Anxiety after complete hysterectomy

Posted by anon808 @anon808, Oct 17, 2022

I was great and healed quickly after my hysterectomy. About 9 weeks into recovery I started to feel a bit down and anxious. Almost starting week 12 and I wake up shaky and nauseous. It’s like my cortisol numbers are off. I’m very anxious and for years I’ve dealt with ocd intrusive thoughts and they have come back too. I went to my gyn but he felt it could not have been the surgery since I was post menopause. I’m going to my regular doc this week. I really feel like the surgery triggered something chemically. I want it to settle down. It would be nice to be heard. I can’t take hormones because I’m on a blocker to fight DCIS. However, I did ask my oncologist if I could come off for a bit to see if I can get back to normal. It’s been rough lately.

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@anon808

My TSH was .38, I have an Endo doctor now. Waiting for additional blood work. Starting prednisone. This is going to be a much longer journey than I was expecting. Also, started Zoloft. Hope to feel more like myself soon.

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Hi anon808, hope you are doing better now. How has been been going with you lately? I've experienced very similar symptoms 5 months after hysterectomy (post menopausal) and am wondering whether you can shed some light on your experience and what has helped you in the process. Thank you for creating this thread, it has been very supportive.

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I wish I could be more hopeful. Going on month 8 and still no decisions. I had a nodule biopsy, it was benign. Yay. Begged a surgeon for RFA, she said they won’t do hot nodules. My endo halved my methimazole, so I’m on 2.5 per day. Checking my blood next week. It’s a horrible game of wait and see. I might be better at playing it if I wasn’t in fight or flight a lot. Good luck, I hope you’re doing okay. ❤️

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@anon808

I wish I could be more hopeful. Going on month 8 and still no decisions. I had a nodule biopsy, it was benign. Yay. Begged a surgeon for RFA, she said they won’t do hot nodules. My endo halved my methimazole, so I’m on 2.5 per day. Checking my blood next week. It’s a horrible game of wait and see. I might be better at playing it if I wasn’t in fight or flight a lot. Good luck, I hope you’re doing okay. ❤️

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I just visited my pcp today and requested to get my thyroid checked. Hopefully all will be okay, the waiting game is really frustrating. Though I'm wondering whether the hysterectomy decreased my estrogen levels, causing anxiety. But both my doc and gyn brushed it off saying my estrogen levels are already low due to being post menopausal. They might be right, but i know that ovaries post menopause still produce a certain amount of estrogen and progesterone, and now it probably went down to nil(?). I just want to know whats causing my anxiety, its been really difficult sleeping at night, i dont want to rely on sleeping pills. Good luck to you too!

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@billyb123

I just visited my pcp today and requested to get my thyroid checked. Hopefully all will be okay, the waiting game is really frustrating. Though I'm wondering whether the hysterectomy decreased my estrogen levels, causing anxiety. But both my doc and gyn brushed it off saying my estrogen levels are already low due to being post menopausal. They might be right, but i know that ovaries post menopause still produce a certain amount of estrogen and progesterone, and now it probably went down to nil(?). I just want to know whats causing my anxiety, its been really difficult sleeping at night, i dont want to rely on sleeping pills. Good luck to you too!

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OMG, I started with my gyno after the anxiety got so intense. I said look something is wrong with me and I think it’s from the hysterectomy and he’s like, oh no, it couldn’t be the hysterectomy, you’re post menopausal. I still remember leaving his office that day devastated. Then I went to my PCP and I said look you have to help me, something is not right. I’ve never had anxiety like this before. I cannot break it. He took blood and found out my TSH was low. It took so much effort to try to get these doctors to listen. You, at the very least need a full thyroid panel. And I agree on the ovaries making at least a bit of hormone. In fact, I have to take an anti-hormone blocker because I had breast cancer in 2019 and I wanted to stop it after my hysterectomy. My oncologist said to keep taking it, because the adrenals produce estrogen as well. don’t give up you have to be your own advocate. I can’t believe something so small can affect our body in so many ways. Keep us posted.

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Hi. I’m new to this group. I just had a radical hysterectomy because of endometrial cancer, stage one. Literally, three days after the surgery, My mood just plummeted. I have now been on an estrogen patch for four weeks. Waiting for it to kick in. I am going through radiation, my last treatment today. Only three treatments total. I can’t believe how badly/low I have felt. Surgeon did not think I would have any trouble because I was 65 but boy was she wrong. And God bless her. She saved my life!

I am going to work with a wellness clinic who will look at the whole body. Looking forward to that.

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@lseeber58

Hi. I’m new to this group. I just had a radical hysterectomy because of endometrial cancer, stage one. Literally, three days after the surgery, My mood just plummeted. I have now been on an estrogen patch for four weeks. Waiting for it to kick in. I am going through radiation, my last treatment today. Only three treatments total. I can’t believe how badly/low I have felt. Surgeon did not think I would have any trouble because I was 65 but boy was she wrong. And God bless her. She saved my life!

I am going to work with a wellness clinic who will look at the whole body. Looking forward to that.

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Welcome, @lseeber58. Congrats on completing radiation treatment. I invite you to join the discussions about endometrial cancer in this support group:
- Gynecologic Cancers Support Group https://connect.mayoclinic.org/group/gynecologic-cancer/

It sounds like your surgeon thought that the effects of a hysterectomy wouldn't be so hard because you were already post-menopausal before surgery. Is that correct?

Are you taking progestin as well as estrogen? Did you also talk to your cancer team about taking estrogen via the patch?

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