1. < Women's Health

Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don't know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Interested in more discussions like this? Go to the Women's Health Support Group.

debsternyc | @debsternyc | Jan 23, 2017

I run a support group on facebook called Bladder Prolapse

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Always Hopeful | @AlwaysHopeful | Jan 23, 2017

I have never joined Facebook, but this is a good reason. Once I have an account, how do I access your account? I would love to be part of a support group. This bladder prolapse is one of the strangest things that has happened to me medically. Plus, so many women have it and yet it was a complete mystery to me when it happened. Thank you for the invitation.

REPLY
pizon | @pizon | Jan 24, 2017
In reply to @tanglefoot "Hi Pizon My mother is in her 80's and she has a prolapse too. So as..." + (show)
@tanglefoot

Hi Pizon

My mother is in her 80's and she has a prolapse too. So as far as getting worse , I think the only thing we have to really worry about is that we can go pee okay and have bowel movements okay. My prolapse is not getting any worse since I have been wearing the Hideaway. It can only go to the opening of the vagina if you have a support garment on. It cannot stretch any further or go anywhere if we are wearing something to support it. If we don't wear a support then of course the bladder can stretch further and further out of our vagina and will protrude quite significantly. Again, if we wear a support it has no where to go, it cannot stretch or fall out because the support is stopping it.

My prolapse has been a stage 3 for over two years now. I have no bowel issues and no urine issues. I eat healthy, I can exercise while wearing the Hideaway because it supports me and keeps my prolapse supported. I can go for walks, ride my bike and play tennis even. I am in my sixties so I am doing quite well living my life while managing my prolapse. Its scary at first when someone has a prolapse because you feel like your insides are going to fall out on the floor. This will not happen. The key is to do those pelvic floor exercises, eat well, don't lift anything heavy as lifting will make the prolapse worse, try not to have a bad cough, that makes prolapse worse as well. Try not to be constipated as pushing, also pushes the prolapse out at the same time when you go to the bathroom. There is a trick to pushing. I fold up toilet paper and hold it with my hand against my vaginal opening so when I push for a bowel movement my prolapse does not come out because my hand / toilet paper is against the vaginal opening holding it in.

Try to relax Pizon. Its not that bad once you learn to manage a prolapse and work to strengthen the pelvic floor muscles that hold up our organs. I would rather see you try all the positive things before you venture into unknown territories like surgery. What do you think?

Tanglefoot

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Good Morning just a quick question dose the hideaway help you feel like your insides aren't falling out I think that is the worse

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littlesnowflake52 | @littlesnowflake52 | Feb 4, 2017
In reply to @colleenyoung "Welcome, @AlwaysHopeful. I moved your message to this existing and active discussion about cystocele and other..." + (show)
@colleenyoung

Welcome, @AlwaysHopeful.
I moved your message to this existing and active discussion about cystocele and other prolapse, so that you could meet fellow members talking about this important topic.
You may also be interested in these past discussions:
- scheduling sacrocolpopexy and cystocele repair...more than a little scared http://mayocl.in/2iWHE4a to read the messages by @wandili @montanagal @operationqueen

AlwaysHopeful: how are managing the prolapse? Do you have any questions you'd like to ask the group?

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Hi there.....I'm Annie. I have an embarrassing problem with having to wear either feminine pads or bladder control pads. I have mentioned that to my doctor and she told me to do kegels for a while but they don't seem to be doing the trick. I had mentioned that to me oldest sister and she said I might have to have my bladder pulled up. Is that very big of a procedure? I am 52 year old female (11/18/64). Thanks!!

REPLY
prolapsehelp | @prolapsehelp | Feb 5, 2017
In reply to @colleenyoung "Welcome, @AlwaysHopeful. I moved your message to this existing and active discussion about cystocele and other..." + (show)
@colleenyoung

Welcome, @AlwaysHopeful.
I moved your message to this existing and active discussion about cystocele and other prolapse, so that you could meet fellow members talking about this important topic.
You may also be interested in these past discussions:
- scheduling sacrocolpopexy and cystocele repair...more than a little scared http://mayocl.in/2iWHE4a to read the messages by @wandili @montanagal @operationqueen

AlwaysHopeful: how are managing the prolapse? Do you have any questions you'd like to ask the group?

