← Return to Apical Hypertrophic Cardiomyopathy, Tachy & Myocardial Bridging

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@danab

Hi eedney welcomed to connect, Yes please ask any question you like. I started out with local cardiologist who refed me to a EP cardiologist who specialize in the electrical parts of the heart during my pacemaker days. I went thru 2 different ons and my last one was the one that was concerned we were running out of options and suggested an evaluation to see if I would be a good candidate for transplant. I live in Arizona, and he was familure with Mayo Clinic and had contacts there. So, he set me up to be sent there just for an evaluation, if the need arouse that part would be documented and speed up the process. Well I was transferred to Mayo from a hospital that this EP doctor had just been treating me at. He had just done my 6th ablation and that's when he felt it was probably the next step.
So at Mayo they work as a team of doctors who care for you and at the moment there are 5 in the team. they rotate and typically in a given month you would see a different one each week. Now at first i was concerned about this but actually Mayo does it well. They all work for Mayo and meet every week to discuss cases. and each week one may handle the office visits while another is on the hospital floor and another doing surgical procedures etc. The fact they all work for Mayo is a plus and it's like having a staff of well-trained doctors looking at each patient. The only exception is the actual transplant surgeon is part of the team but only does transplants as he is basically on 24 hour call to be ready whenever a Heart is available. But the whole time Mayo is on top of every aspect. So I'm not sure how other great hospitals do it but my experience is all Mayo Clinic since it was determined I needed a transplant. I still maintain a relationship with a local cardiologist in case of an emergency close to home but most of my care now is thru Mayo for heart related issues. The saying is once a Mayo patient always a Mayo patient. They will always be there to monitor the transplant.
I hope that answered the question. Are you looking at the possibility of a transplant?

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Replies to "Hi eedney welcomed to connect, Yes please ask any question you like. I started out with..."

Thank you so much for this wonderfully detailed answer. I believe the Mayo Clinic is rated the very best. I live in western NC am 61 years and was diagnosed with IHSS now called HCM in 1997. I have a familial history of the same. I continued with raising family and working until now. Just with a few meds. But now things are much worse. I have apical hypertrophy and ablation may or may not work but still have never tried it and on Monday my cardiologist suggested heart transplant which scares me so. Thank you again and I wish you all the best and many days of happy health!!