What are the take always from recently getting a bronchoscopy done to

Posted by ainek @ainekrech, May 1, 2023

I recently had a bronchoscopy done to see what antibiotics should be taken or not taken. Findings of abnormal cells and some atypical cells, but negative for most stains. Negative for malignancy.
Still having CT done every three months for growing lymph nodules. Watching a couple of one connecting the liver to my stomach.
Are others having multiple issues too?

I have problems with kidneys too.

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@sue22

Hi Rick
Very sorry to hear what you are dealing with right now. I hope you get some better news very soon. If you would like to share, what fungal infection is affecting you and what is prescribed for that? I have Bronchiectasis and have had a fungal infection since 2014 ( trichosporon mycotoxinivorans) and am looking to learn more from others who have gone through this. I was on various triazole meds for 6 years without clearance but achieved improved symptoms . In Aug 2021 then diagnosed with M. Chimera. Thanks if you want to share any additional info.

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Aspergillus, I am in my 6th month of voriconazole.

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@ainekrech

I received a phone call from my pulmonary doctor with some results from the bronchoscopy. I have pneumonia and haemophus influenza. Other sputum cultures are still growing with another appointment to discuss results on the 17th of May. The doctor has put me on Levaquin for 14 days. In July I will have a CT to monitor the lung nodules and and a paraesophageal and solitary gastrohepatic lymph node. Keep monitoring, I quess...

Thank you for the information on this site. It is always so helpful.

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I’ve had bronchiectasis for about 10 years but have recently taken a nose dive after air travel. I waited five weeks to get home (too sick to travel) and then had a culture done and had those same bacteria growing (pneumonia and haemophus influenza). Did the Levaquin work? I was out on Cefdinir and no difference (it’s only been three days). Did the Levaquin kill the bacteria?

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I’ve only had three days of 14 done so far. Now have a plugged ear too (6th day). Going in tomorrow if that isn’t better. The doctor said the only medicine that would get rid of both would be the Levaquin. I’ll let you know after a week if it works!
We have to just keep plugging along!

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@rstel7272

Aspergillus, I am in my 6th month of voriconazole.

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Dont u have any side effects from using this ?

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@rstel7272

Aspergillus, I am in my 6th month of voriconazole.

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Rick what were your symptoms of aspergillus infection? How do you do on voriconazole. Is it inhaled?

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@dilipddba

Dont u have any side effects from using this ?

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I now in month 27 of voriconazole. Main side effect is photosensitivity. I wear sunscreen, spf long-sleeved shorts, large brimmed hat when outdoors. Very prone to sunburn. I have elevated liver blood tests so we keep a close eye on thar. I really can't take other medications since the react with voriconazole

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When patients undergo bronchoscopy, is the pulmonologist actually able to see visible signs of mac damage in lungs? Are there any classical visible mac cues one should expect to see with bronchoscopy? Other than to get a direct sputum sample from lungs, does bronchoscopy provide any other diagnostic information regarding mac?

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@maliko

When patients undergo bronchoscopy, is the pulmonologist actually able to see visible signs of mac damage in lungs? Are there any classical visible mac cues one should expect to see with bronchoscopy? Other than to get a direct sputum sample from lungs, does bronchoscopy provide any other diagnostic information regarding mac?

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A bronchoscopy is an extremely useful tool to see MAC progression as to whether it has disseminated to other lobes of the lung. A sputum can’t do that. A CT scan can do similar but isn’t as definitive as getting an actual lung sample through bronchoscopy. Irene 5

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@maliko

When patients undergo bronchoscopy, is the pulmonologist actually able to see visible signs of mac damage in lungs? Are there any classical visible mac cues one should expect to see with bronchoscopy? Other than to get a direct sputum sample from lungs, does bronchoscopy provide any other diagnostic information regarding mac?

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The main goal of bronchoscopy is to collect samples from the lung -- tissue and/or mucus/phlegm; it's a diagnostic test. If a pulmonologist has done a lot of bronchoscopies then they have something to compare. For example, early on in this disease I had a bronchoscopy and afterwards pulmonary commented that he was surprised how much gunk was in my lungs. Not exactly a medical comment but since he had done many procedures he could visually compare mine to others. Plus, he gave me a few photos of the inside of my lungs as a souvenir!

Some pulmonologists send their bronchoscopy patients to the Interventional Pulmonology team at hospitals. Personally, I'd rather my own pulmonologist do the bronchoscopy but only if they've done thousands!

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