Jump to this post

The surgery for prolapse has a very high failure rate. Many Drs, want to use mesh and their are women paralyzed and in chronic pain because of it. Many women have more issues after surgery than before. Please insist to be referred to a pelvic floor specialist for physical therapy. Many do the kegels improperly and p/t can help so much, even if you eventually decide on some surgical intervention. Please search "Bladder Prolapse" on facebook groups. You are not alone!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 5, 2017

Dear @Restless67 @maisie2 @upartist @maxann @pizon @AlwaysHopeful and @littlesnowflake52
Through a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.
Colleen

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 5, 2017
In reply to @pizon "hello I am interested in talking with anyone who has used the hide a way for..." + (show)
@pizon

hello I am interested in talking with anyone who has used the hide a way for a prolapsed bladder also any one who has had surgery about 5 months ago I was getting dressed and felt something weird down there and saw something with a hand mirror that shouldn't be there I went to my gyn and was told I had a form of a prolapse (the first time I had ever heard of this) I am 56 and had 2 very large babies not to mention 2 cysts removals one on each ovary in the past...I also started to get extreme pain I ended up in the ER and was told I had too much stool in my bowel....it turns out I also have pelvic floor muscle spasms ended up with a uro gyn and P/T the uro gyn dr. said I have 3 choices do nothing and it will get worse ( i have both utral and bladder stage 2) try the pessary or surgery so I tried the pessary 3 different times I was able to tolerate one for about a week but it rubbed me raw and i developed a horrible infection the P/T has helped with the spasms and now feel the only other option I have is surgery my life has changed for the worse unable to stand or sit to long with out feeling as thought my insides will fall right out not to mentions the lower it falls then the spasms come right back I need to get back to life is surgery the only true fix...one and done...but the more I read the less i eel this is true he wants to do a stitching only no mesh...dos the hide a way really work? sorry for such a long post but am in need of some advise thank you

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Thank you for bringing this scam to our attention @prolapsehelp. Upon further investigation we discovered that Tanglefoot's account is a fake account linked to the owner of the product.

@prolapsehelp - Can you tell us more about options to live well with prolapse that have worked well for you?

REPLY
pizon | @pizon | Feb 5, 2017
In reply to @colleenyoung "Welcome, @AlwaysHopeful. I moved your message to this existing and active discussion about cystocele and other..." + (show)
@colleenyoung

Welcome, @AlwaysHopeful.
I moved your message to this existing and active discussion about cystocele and other prolapse, so that you could meet fellow members talking about this important topic.
You may also be interested in these past discussions:
- scheduling sacrocolpopexy and cystocele repair...more than a little scared http://mayocl.in/2iWHE4a to read the messages by @wandili @montanagal @operationqueen

AlwaysHopeful: how are managing the prolapse? Do you have any questions you'd like to ask the group?

Jump to this post

Hello and thank you for your updated info. if I could ask you a question...you say that the surgery for prolapse usually fails can you tell me what type of surgery? My Dr. is not wanting to use mesh he is going to sew up and sew the ligaments do you know of any statistics on this type of surgery? My physical therapist agrees with my Dr. on the success rate with out the mesh and recommends the surgery if I feel that the prolapse is to life altering I am much better since the p/t and the pelvic floor muscle spasms are now at a dull roar but I still am trying to live with it ...thank you again

REPLY
pizon | @pizon | Feb 5, 2017
In reply to @colleenyoung "Welcome, @AlwaysHopeful. I moved your message to this existing and active discussion about cystocele and other..." + (show)
@colleenyoung

Welcome, @AlwaysHopeful.
I moved your message to this existing and active discussion about cystocele and other prolapse, so that you could meet fellow members talking about this important topic.
You may also be interested in these past discussions:
- scheduling sacrocolpopexy and cystocele repair...more than a little scared http://mayocl.in/2iWHE4a to read the messages by @wandili @montanagal @operationqueen

AlwaysHopeful: how are managing the prolapse? Do you have any questions you'd like to ask the group?

Jump to this post

hi I have looked at the facebook site Bladder Prolapse and am not able to find any reviews on surgery without mesh any other suggestions? thanks'

REPLY
Always Hopeful | @AlwaysHopeful | Feb 6, 2017

Thank you for your investigation and removal of Tanglefoot. Doing so protects the integrity of Mayo Clinic Connect.

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