune to it I wish there was a new medicine out there for the RLS ppl.hope it helps!

REPLY
2 replies
btednes2015 | @btednes2015 | May 15, 2023
In reply to @sunny1971 "Hello, my fiancé has RLS extremely bad he’s had it since he was in his 30s..." + (show)
@sunny1971

Hello, my fiancé has RLS extremely bad he’s had it since he was in his 30s and now he’s in his 60s inherited from his mother. His two sisters have it. He takes Carbo level which is a medicine to treat Parkinson’s but I think now he’s immune to it I wish there was a new medicine out there for the RLS ppl.hope it helps!

Jump to this post

This does seem to be working. I’ve been in it for 4 days now and no issues with it

REPLY
covidstinks2023 | @covidstinks2023 | May 15, 2023
In reply to @sunny1971 "Hello, my fiancé has RLS extremely bad he’s had it since he was in his 30s..." + (show)
@sunny1971

Hello, my fiancé has RLS extremely bad he’s had it since he was in his 30s and now he’s in his 60s inherited from his mother. His two sisters have it. He takes Carbo level which is a medicine to treat Parkinson’s but I think now he’s immune to it I wish there was a new medicine out there for the RLS ppl.hope it helps!

Jump to this post

Several years ago I was given Flexeril 5 mg (a prescription muscle relaxant) and it stopped the RLS completely. A mild muscle relaxant is worth a try. I couldn't tolerate Gabapentin. Hugs & Prayers....

REPLY
2 replies
btednes2015 | @btednes2015 | May 15, 2023
In reply to @covidstinks2023 "Several years ago I was given Flexeril 5 mg (a prescription muscle relaxant) and it stopped..." + (show)
@covidstinks2023

Several years ago I was given Flexeril 5 mg (a prescription muscle relaxant) and it stopped the RLS completely. A mild muscle relaxant is worth a try. I couldn't tolerate Gabapentin. Hugs & Prayers....

Jump to this post

I wonder why my doctor didn’t offer that long as her about it what sentence did you experience on the gabapentin?

REPLY
1 reply
btednes2015 | @btednes2015 | May 15, 2023
In reply to @btednes2015 "I wonder why my doctor didn’t offer that long as her about it what sentence did..." + (show)
@btednes2015

I wonder why my doctor didn’t offer that long as her about it what sentence did you experience on the gabapentin?

Jump to this post

Sorry about that I was asking what symptoms did you experience from gabapentin

REPLY
1 reply
covidstinks2023 | @covidstinks2023 | May 15, 2023
In reply to @btednes2015 "Sorry about that I was asking what symptoms did you experience from gabapentin" + (show)
@btednes2015

Sorry about that I was asking what symptoms did you experience from gabapentin

Jump to this post

I felt like a zombie even on the lowest dose of Gabapentin, 100 mg. But, I am ultra senstive to meds and take about 1/4-1/2 of what a normal person takes. A lot of folks can tolerate Gabapentin and get great results.
Praying for you my friend!

REPLY
1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | May 15, 2023

@btednes2015 I don’t know what’s worse, dealing with RLS or dealing with a new medication! I’ve has RLS for more than 10 years, but didn’t know I could take medications for it. I entered the link to Mayo Clinic’s website for drugs. This lists lots of side effects, but you should know that drug companies are required to list ALL the effects even if only one person experienced it.
https://www.mayoclinic.org/drugs-supplements/gabapentin-oral-route/side-effects/drg-20064011
I hope this sets your mind at ease a little.
Can you post the lists, you find on the site, in the bathroom until you become more comfortable?

REPLY
View MoreView Less
Please sign in or register to post a reply.